WADDIE!!!! | Arthritis Information

Yes Waddie good good!! glad you watched the film... I too am one who with visual aides better understands and gets a good feel about the procedure! Meditation is good too.

now......

call.

please call.

Waddie, I'm so happy that you're having the surgery at a cardiac hospital. It's important the surgeon be experienced and that the surgery be done in an extended cardiac facility. I too use visualization and I truly believe that it helps. When I had Remicade infusions I visualized the remicade as being little pac men going through my veins and arteries and eating cells shaped like RA......you do what you have to do!!! Make that appt., there's no excuses now. Once it's scheduled you'll feel much better. Hugs, LindyWaddie- saying special prayers tonight that you find the courage you need to make your call. You've been doing all the right things to get ready-it's scary but you're going to be OK! All the best to you. Keep us posted! Waddie, you are well prepared! Good job. Now take the next step. Not only can you do it, you will experience a sense of relief after it has been taken.

All mt best.
Thank-you, dear friends... your support is overwhelming and brings tears to my eyes. Snow, you describe the leap of faith perfectly - looking down and not being able to see where my feet will fall - that is exactly where I stand now...

So I took that leap, and my feet found another step! It turns out, I will be making several of these blind steps and I find with each one, I see I will lose a bit more control over the entire situation, trusting someone else's judgment in controling the situation. I don't necessarily view that as a negative, just that I must take another step into space and trust my feet to find purchase.

Step 1. I called the surgeon's office and the scheduling assistant said she will attempt to set the date for Tues. or Wed. of the last week of Aug. However, she must contact the hospital to see when they are able to accommodate me... You won't need pj's Waddie...you will have the prettiest gown with an opening in the back.

Way to go Waddie, you have made the most important step. You are on your way now.

Pat

Good job Waddie. Keep you helmet strapped on tight and you will get the train stopped! this is the BEST thing I've read all day!!!

Thank you for taking that step!!

I am freaking tearing up here I'm so happy you were able to make the call Waddie, take care of yourself, be kind to you body, treat you mind to sweet sounds, and your spirit with peace.

Oooooooooommmmmmh!
Yay! You made the call! Cross that off your list! I agree about buying some pretty, comfy jammies and soft socks! Sorry you are having pain and swelling- better keeps those legs elevated! Keep us posted when you can. We appreciate you, Waddie.... take care of yourself.Waddie
great job taking the first step. You have to have new pjs for the hospital, it should be part of your admission. Insurance card? Check. New pjs? Check. Rest up and take care.Dear Waddie, It's so hard to make yourself call and TRY to schedule a major surgery. I hope they can get you on the schedule for the dates you want. Does your primary care or cardiologist know that your legs are swelling this badly? You might want to call one or the other and let them know. They may want to see you. Check in when you can and you know you're in our thoughts. Blessings, LindyMuch hugs to you waddie!

So what kind of PJs do you get? Betty Boop? Silky? Satiny? 100% cotton? Pink w/black polka dots?

Did you get matching socks?

Hey all, thanks again and over again for sticking with me... I have been sort of depressed with the most recent turn of events and your support is a life saver!

My legs are still swelling and the shoulder pain hits me in the worst way about 5 min. after I hit the keyboard. (I am thinking my good friend was right on in her suggestion of how I stretch and hang my arm when I use the mouse!) Also, I have been plagued with headaches (they are murder!) and sleepless nights.

The sleeplessness I attribute to dry mouth and eyes, but I think it is mostly the dry mouth that brings me out of sound sleep. My throat is so dry, it feels like it sticks closed! I don't know why that has gotten so bad in just the last few days? It is like a flare of the Sogren's. I keep water and a small amount of Biotene by my bed, but even that only last about 2 hours. I am putting an e-mail into RD today. She didn't want to add any meds until after surgery, but this just won't work! Now, I am so very fatigued, I can hardly keep my eyes open and my eyes are so dry, I don't want to keep them open! Waddie,

So both legs are swelling? Please do call your doctor tomorrow. I promise you, you will feel better (at least you won't have to worry so much) if you do.

Keep us posted as you are in our thoughts!

~Gigi

I continue to keep you in my prayers Waddie! Can't wait til this is all over for you and you can put it behind you! Dear friend, I send you my very best wishes, an extra oommmmmmmmh, have asked Bob to set a nugget of copal to smoulder as an aid in wafting those wishes and that omh to you.

To health!

Thinking of you Waddie Waddie my internet kept kicking me out last night. I just wanted to send some hugs. Sorry about the Sjorgrens it is not any fun. Well I hope they get you in soon and then we can get you feelling better. I guess you told the doctors about the swollen legs. So sorry you are going threw this experience. Prayers hugs strength and every good wish I send to you. Hi Waddie -

Just wanted to let you know that the actual thought of having a valve replacement v/s the reality of having it done is actually worse than you think; no I don't personally know that, but my FIL at aged 82 had a valve replacement and was out of hospital in a week ... he said he was sore but did get over it with minimal problems, he also suffered from malaria, scrub typhus & arthritis & was having blood transfusions every 6-8 wks ... Believe me if he could do it so can you !!

