Whine-frustrated | Arthritis Information

I am just so frustrated. As I have posted before-I have been having alot of issues lately-don't we all :)

Due to start the Rituxen on the 13th and will get two cortisone shots in the jaw on Tuesday. That will help-I hope. I seriously feel like an 82yr. old in a 32yr. old body. I have also been fighting this crazy sinus infection for the last month. I orginally took Keflex and didn't feel better. Started Ceftin on Wednesday. I have never had one this bad. I woke up this morning dizzy and I felt like I had been punched in the eye. Went to Urgent Care and sinuses are no better plus now my ear is infected as well. Dr. didn't want to change antibiotic yet since I have only been on it since Wed. and it is apparently a good one. He called the ENT on call and I will be at that office on Monday. I quit. If I start running a fever or if there is swelling around the eye I am to go to the ER since the main concern is now the bone around the eye. All I know is that I feel rotten. He offered me pain meds but I told him I have Lortab. I haven't been taking it since I have been taking Tylenol cold/sinus. He said to stop the tylenol-it won't touch it and to take the Lortab instead. I picked up one of those neti pots at Walgreens and will be using warm compresses for relief. One plus-Dr. didn't charge me. He said he felt bad cause he could tell and I felt rotten but that there was nothing he could do. Nice guy-he is the second dr. to do that this week. The eye dr. also said no charge since he "gave me" cataracts for Christmas.

Ok...sorry for the whine. Just feel rotten. I am off to play Monster Jam on the Wii with my little one. Thanks Santa....

You sure are having a rough time, Rebecca...hope things turn around for you soon!You certainly are having some rotten luck lately. I think my hanging around here has caused my luck to rub off on some of you. In the past few months I've had shingles, cellulitis, three sinus infections and been diagnosed with hypertension and glaucoma. Maybe 2009 will be better for us? Hey, don't call it whining you've had a terrible time of things..call it venting instead. And if want to call it whining then don't feel guilty it stinks being sick all the time sometimes you need to whine a bit.

I hope things get better for you soon.

Bob

HI Rebecca, its awful, all that you are going thru, never mind, I will pray that your infection clears up, I am in the same boat with an infection in my tummy, so neither of us can have Rituxan until it clears up!!!! Good luck Rebecca, from Jane. Aw, Rebecca, I just so understand, lovie. Sometimes it seems with this challenging RA and it's ramifications that we stand up and then, it's like we get knocked off our feet again. Honestly at times I feel like I am on a goddamn rollercoaster...wham, I am flattened by a sinus infection, I hobble to my feet only to be knocked down again by side effects of something...bang...up again I get and some external stress happens that I simply can't avoid and...slap...I am floored again.

This cycle, to say the least, is FRUSTRATING beyond words.

I too, suffer with sinus infections, as many of us do here. It can make you feel so unwell sort of like you have bronchitis or pleuracy. They are not fun.

All I can suggest is to decide right now, that you need to be as kind and loving to yourself as possible. Other people's expectations can go to hell, right now you need to focus on your own self nurturing and you little ones basic needs.

No trying to be SUPERWOMAN or SUPERMOM right now or actually ever since it is just not possible for anyone to humanly achieve that even if they are pretending you can. Bah humbug.

Look after Rebecca, let go of all else.

Rest. Rest. Rest. As much as you can, you will get better quicker if you don't push yourself.

Gentle. Gentle, wins the race here.

Reduce your expectations of you and other people's expectation's of you. Other people may get upset at you for not fulfilling their expectations but that truly is their issues not yours.

Instead, relax with son. It is good modeling for children that even as adults we need relaxing play time. It's good modeling to show our kid's that self nurturing is so important.

Do only what you have too. Bite it all into bite size pieces and just do only the next thing that has to be done.

Close behind frustration in the RA journey is feeling completely overwhelmed by all we are supposed to cope with. Feeling overwhelmed tends to make us panic. It's incredibly scary to feel so overwhelmed.

We can only go at our own pace, doing things our way, not the way and speed of a person without a chronic illness. And you are also a single parent too. You load is heavy.

Accept that you are feeling crappy, allow the crappiness to be part of your world instead of resisting it. This disease is no easy road. You feel crappy now but this too, will pass eventually. Accept where you are at, letting go of the power struggle with our own disease is incredibly freeing. In acknowledging that this is what we've got to work with, relaxes you and you will feel less stressed and overwhelmed.

I shall be thinking of you, darl. I hope some of this helps somehow.

Big hugs. Rebecca,

I'm really sorry you are having so much trouble.

I don't use a Neti pot, but I use the Neil Med Sinus Rinse bottle. One was given to me when I had nasal surgery. I love it. It comes with prepackaged solution and the bottle has a line so you know how much water to use. It's important to get the correct mixture of water and salt/baking soda or it will sting. I use mine every time I feel a sinus infection coming on and it gets rid of it. If you get the mixture right, it will feel very soothing - well, at least it does to me. My allergist says he recommends nasal rinses for any patient that has trouble getting rid of infection. It should help you.

Hope you feel better soon!
(((((((((((((((((((((((((((((((((I'm trying. Of course-everybody else is sick right now in my family as well. So, I have the little guy. He is also running a low fever so I can't even send him to daycare. Sigh....

I'll call the ENT first thing in the morning. Guess I'll be dragging along a 5yr old. Fun Fun!!

Thanks for all the well wishes.
Hi Roccky, I know you're trying and sometimes circumstances make it impossible to comply or get the rest our bodies require. Let us know what the ENT has to say. I'll be thinking about you. LindyLuckily-he got a number of new DVDs as gifts. That will buy me some quiet time.Saw the ENT today. He was impressed with the amount of "gunk" I still have on the left side. He prescribed a stronger antibiotic and wants me back on Friday if not much better. He said that he thinks I am a "perfect storm". Resistant bacteria, prednisone and other immunosuppressents, and a TON of jaw inflammation on both sides. If I go back on Friday he will order a CT Scan. He had mentioned in the past having sinus surgery but that was years ago. Since getting allergy shots, I have been doing pretty well. Hopefully this is a one time nasty infection. He was also glad to hear that I was going to the Oral Surgeon tomorrow. His response to the jaw was "wow!". Luckily tomorrow will be a farily easy day. My son will be spending the night at my parents since I am not supposed to move the jaw too much after the shots. I will be able to come home and sleep. Hi Rebecca, keep trying and remember put yourself first, its important that you get better for your rituximab. Hugs Janie. Rebecca...i had cortisone shots in my jaw..it was the best thing ever..it was uncomfortable at first but the after effects were wonderful..I really hope you get some relief, let us knowI am glad you get to sleep! I hope the injections helps your jaw. That has to be so terribly painful.
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