Hi all,
Well nite two with the new med, Rozeram( I think I spelled it right), no sleep till about 3 am. The first nite I took it I did sleep some, very restless ,but some sleep. Oh well, I am at least glad I got samples of it, so I didn't have to pay a lot and then have it not work,like I did with the Ambien.
Like you said and my doctor also said, this too will pass. I am just in a flare and really have to learn how to cope with it. I have only been diagnosed with fibro since early summer, but suspect I have had it for a few years.
Anyway just wanted to let you all know . It is sunny and 41 here in Maine, a January thaw....so nice..helps my mood somewhat.
Post soon everyone...I 'd love to hear from you.
Mindy
HEY MINDY; TRIED MANY DIFFERENT SLEEP AIDS BUT ALL MADE ME GROGGY IN THE A.M. EXCEPT AMBIEN. I HAVE MORE OF A PROBLEM WITH THE CHRONIC FATIGUE. HOW DO YOU COPE?Mindy I am sorry your still not sleeping and if it helps any neither am I. I got the Ambien Friday and heve tried it two nights. I only got about ten of them so I wouldn't have 0 in them. OH well maybe tonight.
Karen, I have touble with both. Sometimes I think maybe I am just lazy but then I remember how bad I wish I felt like......... This is how I cope "maybe tomorrow".
Jackie
Hi All,
Hope you all had a good weekend. I mostly tried to rest and did sleep a little the past few nites, with no meds at all. I have given up on all of them. I don't know what it is about the fibro that won't allow me to sleep and not let any med help with it. A totally messed up body and brain I guess.
I guess we all try to cope the best we can. I do think that "maybe tonight I will sleep" but mostly have given up on that and just try to read or do puzzles, that's my new thing. My doctor says that it will pass and I just have to believe that, but it is discouraging and sometimes the pain gets the best of me.
Thanks for the reply...post often. I would love to get this board going..we need each other.
Mindy
I would love to see this board take off in a positive way too. I think no one else could possibly understand what we go through but us.
Your reply "I know this will past but sometimes the pain gets the best of me." If I had a dollar for everytime I have said that I would be rich. I does take a toll on you at times but, this disease chose me I didn't choose it and right now I wish I could get certain people to see I don't use my pain to get out of doing things, I do what I can and what I have to do (three kids). Its hard to be intimate when you hurt all over. I don't want to sit on me. How can I get it in my head it won't hurt any worse. Does anyone else have this problem? I think I am beating myself up because I have a duty as a wife that I can't measure up too. I told him I would leave but he said I better pack his clothes too. This intimacy has all ways been important to him and now I can't. I don't know when I will be able to. Any advice?
Hi,
I know exactly what you mean about everything! My hubby often says I use it as an excuse to get out of things, which is absolutely not true. Some days I just can't and really don't want to be friendly or visit or whatever. Or I plan to do things and then at the last minute find I can't. Like dinner with friends or dinner meetings.
I too told my husband he should leave, this was not what he bargained for (me either). I was not ill when we were married. Though he knew that I had chronic fatigue syndrome when I was in my 20's, but mostly recovered. We have been married 7 years. But he said he is not like that and if I had cancer or something else terrible, he wouldn't leave me.
I know about the intimacy. It is a terrible problem, because it is like most times,"get away from me" and I know that is not fair. And he is afraid to even touch me for fear that I am hurting bad and won't say. So I really don't have any advice...I think it is something we all deal with and really don't talk much about and probably should.
Take care...post soon and often.
Mindy
I laid down last night and he called my name. I was oraying so I didn't answer and he knew that. When he realized I was through he called me again and asked me are you hurting? I immediately went into sobbing time. I got up and got on the couch. He came in there and said let me rub you with something. In my mind I think when he rubs me it leads to sex so I said no. He told me today he was just concerned about mr and he knows I hurt. I know how he feels and I hate that I feel so bad because I can't help hime right now and it makes me mad that I have these fellings about a disease I didn't even want......... He understands my pain and my situation but, he still needs what he needs....(they think they need it). I know he is in as bad shape as me and I wish I could just bite the bullet and deal with it but I have tried. Oh well "this too shall pass"
Post soon and often
I'm right there with you....the guilt sometimes is as bad as the pain. My hubby is very understanding but I still feel guilty for not being interested in sex.
I also wonder what is causing what? I didn't start with Fibro but my reactive arthritis seems to have morphed into it & it's been a year now since all this started & I just want the pain to go away!!!!!! The only thing I can count on is about 7-8 hours of uninterupted sleep with Ambien CR.....but when I wake up the pain is still there. I am on Lexapro & MTX as well. Darvocet too but I don't think that really helps.....who knows?!?!
Okay...I'm done.
