Filthy Dog Vomit | Arthritis Information

 

This would best describe the way I'm feeling for the past two weeks. I've been off the plaq for two months now and not sure I will last a whole lot longer without some sort of treatment. Just not sure what that treatment is. I just do not like the side effect and mainly the headaches and nausea. Just not sure what is worse, that or the fatigue and joint pain and the horrid stiffness. Anything out there that has minimal side effects? Doc said that plaq has few but he lied, lol. I don't mean to make a funny... but I was wondering who you were calling "filthy dog vomit" when I read the title.  Sorry to hear you're having such issues.  I got no advice for you; can you take a week off of work and just hibernate?  Fatigue makes everything 100x worse. JasmineRain2008-12-09 13:04:20I rushed here to see a major rant on Lev going on.. 

Hey, Lorster.

What other drugs have you tried?  Personally, I only experienced nausea from the Plaquenil for about a week and a half.  Since then, nothing.  What about Sulfasalazine?  Have you tried that?

So sorry you feel so vile! It's hard to say what meds to suggest. I have absolutely no bad side effects from MTX but that's just me..... "filthy dog vomit" ....your kidding right? I am taking Chloroquine Phosphate 500 mg daily. Does not make me feel sick like the Plaquinil. I have to say i do feel good. Have been taking for two weeks now. My brain is very pleased with this medicine. That is important to me. A bit more energy. I had thrush constantly with the Plaquinil and mouth ulcers, sinus ulcers. Headaches. I feel alot better.No, IO, really, I did not do this for Lev, the fact is, I don't feel very good and haven't for a while. I have chose to be med free because I just hate pills. I'm now having to admit that meds are the only solution for this filthy dog vomit disease.

Actually, RA should be changed to....Filthy Dog Vomit Syndrome. LOL


I have looked at the side effects of all the meds and I just don't think there are any that are free of problems. As I have told others before, my RD passed away at a very young age two years ago and we just got a new one and I have an appt on Feb 13th. She is from California so maybe she will bring with her a lot of knowledge. She just started the first of Dec and she is already booked out a couple of months.

Jas I'm in the middle of 9 days off. It has not helped. [QUOTE=milly] I am taking Chloroquine Phosphate 500 mg daily. Does not make me feel sick like the Plaquinil. I have to say i do feel good. Have been taking for two weeks now. My brain is very pleased with this medicine. That is important to me. A bit more energy. I had thrush constantly with the Plaquinil and mouth ulcers, sinus ulcers. Headaches. I feel alot better.[/QUOTE]


Milly, I read something about that med....the reason they give plaq instead. I'm gonna go search that and I'll be back. [QUOTE=lorster]No, IO, really, I did not do this for Lev, the fact is, I don't feel very good and haven't for a while. I have chose to be med free because I just hate pills. I'm now having to admit that meds are the only solution for this filthy dog vomit disease.

Actually, RA should be changed to....Filthy Dog Vomit Syndrome. LOL


I have looked at the side effects of all the meds and I just don't think there are any that are free of problems. As I have told others before, my RD passed away at a very young age two years ago and we just got a new one and I have an appt on Feb 13th. She is from California so maybe she will bring with her a lot of knowledge. She just started the first of Dec and she is already booked out a couple of months.

Jas I'm in the middle of 9 days off. It has not helped. [/QUOTE]

But are you RESTING or are you putzing around the house?  Girl you need to rest.
Lorster, have you ever tried a gluten and/or dairy free diet?

I know it is daunting at first, but it's not that bad and a lot of people report it really helps. [QUOTE=inflamedOnline] I really thought that if I had this perfect diet, took my fish oil, increased my activity....you know...the whole lifestyle change thing, it would be THE CURE for me.    Plus, I had converted to a seronegative status, on the plaq and now am positive again. I thought when I went negative, it was over...I was cured. I have a bottle of plaq in my cupboard. I may just start taking it again and then maybe by Feb, I will get a different treatment. I would rather have the headaches and a bit of nausea rather than feeling like I have the flu all the time. Right now, I can barely get off the couch after sitting down for 20 min and getting out of bed in the morning...is ridiculous. I really just need to admit I have a problem and deal with it.

Gimpy, I am seriously considering gluten free and lactose free. Lorster, I can send you a couple of really good gluten free recipes and when you try them you will say....MMmmmm, gluten free is yummerdoo! It's just a matter of relearning how to cook. I am not gluten and dairy free but I have been fed some amazing meals by gluten and dairy free peops that included things like angel food cake and fluffy sauces.

I can't do it this minute though 'cause I have a dentist appointment.Lor.... I battle w/ the meds every time it's due to take them.... Hate them.. Yes, send me. I made a gluten free pie crust a year ago...and it was excellent, I would be most happy to share it with you. I love corn, and beans and all that stuff. I think I could adjust to that easily. It is cheese I have issues with. Gotta have my baby swiss.[QUOTE=JasmineRain] [QUOTE=inflamedOnline] [/QUOTE]

Hello... did you read the part about her original rheumatologist passing away and the fact that she has an appointment scheduled with a new rheumatologist coming up?


