reshuffling appointments | Arthritis Information

 

HI guys, I am interested to know how many of you are  like me, constantly rearranging appointments due to ill health/fatigue/bad tummies - toilet dependance etc etc.  I have lost friends who can't be bothered but I am also blessed by a wonderful hubby, two gorgeous little boys and also friends who understand.  Thankfully, where I live, it is a small community and people get to know me and often come to me.

The worst part is promising the kids to take them somewhere and constantly letting them down, I have been asked by hubby not to mention anything until the day but I get excited if they get excited and really look forward to something, anyway thank God for my mobility scooter as we go for lots of bikerides at least.  I feel so disappointed about being inactive as I was always on the move as an athlete and now I can't participate with my kids.  Never mind at Least I am blessed to have children, I was told this would not happen, but Hey I am living proof -nothing is set in stone.  Regards Janie. I didn't reshuffle today, I just cancelled. LOL Really to sick to go to PT. Chest infection. My ear hurts and a bit of a chill. So i was going to cancel ENT tomorrow. Called GP's office. Tried to get them to call in something stronger. They said they don't want to change anything without me talking to ENT. So i will probably live tilll tomorrow. Guess i will keep my appointment. I would rather go to bed for a few days. LOL The Alegra is making me sleepy. I know he will put me on something stronger tomorrow. As for today. Well today I am not doing anything but resting.

I have been lucky in that except in the very beginning I never have a bad enough day to have to cancel but I do find myself anticipating that I'll be too tired to do something so I decline from the start. I just did that to an old friend of mine who wanted to get together before the holidays. We hadn't spoken or seen each other in a year. She said oh are you all booked up? I said yeah, sorry but we'll get together after the first of the year. Truth was I just thought it would be too much for me with all the holiday stresses.Hi Milly thanks for asking, I still am not on antibiotics because my DR said she is putting me on something for helicobactor- pylori, and it makes healthy people sick for a week, so she didn't want to do this to me before Christmas as I will get quite sick, so I have that to look forward to after Christmas.  I finally got my script for Rituxan!  Thanks Milly, will let you knowwhat it is when I get it.  Janie.
Absolutely. I constantly have to reshuffle and reprioritize. It's just part of the illness that we have to accept.

STOP BEATING YOURSELF UP FOR IT, WOMAN!!!

Sorry, to momentarily yell, but feeling bad about it, just makes it worse.

It's simply the unpredictability of RA and it's challenges. We never know how we are going to be today until today gets here. That just means that the person with RA and their family/friends need to be flexible and constantly adapting to the changes that happen.

We also need to pace ourselves which means that we can't do as much as someone without RA. We have to do things in our way, at our pace.

You can only do what you can do, Janie. If people can't accept that then it is definitely their problem not yours.

But I think that we are our own worst enemies in these areas...it is OUR expectations that are way too high and unrealistic.

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