My greatest fear is not being able to get to my kids fast enough when they need me. Like my daughter was sick the other night and I wanted to jump out of bed and run to see what was going on. But that didnt happen it felt like it took me forever to get to her and her room is on the other side of my wall. That is what I hate and fear the most not to get to them fast enough.
DAWN
I fear that I won't be able to work and support myself.
Lee
Complete and utter dependence - not being able to do anything at all on my own.Before I remarried Lee~I had that same fear as you. I still take great pride in supporting myself and making a big contribution to my family finances; but I'm not paniced over the thought of one day being unable to work anymore. That is such a frightening feeling.
Now I feel more like Hatari. I know even at this stage of this illness; for me....when I depend so heavily on my family to do things for me, I know that in the years to come I'll have to ask more and more of them. I'm uncomfortable with that....I fear that portion of my future and the unknown. Not knowing what exactly to expect from my future worries me more than scares me.
Then again; no one knows what the future holds for them. It's not just us....no one knows what tomorrow will bring. That's a comforting thought I suppose.
I try not to even think about things like this. Thinking positively helps me to do better.
not having anything to give
for me it's not so much about financial support, but personal productivity support. That is, I will shrivel if I can't continue to work.
Lee
Just a reminder for all to come over to www.rafriends.com board.
No being able to work and support myself, not being able to do my art work if my hands get crippled.
Barbara/Tmir
pretty much knowing that it is progressive and degenerative and knowing that its getting worse. Not being able to teach my son how to play guitar and the thought that one day i might not be able to feed myself - i find that really scary, the anticipation of decline, also the meds - I am scared of the long term side effects - also the fact that everywhere i look it says how serious and crippling and trecherous RA is and i can't find anything nice about it anywhere.