Hi! I'm new to the boards.
Here's a bit of background:
-double mastectomies 12/2005
-double simultaneous hip replacements 08/2006
-right shoulder replacement 07/2008
-hypermobile joint disease (~Ehler's Danlos family)
-eczema and allergies gallore
...oh yeah, and I just turned 50! <insert BIG grin here>
I
was always dx with oa a few years ago and now i have one set of docs telling me i have JUST oa and another set telling me i HAVE ra. (They tell me I'm rare... lol) So we are off to see yet another specialist at Barnes in St Louis. The latest rd thinks i might have something in the Complement systems disorder/disease that involoves an immune disorder / blood disorder???
I no longer can take/tolerate steriods -
so NO pred. I'm really just not sure what to think or feel at this
point. During the last appt with specialists
we discovered and confirmed arthritis in just
about all joints and also my cervical spine area (moderate with
narrowing).
I / we are hoping to find something that might "push" me into remission or at least slow the progression.
Any feedback, insights, things to ask the new docs, etc. would be appreciated.
Thanks! Looking forward to moving beyond this and finding life outside my illnesses!
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