Arthritis Information -Hi I am new here needing info

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I am 41 and was diagnosed 3 years ago. I woke up with swelling of my right knee and alot of pain. I was sent to a rheumatologist who put me on methotrexate and sulfasalazine (folic acid too) after a year with visits every 3months he then took me off everything for three months because of my bld work results.The pain did not change during the time on medication and then I got a really bad flairup and my primary put me back on the methotrexate. I RA doc did not answer my questions so I began to look for another doctor. I found another who took me off the metho. because I was still in pain. Sent me for xrays and said everytrhing looked ok. He put me on nabumetone and 2 visits later my blood pressure was high so he stopped it and gave me flexeral. 3 weeks off it and bp still high so primary md put me on bp medication. Went back to ra doc and he gave me tylenol w/codeine for the pain. That is all I am on...the pain is bad in all different joints and seems to jump around. I have no swelling no redness just pain. He said I have fibromyalgia too because I also have muscle pain, I am on Cymbalta for that. By the time i am heading home after work I am in horrible pain by bedtime I could cry. At bedtime I am taking the lotab, flexeral, sometimes benedryl to just to help me sleep..which doesnt help. Tigerbalm, patches nothing help.  Any suggestions??

 
There are not too many new docs in my area excepting new patients or my insurance!!

Hi. I have been living with Psoriatic arthritis for 10 years now. I was hit by a truck (not literally) one day and couldn't get out of bed. Turns out I had P.A. it took months to diagnose me. they thought I also had fibromyalgia but I don't. they put me on methotrexate, celabrex, ARAVA, and got knows what other anti inflammatory meds. They about did me in with side effects. The ARAVA is VERY dangerous and 6 years of being off of this I still suffer from high blood pressure, numbness in my hands and feet and foggy headedness. My arthritis is attacking my hands, lower spine and hips, and feet. They say I am at risk of being in a wheel chair, but they also said I would be in a chair in 10 to 15 years when I was diagnosed. I am FAR from that point. I think it has to do with my attitude and outlook on this condition. IT WILL NOT BEET ME! THAT IS MY ATTITUDE ABOUT IT. you have to fight!

Being a 10 year vet with P.A. I have discovered a few things over the years. THERE IS NO PAIN FREE LIFE WITH ARTHRITIS. no drug out there will cure it so you have to learn to manage it. I learned to listen to my body. I actually have been ARTHRITIS medication free for 6 years and do better with self care. I have a hot tub. I use it 1 to 2 times a day, I changed my hobbies and my work so I don't have to do physical work. I only do things around the house as I can. some days I do nothing, some days I can. I do acupuncture 2 to 3 times a month or as needed. this is very effective for arthritis pain and swelling. I see my primary doctor regularly and get Xrays yearly to monitor joint damage. I take trazadone for sleep and regular use of Darvacet for pain management. all of this together works for me. When and if I ever get to the point where I am taking a sever turn for the worse then I will consider going back on a proven med. the risks of playing with your immune system is very dangerous and the drugs out there are not well tested.

Hope some of this helps. Just don't go on meds without very thorough research.

debbie im so sorry u are experiencing so much pain its so hard wen u cant find a good RA doctor,sometimes it u have to get several opinions.It took me ages to get a good doc.I travel about an hour to get to my RA doc.You need someone u can talk to and feel comfortable with.IM on arava,celebrex,salazapirine,prednisalone,and at the mo oxyconin as iv just had a shoulder replacement.there is lots of info on the net debbie but sometimes i think that confuses me more as ther is just to much of it.IT can take a while for meds to kick in and sometimes u are put on several differant types at once,wot works for one might not work for others.please dont stop any of ur med,speak to ur doc. keep strong.

Google LDN  (Low Dose Natrexalone  or visit the pmr forum and scroll down and pick out the discussion on LDN..  Follow the links.

Hope it is of some use.


mrs UK
I hear your pain!  I do know of products that have helped ones close to me.  Many of them are all natural so I hope you could add them to your regimen.  And in many cases you can ween yourself off meds over time!  The products are a welleness line all PDR approved.  I just gave a friend at work the website because her mother is having similar  problems......www.todayinwellness..com..........they are natural so no need to worry about trying them out! can't hurt ya know!  I hope they help!!!!   I think some products that help are called "flexibility" for joint health "Sleep Tite " for sleeping (I take that one all the time and its chamomile so it's all herbal)......and of course Omega 3 is on there and that helps with swelling and inflammation everywhere (they offer the highest percent available without a doctors perscription !!!!! which is why I told my friend about it since her mom's healthcare is BAD )..........

Hope it helps......and I would feel so good if I i helped someone out with this!

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