Does Everyone here have PAIN! everyday. | Arthritis Information

 

I had this disease for over 10 years and come to realize that I can only remember about two times waking up without pain in my body. I have come to realize that I am so acustomed to dealing with the pain that it's just natural for me to not complain about this disease.

I don't think people understand the pain until they have a ache or a bump or a bruise for days on end.  I say to them magnify that by 5 every day for a week.

 

Anyone else out there been pain free for any lenghth of time? I am a lucky one that doesn't. I can go weeks of being completely pain free and then out of no where and I mean no where I will  get a fever and every joint in my body will be swollen and sore and stiff. It will last for a few days. I don't have pain everyday.  As far as I know, I don't have any erosion in any joints, but it's been a while since my last x-rays.  Still, I don't think I have any.  I'm pretty good most days.I do. I have different things going on. I always have a bit of swelling in my feet and ankles. I have fibromyalgia and Sjorgrens so it seems like there is always something going on. I actually have swollen tendons at the moment. It is pretty painful. I am taking Lyrica, Vicoden as needed and Flexeril at night. I definitely have pain everyday.  My feet are always painful..my hands are usually painful.  The rest of the joints just take turns.  BUT...I did have a nice long stretch quite a few years ago with no pain.oh yeah! I take that post back. Kelstev, you reminded me of my feet.  Like I said, I think I have gotten used to the pain and I just don't think about it. I have significant damage in my feet so they hurt everyday. Even if I wear tennis shoes they hurt. Cah,...I know what you mean...You kinda get used to the pain and just not think about it.I do but nothing that I take pain meds for. Does that count? It's just enough to make me not feel "well". Sometimes it's worse than that. Sometimes if I'm busy enough I forget but as soon as I'm quiet I am aware.

A month ago I would of answered a absolute YES... The plaq and Methotrexate have kicked in for me...thank God! I totally understand the frustration and pain those of you are living with daily. I hope you all find relief soon. Or at least a more acceptable level to tolerate..if there is such a thing.  I hope that the meds continue to keep me pain free. I am very excited about this, before I was so totally miserable. Sorry for your pain..it makes every little thing so hard and can rob your joy for living. Keep trying to find the right mix of help through meds and therapies..

I have not had a day without pain in at least 4 years..since Enbrel stopped working.Before Enbrel, I had pain every day.  On my good days, I had some minor aching in my wrists.  It wasn't bad enough for pain meds.  Since Enbrel, I can honestly say that I very seldom experience pain.  When I do, it's either because I really overdid it or it's non-RA related pain.  I'm with Wannabe - not enough for pain pills, but there most days lately. I also put it out of mind while at work, but then realize once I'm home that it does hurt and I'm tired.  Feet are worst for me.  It doesn't seem to matter what type of shoes I wear, they hurt with flats too, so figure I may as well wear my high heels once in awhile.    My pain relief during the day is to keep busy, but if I'm cleaning, I do have to take breaks where I can sit down and do something else. I take a pain reliever at night, because there is nothing to take my mind off it when I put down the book I'm reading and turn out the light.[QUOTE=LisaOnline]

A month ago I would of answered a absolute YES... The plaq and Methotrexate have kicked in for me...thank God! I totally understand the frustration and pain those of you are living with daily. I hope you all find relief soon. Or at least a more acceptable level to tolerate..if there is such a thing.  I hope that the meds continue to keep me pain free. I am very excited about this, before I was so totally miserable. Sorry for your pain..it makes every little thing so hard and can rob your joy for living. Keep trying to find the right mix of help through meds and therapies..

[/QUOTE] I have to say that I generally have pain of some sort to some degree every day.  It is the "where" and "how bad" and "how long" that seems to change on a daily basis.  I have found, however,
 that since I have lost weight and begun exercising every day, as well as started taking Mobic daily, that the pain is still there, it is definitely less intense and I am dealing with it a lot better.  The ONLY time in the past few years that I have had no pain was at the tail end of a course of prednisone 20 mg/day x 10 days.  And that was H-E-A-V-E-N.  Yup, sure do.   i have pain everyday is killing me

Max
Yep, everyday.everyday. resort to pain pill most evenings after dinner for the back.Yes, I have pain on some level daily.  Of course, depending on my activies, it can be quite intense or not too bad.  Today, for instance, I took a bike ride and my hands, wrists and elbows are killin me!  It is such a fine line between pain and getting the exercise needed.  Some days, I just can't exercise and work thru the pain.  Some days, it is just too much.  I did well on Pred (of course) and well on Enbrel until it quit working.  I am better on Arava, but not there yet.  I keep waiting for that pain free day though, I know my day is coming!

