need to vent | Arthritis Information

Share
 

Had a bad flare up last week,   fatigue, and my jaws were/are killin me, across my shoulder blades,  My big toes even hurt. Was down to 11 mg and now back up to 20.   Will this EVER END????  I am so tired of dealing with this stuff and I'm sick and tired of being sick and tired.  I know that there isn't anything anyone of you can do.  I just needed to vent.  Wish there was something else bsides prednisone,   they call it a miracle drug, but when you've been on it as long as we have, I don't know if the side effects are worth it. tring to hang in there with the rest of ya.

bevI hear you Bev and this is the place to vent.  You think it is never going to end but it will.  Try to hang on one day at a time.  Have you tried the new site that Mrs UK has posted.  Maybe there is something new in there.  The other thing there has been some talk about is LDN or low dose naltrexone.  It is looking very promising for AI diseases.  Maybe check it out and discuss it with your Dr. 
I am wishing you luck and do hope it won't be long before this torture will end for you.
 
Take good care.
 
Pat

Go Bev, You Get Mad Girl!!!!!!! Good for YOU!!!  This PMR has been with you for too long, who said it only last for 1-2 years. Well you/ us have news for them! I'm at that place with you except I'm doing the poor me and spending more and more time at home or in bed.

But...just to hear you say what you have in your post ( misery loves company ) we need to keep up the " tell it as it is " and try and get some comfort in that we are not alone in bad times and we will share the Good, the Bad and the Ugly ect...

Hi Teed Off

I do know somebody who has pmr and is currently trying LDN.   Will let you know the outcome.

We all live in hopes.

Trouble with LDN is that there is no money in it for the drug companies and at present LDN is being driven by patient power.

I have GCA.


Bev,
I am so sorry you are feeling sooo bad..
 
I did get part of the bathroom cleaned up this morning... I am just going to take it one day at a time from now on...do what I can and not worry about the rest... I do feel a nap coming on though now..
 
I like this forum..  hanks for letting me vent.  If you wonder why my postings are in such bold and large letters,it's becuase GCA left me partially blind in my left eye, and now I have cataracts on both.  Anyway.  on to another subject.  Any of you having problems with being hot and sweating,  but the skin feels cool.  I just go outside and my hair is wet.  I am 60 and have 2 grand daughters  4 and 2,  Just want to be able to play with them for as long as I can. Sometimes I wonder how long that will be. 
thanks you all for replyingTiggerpunt

Can't find how to write this in large script  - I assume you can enlarge  i t.

Yes, I have GCA as well but luckier than you as it was diagnosed just in time  - so sight saved.  All down to a brilliant pair of GPs.

Hot and Sweating  - yes and night sweats as well.   I got prescribed premarin  - does help out a lot.  If not try evening primrose oil and/or sage extract.    Used for menopause.

The person who can find a cure for head sweats will make a fortune  - anybody out their got brains???

Cataracts, another person with GCA, where dealt with by an Consultant Opthamologist, 20 mins each eye  - laser removal.    Opthamologists know a lot about GCA.  
Tiggerpunt,
 
I don't know about my skin being cool to the touch but I am hot and sweating like a pig...of course I am in Texas and it is so hot here...I attribute most of it though to being menopausal and overweight.. and I don't think the Prednisone is helping much. Seems like I am sweatier than normal this summer.
 
Ms. UK if you want to change your format on your responses highlight what you have typed and then go up to the font size and change it.. If you want to make it darker and bolder go up to the big B after highlighting your typed information.
 
Thanks.
Been back on the 20 mg since saturday, and my jaws still hurt, probably should call the rhumey and see what she thinks I should do.  Was only to stay on the 20 for a week,  probably will be 2 weeks now.
Someone was talking about primrose. How do you take it?   I had a partial hysterectomy in 79 and the ovaries and tubes removed in 94.   I think I am past menes, but who knows. think the primrose will help with the sweats??????
bevHi Bev
Much much love and support to you.........
we have all been there and do understand....(but wish we didnt)
it is GOOD to hear someone vent!
know we are all with you!!
cathi
Copyright ArthritisInsight.com