Dear all,
After 3 ½ years with pmr, I am now free of pred since last week. When I started, I was told by the doctor that it would take ½-1 year - how little they knew then. During those past years, I have understood that younger and younger people get pmr and sometimes you know better than the doctors - you know how your body reacts to medicine. I have been lucky to have a milder variety with less pain than most of you. My final advice is - take it easy with tapering - it doesnt pay to go down too fast as you may have a backlash. I took it easy and tapered gradually each time I went down. It is better to do like that and be pain free and not have to go back up as it is usually very negative.
Good luck, Merry Christmas and a Happy New Year!
Ragnar
Thanks Ragnar and congratulations on getting off the pred and not having the pmr come back. I was just talking with my wife about a new tappering plan as I just had to up my pred because I tappered too fast. I have had pmr since April and I too felt that I was going to be the exception and get off the pred in just a few months. If was down to 12mg from 60mg at the start. Now over the last 2 weeks I am back up to 25 and can't seem to get back to the pain level I was at before the pmr came back. I am a bit bummed but hoping I can lick this stuff one of these days. I am going to go back and read the tapper plan you put on here a few months ago. Is that what worked for you? And do you still recommed it?
Thanks Craig
Merry Christmas and have a great PMR free new yearThanks Craig,