Here's my opinion........... | Arthritis Information

I'm going to post this one more time. I'm happy when anyone has success with their RA meds, no matter what they may be. I think people here are smart enough to make their own decisions on what meds to use based on facts, research and consulting with their RD's.

Here's my issue with some posters. I use Rituxan. It has been a wonderful med for me. I've been able to drop both MTX, prednisone and I'm now in remission.

When I got such great results from Rituxan, I didn't come here and tell people that the only way they would get better would be by depleting CD20+ B-cells........I didn't say the rest of the meds were toxic and wouldn't work. I didn't say that there was a conspiracy by doctors and big pharm to keep people from knowing about or using Rituxan.

I didn't call other people's doctors morons, tell people to f-off or tell them they couldn't post on threads concerning Rituxan. I didn't accuse people of lying about who they were, or how well they were doing or say that their meds caused brain damage......

I don't recommend that anyone use any med without speaking to their doctors and doing research concerning the med. I certainly don't expect them to use my posts or anyone else's anecdotal experiences as a basis to use a med.

RA is different in everyone. It's not a one size fits all disease. There is a huge difference in believing something and actually knowing something. In my opinion, posters need to keep that in mind when reading about the various meds used to treat, not cure, because there is no cure, RA.....................

Lynn492009-05-05 13:56:58Couldn't agree more. Lynn, you are so right about this disease not being a one size fits all. We may have some similar problems and be on some of the same medications, but that does not mean we all have the same outcome. We are as individual as snowflakes and that is exactly how this disease effects us.

here, herecheers!!! I think most of the people on this board agree, Lynn. In fact, I'd raise my corona and lime to that.... if I weren't on mtx.
Damn RA is ruining my Cinco! Agreed! I'll 10th thatMe too.

It sounds like people have misunderstood you somehow, but that's no excuse for meanness.

My fav reply is Waddie's likening our individualnesses to snowflakes.

you said itLynn let me take this time to say that you give alot to this forum. You share so many articles with us. You treat all of us with respect and never try to sway us in one direction or another. Thank you.Thanks so much to all of you who posted here or who site mailed me It always seemed a bit strange to me that people could become so defensive about their meds. I've always had a bit of a love / hate relationship with everything I've taken. When a med stops working I'm ready to leave it behind and move on...no hard feelings but we're not exactly buddies either. Dealing with this disease always means making some compromises...I just try to make the best, most informed, decisions I can balancing the benefits vs the risks. I too wish everyone well with whatever choices they make and offer my encouragement when the inevitable disappointments come. Hang in there and never give up!

Alan

I've always believed that to disagree does not mean it's an attack – unless you are so insecure in your own opinions that you cannot bear anyone thinking differently than you do.....

I haven't been on this site long, but it only took a week or two to notice that some people are screwed in the head, and I simply skip their posts. Perhaps my cynicism protects me (my attitude is that about 80% of the humans on earth are a waste of space and air), but I've never understood how the lunatics can keep engaging people in verbal sparring. I would ignore them if they attacked me. Lynn49, there's absolutely no reason to react to the fruitcakes, and everyone knows who they are. As far as I'm concerned you don't have to justify any of your logical, well-reasoned, and unaggressive posts to me or anyone else. I too appreciate the information you make available to all.I agree with what Alan said about different meds. I've been on so many things since I was dx'ed. Great medications....that worked great for the time being. Nothing has lasted too long term. Over time I've had to change dosage, change meds.....add meds and tweak the combinations. I think that's just the way things go with this disease. I can give my experience.....but know all too well that not everything is going to work the same for everyone; and even if it works well today that doesn't mean it's going to be working that well two years from now. I think after a certain amount of time the disease becomes wise to the meds and finds ways around it. You have to be aware of that and work with your doctor to change things up before it gets out of hand.

My point being.....I'll never insist that one treatment is better than another because I know that for certain people.....that might not be true.

[QUOTE=Lovie]I agree with what Alan said about different meds. I've been on so many things since I was dx'ed. Great medications....that worked great for the time being. Nothing has lasted too long term. Over time I've had to change dosage, change meds.....add meds and tweak the combinations. I think that's just the way things go with this disease. I can give my experience.....but know all too well that not everything is going to work the same for everyone; and even if it works well today that doesn't mean it's going to be working that well two years from now. I think after a certain amount of time the disease becomes wise to the meds and finds ways around it. You have to be aware of that and work with your doctor to change things up before it gets out of hand.

My point being.....I'll never insist that one treatment is better than another because I know that for certain people.....that might not be true.

[/QUOTE]

Yeah I don't understand their anger towards drugs that didn't work for them (or that they haven't even tried). I guess it's misplaced anger at the "establishment". Lynn,

I belive I responded to one of your info posts quite a while back, thanking you for what I consider to be a great service to all on this board.

Not only do you do your homework to make sure that the plan you choose for yourself is researched and meets your own acceptable criteria, but you also have been generous enough to post voluminous amounts of info that can help others make decisions based on their own acceptable criteria. Thank you, again.

Note to Bluehour: Second sentence of your thread on Lynn's post=pretty damn funny!

Note to whoever gives a hoot: I didn't leave this forum. I just took a sabatical. Will post

soon about my experiences and adventures in my quest

for the best plan for me.

Regards, K.

[QUOTE=Katalina]Lynn,

I belive I responded to one of your info posts quite a while back, thanking you for what I consider to be a great service to all on this board.

Note to Bluehour: Second sentence of your thread on Lynn's post=pretty damn funny!

Note to whoever gives a hoot: I didn't leave this forum. I just took a sabatical. Will post

soon about my experiences and adventures in my quest

for the best plan for me.

Regards, K.

[/QUOTE]

Katalina....... you get it!! Lynn does an invaluable service to all of us with her undying quest to find the info we need.!!

I look forward to hearing about your quest!

We definately depend on Lynn for crediable information that relates to our health issues.

Welcome back Katalina. Hope you're doing well.

Thank you all very much [QUOTE=KatieG]Yeah I don't understand their anger towards drugs that didn't work for them (or that they haven't even tried). I guess it's misplaced anger at the "establishment". [/QUOTE]

I've never understood anger concerning meds that someone hasn't used. That just seems a little odd to me or maybe it is simply our chemically fried brains that see it as anger. You think? LOL Could be......Or maybe I just forgot

Here's my issue with some posters. I use Rituxan. It has been a wonderful med for me. I've been able to drop both MTX, prednisone and I'm now in remission.