rocckyd | Arthritis Information

 

How are you? Were you able to get any answers or insight from your call(s) to your doctor(s)?

I send you my best wishes for a comfortable day, a week filled with pleasure, and the rest of the month without any surprises. Shug
Rebecca, I am adding my voice to Shug's in wondering how you are and what you have found out.

You take good care and I hope you are able to enjoy some of your time off!!!  Hugs to you and little one!

Thanks guys....

I wish there was something to be done for you from this distance other than send you best wishes... Thanks... REbecca.....  Gosh I hope they get this straightened out for you!! Sounds terrible.. I am so sorry.. Good luck with the appointment.  Hope it goes well.Rebecca, I wish you the very best of out comes on your test today... please let us know how they went.  Not exactly how you wished to be spending your summer, I know.  I know how hard things are for you right now... not knowing, what exactly, is going on, going for more and more test, waiting on answers.   I believe it is the control, or lack there of, that gets to one the most in these types of situations.  Try to rest as much as possible, do things to take you  away from thinking on this too much if possible.  Don't hesitate to ask PCP or RD for help getting through this tough time - I know you have a good team that is watching out for you and doing all they can - but sometimes we hesitate to let our guard down and our emotions show. 

I am thinking about you today, sending you all positive energy I have to send and wishing you the best of outcomes. 

More testing...those words are enough to give you a headache, make you sick to your stomach, and send you running from the room!

My goodness, "they" just keep on serving you up with problem after problem. At this point I am sure you simply want to throw that plate away and refuse to allow anyone to serve you up anything.

I will hold you close in my thoughts and continue to send you my best wishes...
Hope you are doing O.K.Hope you get some much needed answers! How is it going?  Hope you are O.K.Just kinda laying low.  I see my RD tomorrow. I don't think there will be much done there.  One thing I am doing is bringing my med. list.  In between my pain dr. rd, oral surgeon, and now the ER, I think I have wwwaaayyyy too many meds.  I have been only taking a few cause some see like they are prescribed for the same thing.  Come on folks...4 different muscle relaxers???  So, hopefully he will be able to narrow down the list. Rebecca, my apologies for not checking back with your sooner...I hope your medication list was narrowed and compacted...I salute your for recognizing the importance of checking and then double checking the whys and wherefores of the list. Brava!

I send you my best wishes for good news tomorrow. Please keep us in the loop on what is taking place in your life.

Cheers, Shug
Yes I think I would have to question four different muscle relaxers. There is a possibility to make your muscles too relaxed. This can make them lock up solid. Not to mention you want to wake back up in the morning. Good for you for not taking all of them. I hope you get some answers and some pain relief.Big, huge hugs to you, Rebecca, and best wishes for a positive outcome today! 

Saw lung dr. today. Got mixed reviews. Mild obstructive disease. She is holding off any major med changes until the consult on the 18th @duke. She did want me to start pred again which I fought-but lost. She gave me her notes and a CD with the CT scan on it to take with me. I see her again in 2 months. If I have problems being SOB while teaching(lecturing) she said to call and she will fit me in. She gave me a hug(what's up with all the hugging drs lately?) I hate adding another dr. to my ever growing list. She did notice I was in pain(pulse rate a dead give away) and wants me to call the pain dr. I told her that I had only been on the Fentynl(spelling?) patch for a week and was giving it more time. She said the pulse rate is a concern and that something else needs to be done. She still feels that my main issues stem from rib pain and that should take first priority.

So, new diagnosis, no real answers yet.....Rebecca, the wait for answers is the hardest thing to endure!!!  It is so very frustrating when you feel bad not to know exactly why.  It sounds like you have a good and caring PD, and that is, and will be, a good someone to have in your corner! 

Isn't a week long enough for the Fentanyl to work?  Maybe a call to the pain doctor is warranted, at least to check to see if things are giving you enough relief?  Shug said in another thread, that the pain of RA was something she long denied.  I believe she is right on about this and that it is something we all do.  It can be the most frustrating thing to deal with and, often, attitude by the professionals we look to for support can deter us from asking for better control of our pain.

I hope you find some relief and your worries ease.  I know to say "Don't worry..." doesn't help much and is the hardest advice to follow, but I also know to be overly anxious will only compound matters... so *deep breaths*.... let your worries go....  The 18th will be here soon! 

I guess I just get frustrated with everybody mentioning that appt.  Seriously, what major changes can come out of the visit?  It's not like they are hiding any top secret medical information and not sharing it with anybody.  Rebecca, maybe fresh eyes on an old subject might bring a better treatment?  Better way to control your pain?  More comprehensive answers and new solutions?  Underlaying conditions not yet know?  Maybe a little peace of mind?  These are just a few of my hopes for you, anyway.  If they find one thing that can give you some bit of comfort, I think it would help. 

Take heart, Rebecca, I know this is discouraging for you!  You deserve some peace in your life and some ease to your mind!

Thinking about you and keeping you in my prayers. 
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