My 15 year old son who is a
dancer, and guitarist was diagnosed with Juvenile spondyloarthritis
last week by Dr. Lehman at the Hospital for Special Surgery, and was
diagnosed with kyphoscoliosis the month previously. He is having
trouble coping with his pain although we believe his new med,
Relafin is starting to kick in. He was an athlete, a dancer who
has been offered all sorts of things and won dance and karate
competitions. This is all very devastating BUT his MD
believes with the right meds these kids can return to their
activities...My son's last MD said it might be "all in your
head"! I caught have screamed, but he works with my husband and
didn't want to cause problems for my husband at work. Needless to say
we WILL NOT be seeing this MD EVER again. My son was told so many times
this was growing pains...and the first thing we saw upon entering his
rheumatologist's office was a poster of the front page of his new
booko, "It's not just growing pains". !!!! We knew we were
in the right place! We were told there might be flare ups that
can be controlled from time to time. It is important to make my
son does not become obsessed with avoiding pain...as he was beginning
to fear even playing guitar would cause pain in his wrist too...he has
begun to swim and that helped his psychological state...and is in
physical therapy. Extremely happy with MD...took several MD visits
until we found out what this was, but his Rheumatologist figured it out
by careful exam.
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