I am frustrated. Today is supposed to be one of my good days after Enbrel and a big storm came in last night. Woke up with my pointer finger on my right hand swollen and in pain and my left knee. It is so strange how ra effects such localized areas. The rest of my body feels fine but my finger and knee REALLY hurt. I keep wondering what it is going to be like going back to work. I did not used to have morning stiffness but now I have it for a couple hours every morning - except I do have some better mornings after Enbrel injection. I am just wondering - will these random very specific body part flares always happen. It seems I cannot get passed a storm without something being effected. I still have not got used to going to bed feeling good and waking up to the oddest parts of my body hurting
morning stiffness is a bitch!
Hey Roxie,
I can SOOOO relate to this. Yesterday my fingers hurt so bad that typing was nearly impossible (but did it anyway...so I could post..(lol)) Today is MUCH better and I cannot say why. My worst aches and pains seem to zero in on one or two areas and create agony there...but the rest of me is just fine. Wish I knew what triggers the awful pain and what makes it disappear...with no intervention at all. Time? that does seem to be the cure--occasionally anyway.
Roxy It will get better once you have been on enbrel for awhile, weather is still going to affect you, it still affects me, but I don't mind, things have been so good I got to take some bad with the good. I do have one thing that does help with bum areas, the rd gave me pain ayches I can cut them to the size I need nd place it on the area that is hurting. 12 hours on 12 hrs off, when the soft tissue around the base of my thumbs is flaring, I put the patches on in the evening and when I get up in the morning my hands are feeling so much better. Maybe you can some, they are libroderm. meme
Molly, You are so right. It is late afternoon now and my finger and knee are way better. Too bad they decided to keep me up all night
Meme, You are the best. I will look into libroderm and I am still confident that Enbrel will improve my condition. I am just constantly confounded by how the symptoms of my ra are constantly changing and hard to predict.
How come I never heard of this wierd disease before I got it
I think the winter weather has a MAJOR influence on how we feel. I hate the winter months because I am ALWAYS much stiffer, sorer,
Susan
SORRY YOU ARE STILL HAVING PROBLEMS ROXY. I THOUGHT YOU WERE BACK AT WORK. DO YOU HAVE FEVER WHEN YOU ARE IN PAIN AND DO YOU HAVE ANY LYMPH GLAND SWELLING? WHAT MG OF PREDNISONE AND MTX ARE YOU ON NOW??Hi Karen, I am on 5 mg. pred., been a lot of work to get down from 15 and 5 mg. mtx which makes me sick for two days. Also elevated liver enzymes so rd may give up on mtx for me. I AM on 50 mg Enbrel and that REALLY helps. I am just very effected by the weather. Storm came in tonight, it is the middle of the night, and it is my hips and knees. I do get lymph gland swelling when I am flaring but not now. Rd extended my disability to April. I want to go back to work really bad. I miss it. Enbrel is working great but cannot depend on it all week. I get 2 - 4 good days out of it but only been back on it almost 4 weeks. I got open sores that they still suspect might have been MRSA so I was taken off all meds for two months. Went into full out flare, especially with a lot of stress around the holidays. I am on an upswing now though. Worked in the yard two hours today - FELT GREAT. Brett and I were having problems and we are back together. I cannot tell you how happy that makes me
Anyway, trying to stay away from sick people and give my Enbrel time to build up in my system. Love my electric blanket. My regular gp just came back from maternity leave and she is wonderful. I am going to be hooked up to wires at night to check my pulse rate and breathing as I have been waking up feeling like I stopped breathing and afraid to go back to sleep. I will find out what that is all about. I am starting new pain med so I will let you know about that after I try it. More mri's on Wed. My hands have been gimping out on me a lot. Nov. and Dec. were tough months, new year has been much much better and feel more optimistic. Just avoid germs and sick people like the plague. Let me know how you are doing.
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