To Roxy: GET A GRIP!! You might be 50 years old, but you seem to have the mentality of a 15 year old. Of course being diagnosed with RA is scary and fear of the unknown and not having the life you planned for yourself; but you are just to much! You worry about everything little thing! You are such a fake! You say “I am so in love with my Enbrel that I tend to forget the risks.” That is just the opposite. After reading all kinds of posts from you, you are very aware of all the risks of taking Enbrel. You are such a damn liar! You are so annoying with the “What if’s” and you really annoy me! Another thing, you have no sense of timekeeping with your narcotics! You jump from none in 3 days to a few in a week to a few in 10 days. You just give Enbrel an awful name! I mean you see “painkillers” as a for everything. If you over do because you are trying to be active like you use to. That is just wrong! It makes one question how you could be so in love with Enbrel and then just to slap the Enbrel in the face by that taking heavy narcotics? You are just a hypocrite! Or a liar? You just make me sick reading your “advice” or your “rave” about Enbrel and then to see a few posts later you are taking “painkillers” just because you want a better quality of life. Look you have lived well pass 50 years, you need to realize that you are not getting younger and that your quality of life is going to drastically decrease the older you get. You have had 50 years of FREEDOM! What the hell more do you want? I nice big shiny car with a big red bow on top?
Frankly you just make me sick and I am tired of hearing all your “problems”, how you love something you have not been on for a long enough time to know of it will work for you and YOUR whinnying, YES, I say whinnying! Just be happy you are still alive and lived after your mother gave birth to you! Could have been worse you could have had the whole 50 years with RA. So stop your whinnying and bitching and get a grip on your shortening life!
I tend to believe what my doctor tells me- A) that I have RA and the Enbrel and sulphasalazine are keeping the RA from progressing- B) Once my thyroid is leveled out I may or may not find some relief from the daily chronic pain and C) I am participating in a PT designed specifically for my situation and D) The doctors put me on methadone for the chronic pain....
So does that make my RA less that yours??? Walk a day in my shoes before you judge too harshly. Enbrel and all the biologics are wonderful drugs- but not everyone gets total relief-
I think the two newbies are people from rafriends. They just came over to harrass me. MOOOOOOOO - Your posts make no sense and you have no idea what my life is like or how severe my ra is. The funny thing is - I was trying to support you. I am proud of how I live my life as a productive human being, who loves life, is known for being extremely honest, active, and I am well loved. I think it might be a problem if YOU were given the "responsibility" of pain meds. [QUOTE=cows say moo]Look you have lived well pass 50 years, you need to realize that you are not getting younger and that your quality of life is going to drastically decrease the older you get. You have had 50 years of FREEDOM! What the hell more do you want? I nice big shiny car with a big red bow on top?
I have lived the first HALF of my life and I plan on living the second HALF as active as possible and I predict the quality of my life only improves with age. I also suspect YOUR quality of life needs improvement or you would not have such a vituperative nature.
Frankly you just make me sick and I am tired of hearing all your “problems”, how you love something you have not been on for a long enough time to know of it will work for you and YOUR whinnying, YES, I say whinnying! Just be happy you are still alive and lived after your mother gave birth to you! Could have been worse you could have had the whole 50 years with RA. So stop your whinnying and bitching and get a grip on your shortening life!
More helpful advice for you - whining not whinnying
If you are saying I am a newbie yes I am new here, I will rethink my membership if you are talking about me. I do not even know what rafriends is. So think before you type.
I am so happy that you know how to spell whining right. Aren't you just the rocket scientist! NOT! Now maybe since you know how to spell that word you can learn how to stop whinnying. HAHAHA!! to your statement "extremely honest". You might need to go back and re-read your recent posts. I would not call your posts to me as "advice". My dog can bark me out better "advice" then you have given to me. Your statement "responsibility" of pain meds. You might need to take a good long hard look at yourself. I would be way more responsible with pain meds than you were/are now. I know better then to not drink with all RA meds. No wonder your liver enzymes were elevated and that drinking you were doing. My quality of life does not need improvement. I am happy with the way it is. I have learned to cope and come to terms with my RA. I know mine is never going away even if I drugged myself up with narcotics just to get away from the pain it only takes it away until the drug wears off then it is back again. Your statement "I am well loved." There are 1333 Forum Members on this board and this topic has been viewed 124 times since I posted this. Look at who all posted to back you up. Those are the only members who give a flying f**k-dazzle about you on here. If you intended that you were welled loved by family members that is good to hear! I hope they can put up with hearing your every ache, pain and whinnying. That is what family members are for. Have a good day
You leave Roxy alone. I have not been here for awhile but how horrrible of you to post as you do. You may not agree or have sympathy but take it down a notch or two. You are extremely rude! Roxy Rocks... I LOVE MY ENBREL TOO! RozBuds Hey Joon ummmmmmmmm I mean Jane. GET A LIFE and find something else to do besides message boards. PS If you want to call me a liar or accuse me of whinnying
Gina, I came over here because I was sick of this bs. I won't have someone of this character chase me away from another support site. I hope you don't either.
