Desperation! | Arthritis Information

Joined: 06�May�2006
Location: Australia
Online Status: Online
Posts: 1615    Posted: Today at 8:55pm Hi sorry, I posted this first on feel like poop thread and then copied it here for a new thread.

HI guys, I am having an awful day and night, I am so upset, I just cannot believe how you can feel so happy one day and then desperate the next, I had my MTX shot this am, and my tummy has been really bad for the last 4 weeks, prior to that it had calmed down and seemed to accept the MTX without that previous much suffered side effect which usually stopped me taking it for a while. Tonight I have (and I hope this isn't too much info)lots of blood from the bowel, I think it is probably from a haemorrhoid, but I don't know, my upper abdo has been terribly painful too. Does anyone think the Rituxan combined with the MTX could restart the bad tummies and toilet probs?

Also my left knee is swollen and very painful after being bent, to straighten out or to bend anyway basically, I am having an XRAY as I have had a meniscal tear repaired there before and a clean out. My shoulder on the left is in terrible pain, I have a trapped nerve from the swelling in the bursa the GP said, and now the right one is starting too, I feel a mess, and I feel sick in the tummy too, this is all too much at times, I am in tears here, just cannot plan anything, it sucks   I dropped my pred by 1mg on Monday because I thought the Rituxan was doing its job, surely 1mg cannot do this.

I have taken 6 tramal today and 4 advil and 5mg extra pred on top of my usual oxycontin as nothing is helping, if I am like this tomorrow I am going to ring my GP to see if she can help, altho usually she says she can't, she just advises me, checks that I am doing everything right, and reassures me. She says she can't prescribe anything else due to all my allergies! I do understand that but when I am desperate she sometimes gives me a tramal shot to work quicker. Sorry for going on, thanks guys for listening. Janie.
jane - muminpain   DX RA,OA'2000,FM 2004,DDD,OP 2005 Glcoma,obes,Ank Spond 2008,unhealed feet fractures.
janiefx2009-04-16 04:57:40Awwww Janie- it's just not fair. So sorry you are feeling so lousy and having troubles. It's even more upsetting after you had a good stretch that you hoped was going to last...

Hope things turn around for you again- it can happen! I'm sorry I don't have any answers to your questions but I'm wishing you all the best.

That's how I got through the pain also, I adjusted my prednisone to fit my pain. The blood thing I would take up with a doctor right away. It's probably nothing but, I have finally realized that in our delicate condition, it's always best to get medical answers to anything out of the ordinary. You are probably sick of hearing this but, hang in there, it's going to get better. When you are in pain, just relax, find a comfortable position and enjoy it.

Janiefx....When I was on the MTX (both oral and then injections) I was Sooo sick. I spent 2.5 days in bed every week after my dose and finally decided that it wasn't worth it. Switched to Arava. Never had any blood in my stool though. I really think you need to get this checked out. Hope things get better for you.I am so very sorry to read you are feeling so bad Janie. I am praying that this is just a wee adjustment period with the Rituxan, and things will rapidly get better again.

I am thinking of you heaps and send lots of love and good thoughts your way.

Janie sorry to hear that you are having such a tough time of it. I can only agree with what many others have said. I hope and pray that things will get better for you soon. Hugs. So sorry Jaine. I hope things turn around for you soon.
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