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 My 12 yr old son Liam with joint pain and high temperatures and episcleritis in his eyes has now been on Brufen 400mg 3 x a day and keeps suffering from nausea and tummy pain, he is also on long term antibiotics, this has been going on now for 5 months and his pain is still just as bad if he misses his painkiller.

He has an appt with his paediatric RD on Dec 2nd, have you any ideas what questions I should be asking about a firm diagnosis.  (My own RD and GP agree and say Ankylosing spondylitis, he has HLAB27 + results but only slightly elevated ESR and CRP and the pattern of joint pains and spinal pain and inflamed eyes that only respond to Voltaren eye drops are all indicative of this.)

 But the paed RD says he doesn't think it is inflammatory he thinks Fibromyalgia or a temp virus that has caused arthritis.  He says Liam has a degree of ENTHESitis as his heels and achilles tendons both hurt badly, another sign of AS.  So please if you can come up with some questions to ask, this Dr is very righteous and wants to know why we stopped physio attendance and podiatry and that is due to being unable to afford it, we didn't want to have to tell him that but I am asking this time for a referral to a public hosp allied health services.  My own instincts tell me it is JIA as he has all the signs including regular high temps, warm joints but not too much swelling.  Thanks for any input. Janie.  Edited by me - copied from RA forum.
jane - muminpain   DX RA,OA'2000,FM 2004,DDD,OP 2005 Glcoma,obes,Ank Spond 2008,unhealed feet fractures.

MED: Pred, MTX, Lipitor,Endep Oxycontin, tramal, temaze,Zoton,aropax,fol acid, avapro 300. janiefx2008-11-09 01:40:49I am a really big believer in instinct - especially when it comes to moms and kids.  I don't know what else you can ask if his mind is made up except maybe "I want a second opinion".  I once had a great family practice guy who was always willing to listen to my concerns and help me look for answers.  My heart is with him, he is too young to suffer so much. Thanks Waddie, I appreciate your concern and advice, kind regards Jane.  PS Managed to get him in earlier to paed RD next Weds 19th.  Hooray and he is seeing a paed consultant tomorrow re his epilepsy.
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