ACR Critera. They won't give it up. I have some sort of inflamatory arthritis. I get biologics because I am getting joint damage and general ill health and uncontrolled pain. Not even Mayo Clinic knows what is wrong with me. Sort of leaves one pondering at rest when they should be sleeping. I don't have Lupus because that I think does not envovle the trunk. My trunk is envolved. Rupus would have to mean I have RA. The little things like the fact that my hand swelling can go away for months and return for months. It is systemic so if not RA it is surley multiple. It can not be PSA. I do not have a rash. I thought these doctors went to school and dealt with AI disease enough they could at least know what I have. Is that asking alot? My tumbstone is going to say we really wish we knew what you died of but it is some sort of inflamatory arthritis? That we are sure of but what excactly I just really wish I knew. Cause of death certificate will read the same.
Well I am just going to stick with RA for the sake of my sanity. If it turns out to be scleroderma or something I guess I would rather not know. LOL Took my meds going to look for a rolaids if I have any left. Then back to bed. My GP when he ran the anti-ccp test for me he said there it is your long over do proff that you have RA and know one can ever take it away from you. At that point it was an eight year battle at the very least. Two years later they are even more confused, Well at least they are going to try harder to fight it than to understand it. I am really sure i do not have something that has never been seen before. My joints and muscles and tendons hurt and swell how hard is that. I get stiff wonder what could cause that. I am RF positive and anti-ccp positive of 100. Oh I am so confused. thats alright I am glad my hands do not swell everyday all of the time because it really stinks when they do. And if three weeks of prednisone would make us all better than why has poor Bob been on 100 mg for nearly forever now. Anyway the pred helped alot but arggh my back and chest could care less. My hands and feet are really happy about the pred. Anyway he said it seemed like RA five weeks ago I do not get his questioning. I think it is kind of cruel to say you need biologics but I don't know what the hecks wrong with you. Well maybe less cruel than the ones that do not offer the biologics and say you need medicine but I don't know whats wrong with you. It is always Hmmm looks like you have several different things going on here. Hmmm something envolving the muscles and the tendons. Oh you have some sort of inflamatory arthritis. Oh narrowing of the joint space. Yes and sorry it is getting boring to me also. Just helps to type it out I guess. Get it out of my head and onto the board instead of keeping it all bottled up inside.Got no words of wisdom, but I can offer a hug. Oh it will be alright. I am sure the meds will help when I get them. Got to get all my shots and my x's crossed, ect. Probably the flare and the fact that I have been suffering with no real meds for months so they could get there stupid dx that has me a bit cranky. I have read that pain can have adverse effects on the brain. It will be alright. One of these days.I think the worst is NOT knowing what it is. I'm sero negative which makes me even more crazy. My doctor says who cares - as long as I can keep you comfortable with medicine. if it quacks like a duck it's a duck. Well I don't want to be a duck.