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Hi, does anyone have these symptoms..... I have RA, has been the worst in my feet, but about 2 mo. ago from my elbows down I became very swollen and it felt like ice water was in my veins. I seen my rhumey and he said my hands had changed a lot and he thought I possibly had Raynauds. He put me on a BP medication to possibly open up arteries. My bp dropped do low as I already have low bp. came off that med. I am on humira,pred,methotrexate. My hands are not as swollen but are stiff and sore all the time,joints are white, sting and burn in joints, sometimes hurt in wrist all the way in forearm. My hands do not look or feel like my hands. Heat makes them swell worse. They are not sensitive to cold at all. I would appreciate any info from fellow sufferers.Dix, Just popped into let you know that I have notice your request for info but unfortunately cannot help to much.
The only thing I do know is that I suffered from Raynauds 6 months before I came down with RA.
I'd be out in the cold mornings with camera in tow and it became that bad that I could hardly carry the camera let alone use it.
My fingers would become jet white and when they started to thaw, oh brother the pain.

Weekends are quite around here but I'm sure somebody will be along to help.
Well if your knuckles are white that sounds like Raynauds. I have been told I have it. Heat does not bother me cold does. I do know that feelling of ice water in your viens. I do not know what to tell you scince we are the oposite. Just that if I get to cold it takes me days to warm up. I think swelling adds to this. Sometimes I think just the inflamation alone makes me feel like I have ice water in my feet hands arms ect. How long have you been on your current meds? I think maybe it will pass or get better. Mine did but I keep socks and sweaters and gloves handy. Spend my winters in Florida ect. So that will not work for you. Wow so you can not take a hot bath. I would be so devasted if I couldn't take a hot bath. How much heat sets you off? Anyway for me say if it was my feet. I could put two pair of socks on and wrap my feet in blankets and it would take three days to get them warmed back up. Same for my arms and hands. It keeps from running the airconditioner to high. Even in Florida with the air on I can not have my bare feet on a cold tile floor. Rugs, carpet socks and shoes and I am fine.They make mittens and wrist bands you can freeze that I use and love - especially the wrist bands I buy mine from a place on line called Isabellas - they aren't cheap but I have found them of so worth the price.  Hugs and good vibes.TTT - so maybe other people will se and have some suggestins.B

I am sorry you suffer so. I sounds very painful. Does it burn when your run warm or hot water over what feels cold?
 
From what I have read on the internet about Raynaud's it does sound like you have a severe case of it. I was DXed with Raynaud's back during the winter, but mine is caused from the Fibro and comes and goes.
 
My RD suggested for me to wear gloves and thick socks to help keep mine from getting cold, but sometimes that did not even work out well. Only the heating pad worked well during the winter time.
 
joonie2009-07-05 03:08:28
Please keep us posted.
I have Raynauds and it effects me when I go from the air condition to the heat. The change in tempature really brings it on. Causes my fingers to get this cold-numbness feeling. It's annoying; but not so much that I've had to have medication for it. My doctor also suggested the blood presure medication but I told him I didn't think it was that bad. He said it didn't have to be treated unless it became so bothersome I felt I needed it. I've had it since my early years with RA.Thanks for your reply. Does Raynauds keep your hands swollen all the time I wonder? My hands bother me so much, stiff and sore and swollen that I find that I am wringing them. Hot bath does not bother me. But heat outside, humidity really does. I wish you well.Thank you for your reply. No hot water does not bother me. the heat temperature, humidity does. Not only are they clammy but stiff and sore all the time. Not just morning stiffness. Do you know if Raynauds ever ceases?  Did you have swelling in your fingers? Did you have pain almost all the time? Do you know if it ever ceases?  How are you managing with your RA?   Bless you!RA is also famous for bothering the hands. Could be you are having a combination of things. Yes Raynauds is painful. I mean when it bothers me it does not give me a minutes piece. The swelling I do not know the answer. Because I think I already was swelling when it bothered me so I would not have probably noticed. Maybe some one else could better answer that question.Thanks . I was just thinking about my hands. My husband died 2 years ago of pancreatic cancer and I do so miss wearing my wedding ring.  WShould not be such a big thing I guess but it does affect me. It seems like something changed drastically and sudenly with them. .thank you for your postDixie, this sounds miserable! I was diagnosed with Raynauds earlier this year, but since we've moved I haven't really had any issues with it. I guess it's the warmer climate? No snow in Cali. ;)  When it did rear it's ugly head though, it was horrible. Mine affected my fingers from the tip to about mid-finger and also my toes. It was a strange and painful experience. I hope you're able to find some relief soon!
I'm very sorry to hear of your husband's passing. Maybe you could wear the ring on a necklace so it can stay close to your heart? Many gentle hugs to you.
Thank You .........No problems
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