Thanks Rozbuds, Kelstev, Gina Pat and USC Who the heck is Jane? And where is Dick?? Getting all duct taped up??
[QUOTE=Justme]Her hubby is an alcoholic and she is very unhappy with him and her life.[/QUOTE] OMG!! You cannot divulge that kind of info ....... Hey Justme...I think you have it all wrong...I think it's actually someone else from RAFriends...but this particular person is NOT smart.
No wonder she has no friends
No wonder she has no friends
Yet again why ya'll talking about Roxy like this?? I thought you were her friend, kelstev! *shakes head* Why not take advantage of all this good info ya'll are giving me. Let's me get back at her since she thinks, I am cows says mooooo. USC, I think it's a good idea for cows or anyone else to take nasty comments and deliver them directly to the person intended. We are wasting alot of time on petty comments that don't help anyone so lets all stop and get back to whats important RA and other autoimmune conditions. Thanks Pat52
This is rafriends members who have come over here to be malicious. The funny thing is, at rafriends, they did not have the guts to leave the thread that we argued in in the first place so people could have all the facts before they formed opinions. I hope this thread IS NOT moderated so members can see what mean spirited, ignorant people I had to deal with at ra friends. I went there for support when I was going through hard times. This is the kind of support I got at ra friends. I hope they do not also ruin AI. Is that all you have to say? Oh so now I am dumb? Ok... I am not the one telling my life story to complete strangers. so now I am uncompassionate? I was the one trying to protect you from having people think badly of you. We remember the sweet nice roxy, like you are over here. Not what you evolved to because we enabled you. WHATEVER! Been Deleted Yep some but not as much as she has. and you can bite me too Kelly! Takes a lot to upset. And you asking a question is not going to upset me. From the way you post, I'd swear you were upset. So if you're not upset, then it seems to me you have some problems to work through. Good Luck
I told in my bio on here and RAF - Hubby says I am vengeful, spiteful, and mean. I am only like that to people who have done me wrong. And I for warned everyone. I was just stating that you cannot be '"skinny", do the things you know will hurt you in the end, if you wanted a get better. If you are flaring non-stop it hurts you more when you do not listen to your body. I was also trying to state that losing weight should be the least of concerns when your RA is not under control. You have time to make up for that when you are well. But everyone views things differently when they think someone is out to get them. I was angry for all the awful, cruel statements you made about me roxy, but you're not worth the effort to bother with anymore. Good bye. Let's see....This forum is for people who have Auto-Immune diseases and need support... not to fight, call people names and and create havoc on what is know as a "support board". My feelings on this matter is...."I think it is time to grow up" No nobody is perfect and never will be. If you do not like a particular person because of what they have posted, then my suggestion would be 'not to read them'.... move on to post that meets your standards. If you can not do that...then move on to a support group that meets your standards. Enough FLAMING. Please stop it. Toni I have learned alot and gained knowledge of RA. I also am scared of this disease as I think we all are but believe me, you have been my support, even if you all don't know it. Roxy, thank God that your MRI showed good news for you. I know a little about Roxy, and she did not deserve this posting. Mailady PLEASE STOP RESPONDING ON THIS THREAD SO IT CAN MOVE ON TO THE NEXT PAGE!! DROP IT!! MANY, MANY HAVE CALLED FOR A STOP TO THIS. THERE IS ABSOLUTELY NO REASON TO RESPOND ANYMORE!! If this is the type of dialogue that goes on at this forum, I think I'll pass. It doesn't help anyone needing information and sharing information about this disease to put someone down. It's too bad we can't be a little kinder to each other.
