Just thought I'd complain to people who truly Understand what i'm going through...Its hard for family to really understand, but they do try.
I get teased that I dont stay up late anymore...past 9:00pm is too late for my body...the next day I'm sore, worn out and hurt all over. I dont get why this disease affects us like this. Does anyone get like this too?
I made myself stay up late ...11:00pm to pack for our vacation, fold clothes etc. Oh boy, I was sooo sore but made myself keep going, felt like every joint hurt from my neck to my toes on top of my back problems! I woke up this morning and oh man, everything stiff, sore, UGH!!!! It's so frustrating knowing I'm not "normal" anymore, I cant do just normal things, like pick up the house, fold lots of clothes and run around doing things unless i want to suffer that night and next day! I want to have a baby, but really am thnking twice now...that is SOO much stress, and i bet it would make things so much worse. (I have two sons right now as it is)
wanttobe,
I might need a change. My RA dr. told me he might want to try some different drugs (Arava, Immuran...? or Cellcept) , but i kind of pushed him away from it. They really scare me and i got really sick when i tried MTX. He instead said lets increase your plaquenil and see if it helps any. I guess I'd rather be in a little pain and just deal with it then try anymore scary drugs.
Thanks for the ear guys klynn- I understand. The stronger drugs scare me too. My doctor has been suggesting biologics forever and I always find an excuse of why it's not time. I tell him I think I can accept the pain, my x rays came back showing no damage- I don't need it... He will not force me. He says it's my body and my decision what to put into it BUT he feels I should proceed. He says PREVENTATION of damage is what is key.
wanttobe,
I might need a change. My RA dr. told me he might want to try some different drugs (Arava, Immuran...? or Cellcept) , but i kind of pushed him away from it. They really scare me and i got really sick when i tried MTX. He instead said lets increase your plaquenil and see if it helps any. I guess I'd rather be in a little pain and just deal with it then try anymore scary drugs.
Thanks for the ear guys