[/QUOTE] inflamedOnline2008-12-09 14:47:45Well if they called this Filthy Dog Vomit Disease we would not have wieght issues.exactly......sounds offensive.IO, I live in a very rural area of our country. There are 5 RD's in my state and they all are booked months in advance. My internist has been treating me but she admits it is really out of her realm of expertise. My RD died two years ago at the age of 63 while cross country skiing. Massive heart attack. I've just been waiting for a new one to come into practice and she just started last week. Not all of us have the luxury of living in metropolis and just going down the street to a new one. This is not the way it works in po dung USA.That is true Milly.



IO, sometime we just have to have a bit of fun with this disease. What other choice do we have?


Yes i had to wait three months to see a jerk myself. I used to go hundreds of miles out of my way. Can not say that i had any better luck. I do not have to like a doctor to get better. I just have to find the right medicine.I don't have time to read the whole thread, but I read recently that brand name plaq has less side effects (for some) than generic?Katie, thank you.....maybe that is what I read about chloriquine. I know there was a reason why they prescribe more of the plaq. There is a difference between Chloroquine Phosphate and Hydroxychloroquine. They are simalar in some ways I am sure. Both used for malaria. Chloroquine Phosphate is also an anti-viral, Under investigation as a cancer drug. An Amebesis also. I think that means it kills parisites? Of course both suppress the immune system slightly. I think it is easier to over dose on the chloroquine phosphate at the amount i am taking. I have to be very careful never to take a double dose. Both are potentially bad for your eyes. Also i read after several months it could cause deppression. But the difference in me is the difference that i like. My gums were all swollen icky looking, I also had purple gums just pigmentation , but that is embarassing. I think my hair is feeling better also.Lorster, That is one of the reasons I went off it, is because my eye doctor saw retinal changes in my most recent eye exam. It scared me a bit. That and the side effects. I'm not going to go back on it until I talk to my new RD. I'm going to discuss AP with her. [QUOTE=lorster]That is one of the reasons I went off it, is because my eye doctor saw retinal changes in my most recent eye exam. It scared me a bit. That and the side effects. I'm not going to go back on it until I talk to my new RD. I'm going to discuss AP with her. [/QUOTE]

Sounds like it might be a good option for you.

That is very rare.

[QUOTE=inflamedOnline]

That is very rare.

Usually it would take a high dose over a long period of time to build up in the eye. Just best to get regular eye screenings. what were the changes.. were they due to dryness long term?  IDK, but if that's the case, it's a different creature!  [QUOTE=JasmineRain] [QUOTE=inflamedOnline]

That is very rare.

[/QUOTE]

Never had any problems yet.  My rhumatologist has never seen a case of eye problems in her practice.  That's not to say it can't happen, but thankfully it appears to be quite rare.
[/QUOTE] [QUOTE=lorster]That is one of the reasons I went off it, is because my eye doctor saw retinal changes in my most recent eye exam. It scared me a bit. That and the side effects. I'm not going to go back on it until I talk to my new RD. I'm going to discuss AP with her. [/QUOTE] Has anyone ever switched from MTX to Plaq with success? Some people take them both at the same time.[QUOTE=inflamedOnline] [/QUOTE] IO, he picked it up on that one exam you get...think it is called the visual field? I did not have any problems when I started the plaq in April 2006...so to me, the plaq had to have played a role even though the doctor could not tell me for sure.   He told me that if I didn't have to be on the plaq, not to take it. That is where he left it. I have had no direction as my RD died shortly after my second visit. Since we have hospitalists now, I have not had a chance to meet this new RD so I'm not even sure what she is like. lorster2008-12-09 22:29:01[QUOTE=inf׀amedOnline][QUOTE=inflamedOnline] [/QUOTE] [/QUOTE] inflamedOnline2008-12-10 01:13:29Oh, I'm sure that I'm the only person in the world that does that!!!  lmfao you fat cow.Piss off you freakyou have such a nasty mouth.  i thought you said none of this bothers you and that you can ignore it all, lmfao.

Well we are posting in a thread called Filthy Dog Vomit, so telling you once again to piss off, doesn't seem out of place. Are you wanting me to visit you over in AF?

AF?  What is that?Hey Lisa, just totally ignore it, everyone on here knows its not you, so don't worry.  This thing will get tired and stop if you don't acknowledge it.  Regards Janie.Yep, ignore the weasel. could this be a form of internet stalking? think i'm gonna go google that this morning.from fswa.org

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Lorster, [QUOTE=levlarry]Lorster, [/QUOTE]
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