dislocations with pmr??? | Arthritis Information
I have had a strange and oh so painful symptom throughout my PMR: joint dislocations. I have never heard anyone else mention it before (maybe because I am new to this "sanity saving" forum! ) It only happens in the joints/areas that are currently the most affected. For example if it is my upper arms that are really painful/unable to raise, then my shoulders come dislocated easily. It is excruciatingly painful, but on the happy note-I have been able to pop them back in fairly easy. Luckily when it first happened to my shoulder I instinctually grabbed that arm with my other arm and hugged it tight to my body. Then I heard "ka-klunk" and it didn't hurt anymore. Bizarre. Carrying a heavy pot, a sudden movement, even a sneeze has caused a dislocation before. Last month when my rt. knee was swollen, it seemed like it wanted to pop out to the right when I would climb stairs. It never did, thank heaven. I'm not sure I would know how to put that one back in. Scary.
Have any of you experienced this before??
Okayyyy, so my wrist is really hurting today and my husband tugged on it trying to help me get dressed. My darn wrist just about popped out!!
Seriously, no one else has this problem??? Not only am I "too young" for PMR, I also have freakish side effects!!
I haven't updated in a while because I have had a new DEVELOPMENT in my battle with PMR. As you know the joints most affected, sore, stiff, painful, weak: are the ones prone to the dislocations. Well Saturday, Sunday and Monday the PMR had really moved into my NECK. Ouch. I'm not sure if your neck can "dislocate" but it would grind and pop and catch and literally take my breath away. I couldn't hold my head up for long periods of time. I also had a couple fainting spells during this.
"That which doesn't kill you only makes you ........ weirder." The Joker in The Dark Knight
Hello 2young4this
"YOUR POST" led me to this site and after days of trying to register..success!
BUT it concerns me --there is syndrome EHLERS-DANLOS (on Mystery Diagnosis): lax joints, connective tissue fragility, joint dislocation, soft stretchy & velvety skin, chronic limb - joint pain, easy bruising, possible heart valve issue. Don't think it's you but be sure to cross this off. I see MY symptoms across the posts on this "too young" topic and I've always had loose joints but PMR fits me and a Wholistic doc finally diagnosed me.
Was in a hard patch in life when I got a flu for about 4-5 days. Left me very sore, as if thrown against a wall. Recovering on a Sunday, did some painting and surprised my depth vision was occluded "misjudged distance to ground on a ladder!". On Monday alarmed by a sea of jelly fish and spiders floating in my vision so ended up at ompthamologist. Short of it - they could pin nothing down and soreness grew. Arms raised only to shoulder point, no sitting cross legged on floor, hip pain excurciating, waddled slowly, severe morning stiffness or if still too long. Sleep interruption, motion = pain. Exhaustion. Crawled off bed, in /out of tub. Dressing just like you. BUT Sed rate not high enough and I was too young per m.d. for PMR.
2+ years of agony without meds. OTC Tylenol 1 used only- my doc didn't want to say the F word but in end he pinned to fibromyalgia. M.D. looking out for me-did not want anything on record. Cut-throat ex from hell would use to get our 2 kids plus $ support from me so my employment and life had to appear uninterrupted. Took pain management course. After over 18 months into this, a friend sent me to her homeo type doc and in 2 visits she was adamant was pmr. Sed rates can vary and change as disease progresses. I recovered in 6 months (as she predicted) but the vision remains a problem. Did have some random shooting pain in head. Hard to say but can't accept that sudden vision change on the end of this flu that initiated PMR symptoms "exactly", has no connection. I think they don't know enough. PMR is not a popular research cause to my finding. Sadly it might take the younger group to put pressure out (or a celebrity) for better research. Any time I think of this ordeal, a prayer goes up a. PLEASE don't come back b. more research be done (including the younger folks!). But Docs don't want to buy new books or get told by patients. Internet is the enemy but in fact can be a savior. So keep on mom
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