My hubby & son were out in the car snoozing!Good luck with the increase in your meds. I hope it works well for you.I am glad it went well and that you will get more remicade! But the only time I ever had insomnia was on darvocet. Not a good drug, they may take it off the market soon, maybe she could rx percocet? Seriously google darvocet if u haven't alreadyJoonie, Lyrica has really helped me with neuropathy and leg pain. For the first several weeks expect some side effects but they'll go away as your body adjusts. You may be sleepy when you first go on it. Actually, sounds like a decent appt. and Katies right, Darvocet may be pulled from the market. Take care and I'm really happy that you're doing so much better. LindyDarvocet is a crappy pain reliever - not really any better than just taking acetaminophen (tylenol).
Thanks everyone!
I hope this fibro can be remedied. And I hope Lyrica gets PAed. I keep have trouble getting most of the "popular" meds my RD RXs not PAed. I am not sure if they are not sending in PAs or they keep getting rejected. I told my RD about it today, and she said they are probably rejecting to authorize them.
Did not know that about the darvocet, thanks for telling me! She told me just to take one when the Ultrams do not work. But she told me to take 2 Tylenol arthritis if the Ultrams themselves do not help with my pain, and if I have pain come on after all of that like I was, to take a Darvocet. She only RXed me 15. I am just hoping I will not have a need for anymore than 2-4 Ultrams at most, or none like now. I have pain, but it is not pain med worthy. It is mostly tense muscles and tension pain I have from the fibro. Not much joint pain, and the pain I do have in my joints is easily ignorable.
My hubby finally told me how he knows when I am not doing well, or in a lot of pain. He says my face is scrunched up and I move around like a zombie. He said I can go weeks with my face looking like that and it never looking any different until I get my infusion. Then my face goes back to being normal looking. Kinda weird I say.
I think I have more productive appointments, if I go when I am doing well. I seem to be able to remember things a little better and am a little more talkative. As compared to when I go for a visit when I am in a flare. Because most times by the time I see her I am hurting worse and just ready to go home.
Joonie,
Sorry to read you have RLS. I have that too. It feels like bugs are crawling up the bones in my legs. It's is frustrating when it happens. I took Requip for a short time, but found that when I got my iron levels more in the mid-range, the RLS went away - well almost. It probably creeps back once every six months.
It sounds like you have a great RD. Very thorough! I have to admit that the Darvocets weren't very helpful for me. The Tylenol Arthritis might as well be candy too. The only thing Tylenol does do for me is bring down a fever if I have one. It does nothing for pain.
I hope you feel better soon.
Joonie,
I sure sounds like you RD is a keeper. I hope you continue to improve and that the meds make the RLS better
I cannot tolerate iron supplements. I have this weird thing about if I eat more than one peanut butter sandwich I will bleach up the iron taste for days. It also will make me feel sick to my stomach. I just cannot tolerate iron for some reason.
I have to try to find vitamins with very little iron in them, and that is hard to do. I found on brand one time, but walmart no longer carries it. If I take a supplement with iron in it, I burp the iron up and then I get a wicked headache and not feel very well.
I have always been like that about iron since I was a baby. Both of my kids had to be switched off formula that had less iron in it, because they would throw up the formula and not keep it down.
I do not think I am anemic. I was tested for that some time last year. And I was having all the same symptoms I am having now with my legs jerking, twitching and "falling asleep".
It is just that normally when my legs do that, I have a lot of inflammation going on, and I know I do not have that much inflammation going on now, so it should have went away. But it has not this time around.
When pregnant, I couldn't keep down the pre-natal vitamens. Dr. said it was due to the iron. Instead, I took the Flinstone's chewables with iron. They didn't cause an issue.Yeah... it was one of the pre-natal vitamins that I was taking that did not give me the iron issue, but our walmart does not carry it anymore. I am not even sure what the name of the brand was. I just knew it when I saw it LOL!
Joonie, there are LOTS of multivitamins available without iron - at Walgreens, Walmart, Kmart, you name it. Just got to dig around a bit. If I take a multivitamin, it's always the one without iron.
Copyright ArthritisInsight.com