Mayday!! Mayday!! ... | Arthritis Information

I am tired of these darn lower back muscle spasms from walking.

Oh well... maybe next infusion will last longer. I hope so anyways. Because I am asking to be changed to another.

*sings*

This sh*t is bananas.... b-a-n-a-n-a-s.... This sh*t is bananas..... b-a-n-a-n-a-s.Joonie I pray that soon you will just go into remission. Sorry you have all of this trouble now. Someday someone will find a cure for this or a treatment that works for everyone. Biggest of hugs.Joonie, could this be the fibro, instead of the RA? I thought of you when I read about the great success Mona has had with the her new fibro treatment (amitriptyline I think?) and I was wondering if you have ever tried it?[QUOTE=Hillhoney]Joonie, could this be the fibro, instead of the RA? I thought of you when I read about the great success Mona has had with the her new fibro treatment (amitriptyline I think?) and I was wondering if you have ever tried it?[/QUOTE]

Hi HillHoney

Yes, I have been on Amitriptyline, and Nortriptyline. I was put on Amitriptyline first, and it was not helping me any and RD says it causes really bad weight gain, so she switched me to Nortriptyline. Then RD took me off of that because they all thought it was the cause of my rapid pulse, as that is one of the side effects when on a high dose. So, I was then switched to Remeron. And was on it for a few months saw no improvement. Then RD FINALLY put me on Lyrica, and I am doing SO MUCH BETTER in the fibro department!

Fibro does not cause swelling. I have more swelling than earlier this week and the weeks before. And now I have pain, that I cannot tolerate.

Thanks for thinking of me!

maybe its time to seriously discuss replacing the remicade Your dr is wary about increasing the dose based on your med history and you aren't even getting a half a cycle and the half that you do feel better you still have inflammationI'm sorry you feel so lousy Joonie! I do hope something works soon for you. I can't imagine going through what you have. Keep your spirits up .

Yeah... buckeye... that is what I was thinking too. I even told my cardiologist that I was going to talk to RD about switching, he said whatever I felt was best for my RA and getting it under control.

Well... LUCKY ME.... I get my next remciade infusion the same day as my next RD appt! I messed up with scheduling, but... that is one less trip up there and hubby having to take off work. So... I will talk to her about it the 28th of this month, while I am getting my infusion. I will have to wheel my IV bag around with me for my appt to see her LOL! Oh and to get my dexa scan too hahahaa! I have seen it done before. Now I will be one of "them". LOL!

I am thinking I will try orencia. Not too thrilled about it being once a month, but I am not too sure about the Rituxan. Like the idea of every 6 months and not many days hubby has to take off, but I am just not sure I want to venture there just yet.

I was hoping that the warmer weather would have helped with the inflammation and swelling, but it has not.

I just got my Ultram filled again. So... hopefully... I will not be needing it much this coming weekend and rest of the time until my infusion. If it does not get better over the weekend, I am going to call RD for a medrol pak. I am just not willing to go thru doing badly again, because it really messes with my mind. I am tired of being like that. I am happy, content, and no bad thoughts, so... I want to continue to be this way mentally.
Joonie this is so sad. Like you I had really hoped the warm weather would help with my pain. I don't like taking lortabs but for now I have to take them faithfully. I am sending you gentle hugs and warm thoughts for a less painful day for you.Thank you for the hugs, tobepainfreeagain!

Sorry you have to take the Lortabs so often.

I cannot take Lortabs, they make me paranoid. I guess I can take them... if ya'll want to hear my "conspiracy threories".

Much and many hugs to you as well.
joonie2009-07-16 09:34:43Hope you are feeling better today Joonie.
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