Hope you sleep well and U Mindy I was recently dxd with Fibro and have thyroid and RA- so I have a ton of fatigue.LOL- I have discovered something fun for me and hubby- I take a nice tub and relax - take a muscle relaxer after the tub and then he will rub softly a nice light warm oil on my sore body...Then if he wants to have sex we do- and it is alot more pleasant than it used to be- I also discovered that with the RA I had moisture problems and there is a great KY jelly that is like a syringe and it lasts for 3 days...so you can be spontaneus...My thing is if I cant sleep might as well get a free back rub- FYI- do you know that it is a proven medical fact that sex 3-4 times a week helps decrease heart problems???- Just a thought. Hi all, I have been reading the posts and was dx'd with fibro about 7 years ago. My first MD dx'd with several other medical problems as well, GERD, Fatigue, depression, anexity, panic attacks, and the list goes on and on. Currently however, my new doc, and internist is saying RA or possibly Lupus. I think that all of us have some of the possibilities of other disease's that over lap and they may start as one disease and progress to another. They dont know, we must be careful to take heed to our own bodies, tell our doctors what is going on, demand the best care of them, it is our money that they seek !! As for Fibro and the female side of things, I understand the pain, my husband was so caught up in this that he began to think it was him, and that he was doing something wrong. This lasted for about 4 years, it made living with him unbearable. We tried all sorts of things to ease my pains, nothing helped, sleepless nights, wondering why after going to be I would get up and sometimes be up when he got up the next morning. Stress and pressure are the worst things to add to this disease. For those lacking sleep try Wellbuterine, it also helps with stress, depression, fatigue. Good luck and many nights of sleep. Sharon
So far they are having trouble finding an antidepressant that works .
For about 12 years or so the sleep struggle has been one of the hardest.
The few times I tried Ambien it worked for a while then like everything else it was not effective.
With all the meds I am on I have been told I should have enough in me to knock out a horse.
Tonight will be my first night on Rozerem. Which is how I found this forum trying to find out more about it.
As far as libido seems like I have less pain if that is OK, there are a
lot of chemicals that are released that calm your nerves during
intercourse. My best guess is lack of libido might be more medication
related than pain related.
I was dx 15 yrs. ago with fibro.
I can relate to everything I have read here. When I was first dx, I had not been to a doctor (except my obgyn) when I went into his office, I was sooo full of all kinds of crazy feelings that I started crying and almost couldn't stop! He begin running all kinds of test and after about three weeks of test and three doctors, I was told that I had fibro/cfs. NEVER had I heard of either one! Ooooh the journey, that I was about to encounter ...
Well, all of this was 15 yrs. ago and today, I am still coping and now with aging and more health issues, I can say without a doubt, God is faithful!
I have a wonderful husband that has been so good to me and a family that knows very little. Seems we can never open up like we would like, but no one can fully understand unless they have walked in our shoes, huh!
I guess I just feel there's no use in trying to explain to them, so, I just take a day at a time, same as you all.
I have read all of the post on *sleeping* and I would like to share with you all - the ONLY thing that has helped me to sleep is *Neurontin* It is for seisures but has been proven to help many that suffer with fibro. I have been taking it now for a year and have found that it helps me to sleep better than I have slept in 15 years. It helps some, with the pain but mostly helps me with sleep.
The strongest thing that I have taken for pain is darvocet but seems once the pain sets in, THAT is like taking an asprin.
Sometimes, the *spirit of depression* trys to take control and when we are at our weakest moments(paaaain!) it would be sooo easy to give in and give up!
Having good friends that can relate are sooo helpful in our time of need. I have many friends but only ONE that has the same condition as this.
Staying busy (as possible) has helped me but sometimes I just sat and cry it all out! It is sooo good to have a *friend in Jesus* that understands our pain.
AND,it is sooo good to know that this WILL PASS and we WILL be overcomers one day! Until that day, I believe *encouragement and support* goes a looong way!
Glad to be here today!
to you all! Barb
I am new here and just saw the 'no sleep' title - so forgive me if this appears a little out of context.
I had a very short period of 'no sleep' diagnosed with Fibromyalgia [ 10yrs.]
After a week and a half of absolutely no sleep [felt like my eyeballs were nearly on the ground!] I went to the doctor and he gave me 5 Imovane pills. Now, since I was so sensitive to everything I took 1/2 pill every second night. I do not know anything about them except that they are not to be taken continuously as they are 'addictive'
However, I got SLEEP! After those I eased in to just a few hydroxy-triptophan capsules and did well.
About that time I was so angry that there was 'no known cause and no cure' I decided to analyse it at the most basic level of minerals. I thought I was short on Magnesium, chromium, selenium, manganese and boron. I had already started taking Om3 oil, vit E ,Vit C. Of course the pills contained general mixes of other trace elements too. Molasses and lemon drinks as well After 3 months I consider I have a cure. No pain whatsoever and I sleep well. I consider FM to be a trace element deficiency with eventually a virus or bacteria taking advantage of that. I'm another fibro sufferer. I also have RA , OA and Sjogren's syndrome. I had fibro years before I was diagnosed with the RA. People don't have the sympathy for fibro that they do with RA, but it's a terrible disease. A hot bath right before bed really helps me. I also have this huge pillow called Comfort U that I lay over the bedding. It makes my muscles less sensitive. You might try melatonin on nights you can't sleep. It's over the counter.
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