hey everyone, sorry ive been gone so long. im just crazy busy. my joints havnt been great, but they have been tolereable, probably just a tad better than the last time i posted. HOWEVER today is a different story, i honestly cant remember when they were this bad. they have felt like i just woke up all day the pain from the morning never wore off. ive been walking funny all day...ussually thats just when i get up from sitting or being in the same position all day. its been horrible, stiff and incredibly painfull. i feel alone with it I know I am not the only 21 year old with this crap, but sure feels like it right now. its so hard to hike around campus, i take the elevator when i can but that doesnt mean tere isnt a huge hill to hike up through campus and stuff. my friends dont get it, its nice that actually one of them recognized it though she was like are your joints hurting you? your sort of hobbling....and i was like um yea. they hurt a LOT more than normal...but than that same friend was like giving me a hard time about not wanting to get up to get something. i dunno just in pain, tired, in bed now but in pain laying down too. i have a big study weekend ahead of me and then 2 more week before i can relax, then i go home and start work for the summer! never went back to that new rheumatologist, i need ot, but i cant get an appt before summer anyway, so ill jsut go at home...
hope you all are feeling ok. send some hugs my way. you need to see someone... are you taking MTX and enbrel??Much hugs!
I'm real sorry LM. I can't imagine being a college student and having this stuff. It's bad enough to have RA but to be away from home and to have to do all that's required while trying to fit in with your friends has to be such a challenage. My Daddy always says "What doesn't kill us makes us stronger" I've found that to be true. Don't give up. You can do it.
I'd definately see about a MTX increase. How much are you on now? Even just one more pill a week could make a noticable difference. Obviously you have a prescription....so I'd call the doctor that prescribed it and tell him what a difficult time you are having and ask if it's ok if you try an increase. I wouldn't advise doing it without asking because when you run out you probable won't be able to get it filled right away and you'll end up having to skip a couple weeks. That could mean even more of a set back.
Keep your chin up Sweetie....Tomorrows a new day. Just because today was horrible doesn't mean tomorrow has to be. Maybe try to start a new routine where you do some easy stretching exercises.....maybe even a little light Yogo. Obviously with all the walking around campus you do you're getting plenty of that kind of exercise; but maybe some early morning stretching and strength building exercises could help make those times easier for you. I'm finding exercise more and more helpful every day. I know it's hard to hear when you are in pain.....but it couldn't hurt to try. (No pun intended;)
Keep in touch with us LM; your friendships here could help raise your spirits.....and that plays a big role in the way we feel even if it's just mental.
Wishing you better days.
Awww little mermaid - it's good to hear from you but I'm so sorry you are not feeling well just in time for exams. As if you don't have enough going on.Hi littleM,
I'm sorry to hear you are in such pain. Hopefully you can get some much needed rest when you go home. I can't imagine how difficult it is getting around campus. I had a bit of a bad day on Thursday and had to drag myself all over the place for meetings. Sometimes I just thought, Gosh, that entrance door is really far. Good luck and I hope you feel better soon. Hiking_gal
:( thanks everyone the day was ok....like hurting a ton but i wasnt focused on it, now im exausted and hurting so much and nothing to keep my mind of it/no energy. so not a happy camper