I don't think I've had a pain-free day? I have "tolerable pain" days. Stuff hurts, but not enough to take a pain pill for. I'm aiming for pain-free though! It has been a very long time since I have had a pain free day. I suffered from back pain back in 1988 and i went through a chronic pain program in a rehab hospital for 8 weeks... Thinking back I probally had RA then just wasn't diagnosed yet.. well anyways it was all about learning to manage pain with exercise, relaxation, bio feedback, but no pain meds.. now with RA I can't get used to the idea of having to have meds to get through the day.. DR. gets mad cause I don't use my pain meds but how do I deprogram what I have used all these years? After I got out of the program I was pain free for many years. It really palys tricks on you. I have had to have injections in my back.. in all my joints, how different it is now. It has been really confussing to me that everything is about pain meds now. I know we need them to get through our days but... anyone know what I am talking about? Anyone go through a pain management program? I know what happens to me when I am in pain I turn inwards and get real quiet and stay to myself. My family knows when I am bad. Thats when they chip in to help out. Well i am headed to bed for some needed rest have a good night everyone. LauraMost days I don't.  And when I do, it's usually due to non-RA issues (old shoulder injury and hip OA).  But there was a time when I could barely put my feet on the ground without horrible pain, especially in the morning, and it took about an hour after waking up for the swelling to go down enough in my hands to where I could actually use them well. The last pain free days I had were when I had pneumonia this winter.  I was on a hefty dose of pred and antibiotics, but no RA meds due to infection.  Like Jas, when my meds were working, I may have had pain, but it was "old" causes.

Yep, pain everyday now.

To brighter days!
Although it is sometimes difficult to separate RA pain from the pain of ageing, I try. I know that at least some of the pain in my feets/ankles and hands/wrists is related to RA damage, but at least as much is the result of living life in this body.

The pain reminds me that I am still alive and that I still have a lot of living to do.

My only constant is pain.  The pain level changes from day to day, depending on which disease is battling for top dog.  Is it RA, PsA, or OA pain?  Different parts of my body are affected with one of the big 3.  Lindy

No pain -- hardly ever. Two years ago I couldn't move my arms/shoulders and it hurt to turn over in bed. Now I am almost entirely pain free -- some minor residual pain in my right hand and my left foot is acting up when I am doing very active exercise (dancing or zumba). I just saw an orthopedist for that and I got 'casted' for custom orthotics -- to see if that helps.  I take no pain meds anymore. It's a gift. I know now to appreciate very day where I can bounce out of bed and keep moving.

 

Bonnie

No RA pain or stiffness...Just pain from the damage caused by having refractory RA for so long.  I'm very thankful that Rituxan has worked so well for me            allybird.daily.  it's not always bad, and usually if i spend a day on my a_ _, the next day i could walk 5 miles (i don't, of course- talk about regretting day 3!).  i take ultram, naproxen and glucosamine/chondroitin, which is usually effective, but some days i wish it were more.  all i can say is take it slow, rest often, but don't stay still forever.  i always seem to hurt more when getting up after a lengthy time immobile.  the pain is forever, so i suck it up and remember i only have RA.  life could always be worse.  I don't think a day goes by that there isn't any pain, it's just how much will it be today when I get up. I've read that Krill Oil is something that helps relieve the pain to the degree you can quit taking pred. Anyone out there taking Krill Oil that will let me know if it's working for you? Thanks

Yep, all day, everyday.  Climbing hurts more than walking, walking more than standing, standing more than sitting, laying can sometimes hurt more than any of the above - depends on the day.   Somedays get screwed up early in the day if I just move my leg the wrong way when I put on my pants! 

No pain free days on the horizon, but I keep hoping there will be one out there some day.  I'm gonna keep searching and someday I'll catch it!

 

 

I have pain everyday. It's been a long time since I had a pain free day. I take methotrexate, prednisone and folic acid; and it is working...but it just doesn't take all the pain away. Before I was dx-ed I had severe pain in my knees, hands, wrists, shoulders and feet. Now it is primarily my knees and feet and wrist. Pre dx I would say the pain level was a 9...now it's down to a 5...hoping there's a 3 or lower in my future somewhere, since I've only been on the meds for a month and a half.

I also get the swelling in my feet and ankles. I suspect the wrist pain might be carpal tunnel because the pain is stabbing instead of aching like the rest of my body. Sitting for long periods of time makes me stiff. Excersize makes me hurt like he**! Just a short trip around the block and I suffer for it. I keep doing it because I know I am supposed to; and I know I need to rebuild my stamina after being in bed practically 24/7 for a year.