Granny Granny, it does not go on there all the time, just once. Just like here. I could tell you my own experience one of the posters here (not Jooniper, she's been good to me), but I will spare everyone because I've been on forums for a long time and take the good with the bad. What I would post would just inflame the thread again. So I'll move on. I like RAFriends and have been a member since it was created. We have a lot of fun, tell jokes, have custom made avatars that make us laugh, we play games like American Idol with ourselves as guests, pretend to be on talk shows and give eachother support. The fun is endless and I value the frienships with people I've made there. If anyone thinks this is bad you should step outside the box to the real world and experience other forums. This is nothing. So come to RAFriends.com and see for yourself
GET A GRIP!!!!!
Hang in there Rox! I am wondering who let her out of her
cage! It does sound like a particular person on RA
friends. I have noticed the anger in previous messages. Her
hubby is an alcoholic and she is very unhappy with him and her
life. She seems to be a very smart person however so maybe it is
just PMS. Oh well......
luv, justme
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.......................Roxy!!
Oh my gosh...I haven't posted here in a while, but I
just had to respond. When I first was diagnosed
with ra I found this site doing research. It was such
a blessing to me and the support I received, and still
receive, is invaluable.
But I must say I'm in shock after reading the posts
from cows say moo. This is an open, public, support
board for those dealing with all the issues and
questions and pain about ra.
So I just have to ask,, why would you post something
so full of anger, bitterness and name calling?? Not
only is it childish, but it is an abusive use of the
board and certainly not encouraging or supportive.
Everyone is entitled to their own opinions, but we all
need to be adult enough to know when things
should be handled privately. I may be naieve (sp)
because I don't post on many boards, but posts like
that just don't seem right.
I am SO thankful that I am not new here, and didn't
just read your post as one of my first ones. I would
not have stayed here.
Roxy is a good friend who is learning to live with the
affects of ra just as we all are and so many of her
questions and concerns have been very helpful to
me...as with so many other wonderful people here.
And gosh Joonie, I was really bummed to see your
post too. It doesn' seem that roxy's blocking her pm
should give you the right to say the things you did in
a public forum.
And for the record, I want to loose weight, I want to be
active again and I realize my body is different now,
but I still think those are good goals. And I am also
on biologics, but at time I take pain medication or
muscle relaxers too. ...
Anyway, thanks for letting me share. I pray you will
all have a blessed evening and a strong, pain free
day tomorrow.
I love you all.
Joonie, isn't this something you posted on another board? Wake up girl!!
You are expected to read and understand the Forum Guidelines and follow those guidelines.
You are expected to make this board a nice, user friendly, safe place for all members.
You are expected to take problems you have with someone in to Private Message (PM).
You are expected to support and help members not upset or stress members.
You are expected to know how to take what you get after asking for advice.
You are expected to grin N bare it in open forum... and can let loose in PMs.
You are expected to take everything in stride.
You are expected to not pass judgment on members.
You are expected to not post anything you think you cannot take what members might reply with.
You are expected to apologize for misunderstandings, even if you feel you were right.
You are expected to show self-control.
You are expected to let people's comments or statements to just roll off your back.
You are expected to act the same way as you would if that person was right in front of you.
And most of all... You are expected to do what you would like others to do onto you.
There
are many other things members are expected to do to keep the peace and
to help the board to run smoothly, but that is where the Golden Rule
comes into play "Do unto others as you would like others to do onto you."
Oh and a lil advice: "If you don't have anything nice to say, don't say anything at all"
Roxy,
I sat here and read all of your posts over the Holidays about your problems. And you seemed to be having quite a few as I recall. You were wound up about your daughters visit. You were having a flare. Life was unfair to you and on and on. You sought advice from members. We tried to give you advice. It seemed to me that you felt the need to post every little thing that was going on in your life, good or bad. You even posted about taking a shower with your husband and kissing stomachs. Did we want to hear about that? It seemed to turn to all about you. You, you, you.......Your flare got so bad and you were in so much pain and couldnt walk or do anything but type. I wrote that you needed to go to the hospital if you were having pain that bad. Pain you could not control at home. You blew me off and wrote that I could just make your copay for you which was a very rude response. So what did I do, like an ass, I appoligized for telling you that in the first place.
I have met some very nice people here at RAF.I have had a lot of fun this past month. But personally, I dont wish to read about you or your problems anymore. I dont like your attitude. I dont like your disrepect for other members. I will not enable you. If you need help, go get some. I am not going to watch the "Roxy" show anymore. Seen it, don't care. Sorry.
Roxy, you were wrong. You were wrong to publicly attack those who were only trying to support you, and you were wrong for posting a personal and private message for all to see without the senders permission. And, sadly, you are wrong for not apologizing for any of this, but somehow feeling compelled to come back and continue with this negative behavior. This is how you "make peace"?
