my disease is so annoying | Arthritis Information

idk why im posting this here

instead of in the JRA section, i guess cuz it seems more ppl come here

so i think JRA is more annoying than painful

well thats what it seems like to me

anyways

so do u ppl think ur RA or JRA or whatever u have

is more annoying?

or painful?

for me mine is annoying lol

You are very welcome here Star! I find my RA pretty annoying too. I don't have really bad pain levels anymore. But enough to not feel good which is like you say- annoying. Taking medicine is annoying. Giving up things is annoying. People not understanding is annoying....

yeah lol

for me the annoying parts r

explainin to ppl that i have a disease

cuz they wonder why ive been sick for so long lol

and the other annoyin part is takin my medicine

cuz that prednisone tastes NASTY if u leave it in ur mouth

lol

Welcome Star

You are right it is not only annoying, people think what is going on? I do not want to advertise it on a loud speaker lol. I just want to tell them Just leave me alone. I am not able to walk now for six months now and I do not know if I able to walk properly or not. It feels that I do not know how to walk any more.

I eat more medicine than food. It is annoying. but do we have a choice?

omg u cant walk

aww thats sad for u

i remember when i was in the hospital for 6 dayz i could barely walk lol

it sucked being stuck in the hospital

lol

Hi Star...welcome!Star and I met on her welcome thread...but thought I'd stop here and say hello to my ice cream loving friend!! LOLHi and Welcome Star and yes it's annoying no matter if it's JRA or adult onset. IT'S ANNOYING and life changing. Lindyhi all u ppl

yup it sure seems annoying

Hello Star! It is annoying and sometimes, painful as well! The craziest thing in my life, for sure! No one really can understand unless they have it, I think. It is the hardest thing to describe!

Anyway, welcome! I enjoyed your post!
yeah sometimes its painful too lol

thats when it annoys me the most

at least it doesnt hurt every day tho

Star, every day is a new day for me, a gift! And pain or no pain, I try and look at each day with through the same eyes as a little kid does looking at a gift under a Christmas tree... excited about the possibilities! ooh sounds like fun

seems like u try and make every day as good as possible

lol

even if ur achey lol

[QUOTE=StarPerson121]omg u cant walk

aww thats sad for u

i remember when i was in the hospital for 6 dayz i could barely walk lol

it sucked being stuck in the hospital

lol

[/QUOTE]

This is annoying. I can hardly walk anymore and my mind sees me doing something but physically I can't and it hurts.

I had put off going in to the doctor for a lonnnnnnnng while because I was afraid I had cancer of some type. Was relieved to find out it wasn't cancer but it didn't take long for me to be totally and unequivocably angry. You will find you will experince the feelings of frustration, anger, feeling helpless, asking "why me", etc.

I hear you when you say "your mind sees me doing something but physically I can't and it hurts." This too will pass when you and your doctor(s) find the right combo of drugs for you. You may not feel/think you have the patience but you really don't have a choice.

* Take Care * - * Gentle Hugs *
I just hate it when I go to bed at night, and hope I wake up doing a little better so I can do the things I need to do. I actually have dreams of doing housework, and things I want to do, but not able to do because my joints are so inflammed and not bending well from the inflammation and stiffness and pain. I go to sleep with pain and wake up with pain and have pain the whole day.

I do "well" after my infusion, but it still is not enough to be considered functioning. I am just happy, that I am further along in doing better than I was a few years back, and a year ago.

I mean... how can you have inflammation in your bones just a month after getting your remicade infusion and taking pred and taking MTX? It just does not even seem like with all those meds you should even have any kind of inflammation going on, but I do and grant it... it is not as bad as it was just a year ago, in the swelling/inflammation dept.

It just really boggles my mind... especially when I read my MRI report of my wrists and it talking about all this inflammation I have going on, and I had my infusion less than a month before the MRI.

This disease is SOOO annoying that is for sure. One day you consider yourself doing well, and then a couple of days later its a toss up.