I'm back, you're not going to believe this... | Arthritis Information

 

As you may remember, I got out of an abusive marriage in Oct. and a couple of weeks later was in a serious car accident, which caused serious neck and back injuries that I am very slowly healing from. I just found out I have an acute fracture in my sacrum that was initially missed, most likely caused by the accident as I haven't done anything, like falling that might have caused it.  Very, very painful. Looks like I also may have fractured my foot as well...  Against Rheumy's orders, I have slowly been cutting down on pain meds to see how bad things are, and that is when I discovered these new injuries and had x-rays. In Dec. I had to have a complete hysterectomy, and seem to have bounced back from that rather quickly. My Drs are still very concerned with my continued weightloss. I can only wear teen size smalls now. I am just not hungry.

 

If I divorce hubby, I lose all medical insurance and will not be able to receive care or afford my medicines. I can only have an income of 0/mo to qualify for public assistance. There is another program that has a sliding fee based on income, but open enrollment isn't again until Oct and they have a 9 mo wait for pre existing illnesses. Not a great option, but keeping it in the back of my mind. Because my RA and Lupus are not under control and my accident, I am not able to work. Soon to be ex may be losing his job which means he will not be able to continue to pay the ordered spousal maintenance. If I cannot pay for my apt. I may have to move back in with him, which makes me sick to think about. I applied for SSI and just found out I was turned down,so now I have an attorney working on it, but with the economy the way it is, she said everyone and their mother who has lost a job is trying for it and clogging the system. It will take at least another 2 years for that in her estimation. My Drs are guessing it will also take about 2 more years before I am back to the way I was before my accident. 

 

At my next rheumy appt. I will see if he can wean me off most of my meds or substitute cheaper ones, or find out if the drug co. offer any assistance. I was also wondering if he can put me in the hospital and take me off everything at once and see what I really need. I use a fentanyl patch and when I forget to replace it, I get shaky and sweaty. It's a scary feeling. I am also on vicoden, ativan, lyrica, ambien cr, and a host of others.

 

On a good note. I've met a very nice gentleman and we've been dating about 6wks. I am 5'2" and about 100lbs and he is 6'6" and about 170. He picks me up in his arms to kiss me... very sweet. He lives almost 2 hrs away and works very long hours, so time together is minimal. He is a few years younger than me, but everyone tells me I look 30 and not almost 44. He is the bright light in my life right now, but I keep a lot of my medical stuff  from him. I told him in the beginning and he researched on his own and ordered me a theracane as a gift after our first date. I was very surprised. He is always afraid he might hurt me, but is very gentle. He drives a corvette and as nice as it is, I have a very hard time getting in and out without his help. Definitely not a good car for someone with disabilities.

 

well, that's all for now. I will try to check in and post more often. As it is, I have 6-9 dr appts per week, ugh! Who all needs a vacation???? I do, I do!

 

deb

You HAVE been busy, haven't you? 

((((((((((((((((((((((((((((((((deb))))))))))))))))))

Wow you're going thru an incredible amount of stuff.. I suggest some therapy.. sliding fee scale, where they might not even charge you.. or let you run up a bill..

  Please, please,  do NOT even think about going back to the ex.. ok??

Think about , hmm being a caretaker for a house, sometimes people just need someone to be there and may not have a lot of work to do.. or roommates.. but no ex.. please.

 

Fantastic, about the bf and i'm envious, really envious about your weightloss!! I am!!

Thats the hardest part, one of, for me, is the weight and not being able to exercise or walk and get it off.. plus i'm a foodie...

 

Sounds like a great bf,.... let him know about the corvette, that IS one of the worst cars.

He needs to know its painful and he has you and you don't care about a "penis car"..

LOL had to add some humor!! but true, LOL

Perhaps he can use yours or a friend of his.. the mere idea of being in a vet or getting in one... shiver..nooo..OMG, Deb you have been through the wars. What's amazing is that you still sound really upbeat, it must be the fact that someone up there sent you some 'light' in the form of your gentleman friend.

Moving in with the ex doesnt sound a good idea, is there no-one else you can stay with in the short term?

After all you've been through a little happiness is just what you need.

Take care

Deb- so good to hear from you- I've been thinking about you a lot.
Sorry to hear of your pain and troubles. I don't think you can go off your meds- you need them. Maybe your doctor can help you with samples or get you in a drug program with one of the companies.
I don't think you can or should go back to living with your ex- it will undo all you have accomplished so far. Plus- I don't think he would be too inviting if he finds out you have found someone else.
I'm glad you have a least that bright spot in your life.
All the best to you and don't stay away so long. Keep us posted on how you are doing.
Hi Deb, keep that positive attitude going strong, its that which has got you through t'il now, things have a habit of slipping into place so your new BF is a guardian angel that you needed right now, enjoy it, hugs Janie.  One thought I have that might help you is while you are waiting for SSDI to be approved, you might also apply for SSI which is much easier and faster to get and will allow you to receive Medicaid coverage too. Thanks for the replies! I don't qualify for ssdi, so it was ssi that I applied for. I do see a counselor once a week and fortunately she hasn't been on me too much for my co-pays, but I do owe her a good bit of money. I try to pay a little here and there...
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