This place has been a VERY positive and supportive sanctuary lately. It's a shame you felt compelled to return, continue to publicly attack those who have to their best ability tried to support you, then "double-dog" dare the moderators to leave it. It's childish at best.
have stayed up nights with you...worried about Brett making it home safely...or in sharing your concerns and tribulations over Kelsey's visits. I know you have ups and downs, and have done my best to support you the best that I can. However, the fact that you didn't identify the sender doesn't belittle the betrayal of posting a personal and private message publicly, without the senders permission. I believe this still violates a trust that we all need to be responsible enough to denounce and that RAF was acting responsibly by removing it.
I am broken hearted that you feel this should be some type of free-for-all, with no consequence for irresponsible behavior. I have always felt, dispite our differing opinions, that we both believed this place was to be a sanctuary to all, and not just a select few. But your actions lately seem to contradict this.
did NOT criticize you for having your husband stay home. I said that I have not asked mine to stay home in all the years I've had RA...even at my worst taking care of a 5 year old and having to drive him back and forth to school. If I wanted to criticize you for having him stay home, I would have. I feel that in the time I have been here and on AI, you've always treated some people unfairly. The way I see it is you only thank the people for advice when they tell you what YOU want to hear. If they don't tell you what YOU want to hear you totally blow them off.
You read into things and interpret them to suit your needs...whatever! It was a very nice peaceful few days here. WAS.These are all quote's from the "other board".......
read on
Nancy
Doctor wrote note for hubby to stay home and take care of me because I was flaring so bad. Major inflammation, only could use one arm, you know. Anyway, hubby got back yesterday afternoon and I was doing better. I slept all night, 10 hours, and woke up feeling the best I have for a couple weeks. Told my hubby this. He got all mad. He said, how could you be so sick day before yesterday, have me take two days off of work, lose all that overtime, get my boss pissed off at me, and you don't even need me. I have been so upset. He doesn't get the unpredictability of ra. I would not have asked him to stay home if I would have known that I would be feeling this much better. He is going back this afternoon but we are barely speaking to each other. HE DOESN'T GET IT. Can you guys help me out. Help me explain what it is like, the unpredictability, that a flare can last two hours, two months or God forbid, months and months. Please help me guys. This is the first time I realized that he does not understand. He thinks I am using ra as an excuse. I feel pretty devastated. I am a very honest person, don't exaggerate or lie, but now I realize that he must think I do. Any of your stories about how unpredictable your ra is would really help me out. Right now, I can hardly even look at him and look forward to him leaving. PS He also thinks I am addicted to computer because I spend so much time online with you guys and says "that is all I want to do".I am sick of being screwed up on the painkillers but I am not willing to go into a full out flare without meds. I feel like a junkie. I am always loaded but it is the only way I know how to cope right now. Does it worry me taking all these painkillers for two weeks - HELL YES ! But it has been a long time since I have had a full blown flare and I would prefer never to experience that again. Especially since the clinic is 2 miles away, considered a hospital and even with insurance will cost me about 00. So I am just trying to keep the RA at bay. I sure miss having a life. Good news is they are doing some free HBO thing so at least I have something to watch. BIG HUGS ALL. ps i CAN'T GO TO THE [MORE] SMILIES OR I LOSE CONNECTION SO MY EXPRESSION IS LIMITED RA makes me feel bi-polar. One day life is not worth living - today was just bliss. We went on a wonderful walk. It never got over 30 degrees but I really bundled up. It is amazing how it doesn't seem to bother my dogs - neither one have "fur" coats but they have so much fun - they love it. Anyhow, spent half the day walking easy five miles - yesterday I could not walk to the car. I think I have it figured out. I was running a fever for several days - really got me down - and last night was the first night I have slept through the night in at least three weeks - Brett even noticed - so that is what it takes - GET THAT SLEEP NO MATTER WHAT. I took a Vicoden and a Soma and I slept like a baby. Woke up a different person. I AM MAKING DINNER FOR A CHANGE TONIGHT - tacos. YUM. Now I want to share my pics. I LOVE YOU GUYS - IT IS LIKE COMING HOME TO FAMILY.
THAT IS IT!!!! I have sent a note asking the moderator to intervene this has to stop!!! Everyone and I mean everyone BACK OFF!!! We can not be fighting with each other like this!!! Isn't there enough grief in our lives that we don't need to be acting like this So stop the posting, please everyone just turn the the other cheek and let's move on. meme
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