Hey guys, well, I know you all warned me the Rituxan would be all fits and spurts but today I am cursing this darn RA! I have no energy and it is worsening, pain and tenderness and puffiness in most joints, and bad tummy from MTX usually, how the hell can we be so good one day and so poopy the next, it floors me everytime, I will never "get it"! I make plans and then have to cancel again, lucky my kids are used to it by now, but I hate letting them down. Hubby says I just shouldn't say anything to them but I like to look forward to things too.... this time last week my air filled head was dreaming of my return to work, yeah right, my return to running, ha ha, and being a size 12 again, lol lol lol, hold on while I try to drag myself up off of the floor, I thought Rituxan was my saviour and yeah I know its early days and some promise has been shown but RA always likes to stick its ugly head in to let you know it is still the class bully! Regards Janie.
So sorry you're feeling so crappy, Janie...hope it doesn't last too long! don't forget that you had high dose iv solu medrol with the rituxan infusion...you are likely feeling that wear off...be patient with the rituxan usually it takes several months to kick in so very sorry...... I hope you get back to feeling better very soon..... take it easy on yourself.... be kind to Janie
I hope the rituxan gives you more good days than bad.Feel better again soon!!!!!
I am sorry, Janie!
When you feel good again, don't go over doing things.
I know I have learned to take thing quietly as she goes, so tomorrow is not a hard one.
Hope your on the up again real quick.
Hi Stephen, it doesn't matter how many times I tell myself or my friends on here tell me, I think I always overdo it when I feel well as I don't know how long it will be until I feel this good again, catch 22, I have rested today even though there were things that needed doing, maybe tomorrow??????? Janie.
Give yourself some time to adjust and catch up. We are all thinking of you and (always) Liam too!
Thanks guys, you are all so wonderful!
Janie - hope today is better for you. Big huggles ~~ CathyHI guys, I am having an awful day and night, I am so upset, I just cannot believe how you can feel so happy one day and then desperate the next, I had my MTX shot this am, and my tummy has been really bad for the last 4 weeks, prior to that it had calmed down and seemed to accept the MTX without that previous much suffered side effect which usually stopped me taking it for a while. Tonight I have (and I hope this isn't too much info)lots of blood from the bowel, I think it is probably from a haemorrhoid, but I don't know, my upper abdo has been terribly painful too. Does anyone think the Rituxan combined with the MTX could restart the bad tummies and toilet probs?
Also my left knee is swollen and very painful after being bent, to straighten out or to bend anyway basically, I am having an XRAY as I have had a meniscal tear repaired there before and a clean out. My shoulder on the left is in terrible pain, I have a trapped nerve from the swelling in the bursa the GP said, and now the right one is starting too, I feel a mess, and I feel sick in the tummy too, this is all too much at times, I am in tears here, just cannot plan anything, it sucks I dropped my pred by 1mg on Monday because I thought the Rituxan was doing its job, surely 1mg cannot do this.
I have taken 6 tramal today and 4 advil and 5mg extra pred on top of my usual oxycontin as nothing is helping, if I am like this tomorrow I am going to ring my GP to see if she can help, altho usually she says she can't, she just advises me, checks that I am doing everything right, and reassures me. She says she can't prescribe anything else due to all my allergies! I do understand that but when I am desperate she sometimes gives me a tramal shot to work quicker. Sorry for going on, thanks guys for listening. Janie.
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