new on enbrel | Arthritis Information

Share
 

i started enbrel 2 weeks ago.in that time my pain has gotten much worse. i called my rheumatologist and he said he had no heard this before but to keep taking. has anyone else experienced this? should i keep trying hoping it will eventually help me?

thanks
monique ok..

I can talk only from my own experience...
 
I had more pain initially..
 
why?  because I had less inflammation..
 
then.. after the inflammation leaves........ so does some of the pain..
I still am not painfree... but I feel TONS better.
 
Give it some more time isabelle!!
 
best to you.
hi
i don't understand. how does less inflamm cause more pain? shouldn't it be other way around?
I can't answer your question re: Enbrel but I can say I'm probably one of the only people that got worse on Pred.  Everybody loves that stuff but I ...didn't.
 
I do think it's supposed to take like 2 - 3 months for Enbrel tho.
 
Hugs and welcome to the board,
 
Pip
Hello Monique, welcome!  Are you on any DMARDS or just the Enbrel?  Adding one or more may help, Lynn just posted an article on the very subject of combo drugs.  I know from experience it can take a while for the Enbrel to work.  I hope you feel better soon!  hi waddie

plaquenil did nothing so stopped it. mtx made me horribly ill so couldn't take it. was on minocycline for 3 good y - in remission - but then got very sick from mino - so sick i was bedridden - so that was end of that. now on enbrel.

monique
I am currently on Humira w/o DMARDS and I KNOW it is not working as well.  When I was on Enbrel, it was in conjunction with MTX and it worked great for about 5 years...  Ahhh... those were the days!  Now, it seems, the MTX is causing a severe rash so I am going solo with Humira.  I am trying to get another DMARD to try.

Just curious, how did the mino make you ill?
My husband was having enbrel sureclick , he had to stop as there was no improvement in a year.He has infusions that have worked very wellhi is he on remicade then? did he et worse on enbrel or just have no imprvmt? mine is getting worse very rapidly.

My husband was having enbrel sureclick , he had to stop as there was no improvement in a year.He has infusions that have worked very well
hi waddie

who know how mino made me ill? i developed severe vertigo nausea and fatigue on it. that took me off work not the arthritis. took me 2 y off mino to get those syptoms under control wit diet anti-fungals supplmts. soo it coudl be it knocked all good bact out of gut or i devloped an allergy to it. but when i try to take it those sysmptoms return so i know it's mino. flagyl also causes same sysmptoms.

monique

Just curious, how did the mino make you ill?
Thanks Monique, that is what I wanted to know, though I guess I did not express it very well.  
Copyright ArthritisInsight.com