My doc is reluctant to give me pain meds, but I wish he would just so I can get on a decent sleep schedule. I just lay there for hours waiting to be so exhausted I just can't be awake anymore. I am on pain medication spaced evenly during the day, and I still hurt constantly. My feet and my hands are the main problem, as they ache when I am doing nothing and really hurt when anything touches them. It's hard to function without using your hands, and really tough to walk without pressure on your feet! I haven't got the knack of levitating yet. MTX is not doing it for me and I am going back to the doc at the end of this month, we will discuss adding another med to the MTX. I don't know if he will suggest going to 10 pills first, I'm on 7 now.

I agree with those who say you get used to being in constant pain. Instead of standing and talking to people at my business, I casually herd them over to the counter where I can sit down. My darling husband thinks much of this is "old age" (I am 53 and was in great shape pre-RA, exercised and took fine care of myself) and I can't bring myself go on and on about much it hurts, because I hate complaining. I'll say "my feet are bothering me today," and leave it at that. To go from NO pain in hands and feet to this in a matter of eight months..I think of old age as coming on gradually. I've always considered myself to be tough when it comes to pain, I never made a sound when my kids were born, for example. But some days when I exercise (alone in my room), the tears flow. My feet and ankles hurt everyday.  If I don't try to stand or walk I am not in any pain at all.  I am going on enbrel next week and I hope so much that it will help my feet and ankles.I feel for you, Ally!  We've all had those days and sometimes it helps just to vent a little.  Hang in there!  It will get better!I had to think before I answered this question because pain is tolerated differently by each of us.  I am in what I call "discomfort" every day, i.e. swollen, stiff feet and hands,  and aches in various joints.  I am often in pain and can get control of it by taking a valium and lying down for an hour.  When it's painful enough to make me sick I will take a vicodin.  If I have to walk anywhere such as grocery shopping, I will take a couple of Tylenols before I leave the house to anticipate the pain. A few years ago when I came off MTX, I couldn't get in and out of bed or roll over without really bad pain.  I can't take the biologics unfornately, but the Plaquenil is working somewhat.

Ann   

ann1026 can you tell me why you got off MTX?And is plaquenil all you take now? and does that work for you ?

sorry for so many ? just wondering about what I should do.

THANKS RENEE,IV HAD MY PREDNISALONE INCREASED AND IT HAS HELPED,THE PAIN IS STILL THERE BUT ITS EASIER THAN BEFORE.I DO HATE TO HEAR THAT EVERYONE IS IN PAIN ALL THE TIME AS ONE OF U I FEEL FOR U ALL.ALLENEZE U ARE RIGHT IT COULD BE WORSE.HILLHONEY I HOPE UR PAIN FREE DAY OR DAYS COMES SOON.NJ MARIE IMM SORRY TO HEAR UR IN SO MUCH PAIN,I THINK U WILL HAVE TO GET TOUGH WITH UR DOC AND DEMAND PAIN KILLERS ITS OK FOR HIM TO SAY HE WANTS TO WAIT BUT ITS AWFUL FOR U.BLUEHOUR I HOPE U CAN GET UR MEDS SORTED,AND I AGREE WOULDNT IT BE GREAT IF WE ALL COULD LEVITATE LOL.DONT PUT ARTHRITIS DOWN TO OLD AGE EVEN YOUNG PEOPLE GET IT I WAS 21 WEN MINE STARTED,BUMMER,AND NONE OF US LIKE TO COMPLAIN DO WE I THINK WE ARE A TOUGH MOB,AND SUFFER MORE PAIN THAN ANYONE NOWS.ALEVA GOOD LUCK WITH THE ENBREL.ANN1026 IS THAT ALL U ARE ON.JJ54 WOT ARE U TAKING AT THE MOMENT.TRYING TO GET AS MUCH IN HERE AS POSSIBLE STILL TYPING WITH LEFT HAND SO FORGIVE ANY MISTAKES PLEASE.I FEEL FOR U ALL IF WE HAVE ANYTHING IN COMMON ITS PAIN,WISH IT WHERE SOMETHING NICER TAKE CARE ALLY.XXGOOSBEY I HAVENT HEARD IF KRILL WOT WXACTLY IS IT AND IF IT CAN GET ME OFF THE PRED I WOULD BE VERY HAPPY.HAVE U FOUND OUT ANY MORE ABOUT IT WOULD LOVE TO NO.
Copyright ArthritisInsight.com