I hope against hope that your doctors can help with the swelling in the meantime, it must be so sore !!

Keep your chin up Waddie,

I am thinking of you,

Maz Keeping you in my thoughts.... Sadly I can commiserate w/ the Sjogrens issues... but I am anxious to try the Biotene(?SP) My dentist called to say he has two cases of samples and would I like one? I'm thrilled about that prospect.....

I hope your Sjogrens symptoms slow up a bit...sleep is important!! (I take Salagen some days for the SS. It does work but it causes additional night time wakings to go to the bathroom...... so, I am not a consistent user for that reason.....

did you call about the leg swelling??

I hope this all comes together for you very shortly....

my very best to you, Waddie.

babs102009-08-11 03:48:50Waddie,

I am sorry I haven't read this thread earlier. I just wanted you to know my thoughts and prayers are with you and I know you will feel so much better soon. Anyway, I just wanted to wish you well...HG

Hey support team! Cheer leaders of my heart! What a boost to my heart and spirit to find so many beautiful thoughts, wishes and prayers! A thousand heart-felt thanks to each of you and just as many I will give a quick update, then I must get off the computer and get my legs up again. I have been feeling poorly for about a week now. My edema is only good when I sit with my legs elevated, and for some reason, I have been about as dizzy as a whirling dervish these past 2 days. Also, every time I stoop to pick something off the floor or get something out of the freezer or pet the cat, when I stand upright my heart slams about in my chest for 10-12 very hard beats... as if it is trying to deal with an influx of blood. I know this is the left ventricle pressure issue the CD talked about, but it is so much worse. I have an appointment to see CD on Monday... after the dental appointment. To top it all off, I am having that horrible pain in my neck that runs to just below my left shoulder. I called the surgeon's office today to ask if they had set the date and his scheduling assistant said she was "... so busy and so behind with a stack of cases on my desk blah, blah, blah... and haven't even gotten to you yet... (more blahing)" but, she is still shooting for the 25th or 26th of Aug. and will let me know as soon as she has time to get to my case. I don't really see how that is going to be possible if she keeps putting it off. I forgot to mention to her that I would need to stop my meds 2 weeks prior to surgery, so I will call to put that bug in her ear with a call-back on Fri. Fri. is my Enbrel day now, since it was interrupted for a bout with celluitis and I should not take it if my appt. will be on the 25th. Funny, , how I had to work up my courage to make that initial call, now wait on tender hooks growing more and more anxious for the date to be set! Appointment Karma is a... well, thanks for the update...

let's hope that between Wednesday and Friday the scheduler can get her job done!!

keep those legs elevated.. have the cat come up to you for petting! and take it easy!!

*hugs*

Hang in there Waddie! Keep your legs elevated and the telephone nearby. Hope they get back to you soon and hope they can schedule you on the dates you anticipate. Sure wish you were feeling better- soon you will be! Hope they get back to you. It is so frustrating how slow these things can take. I know you can't wait to be feeling better.Hang in there. I think skip the Enbrel if she is thinking the 25 or 26. Better safe than sorry. Well hopfully you are next on her things to do list. Many prayers my dear friend. Praying for you Waddie, hang in there, hugs and best wishes from Janie. Hang in there Waddie! HGWaddie prayers and positive thoughts are being sent up and ((((hugs)))) being sent to you. Hang in there we are all here for you. Update; I have a date set (*gulp*) and suddenly I am as nervous as a long tailed cat in a room full of rocking chairs! Aug. 25 @ 12:30. Hi Waddie,

Have marked it on my calendar ---

Keep positive,

Maz You got it Waddie! Prayers all the way up to the 25th and then special prayers starting 12:30 the 25th! Another step taken, another step closer to being well again- it's all going to be OK- try not to worry. I know you have some fears. It will be nice to have a bit of energy and not have to sit with your feet up. I am sure you choose a great doctor and all will be fine. Prayers for you to feel at ease about your upcoming surgery. Prayers for all to go well. We will all be there with you. Feel better soon my friend.Hi Waddie, You're in my thoughts each day and I'm relieved that you're finally scheduled. I know you said you had an appt. on Mon. with the doctor but did you tell them about the left neck pain, swelling, left vent. thumping, etc.? Maybe they could squeeze you in tomorrow. Just a suggestion. Take care and rest like you've been doing. Hugs, Lindy [QUOTE=waddie]Update; I have a date set (*gulp*) and suddenly I am as nervous as a long tailed cat in a room full of rocking chairs! Aug. 25 @ 12:30. [/QUOTE]

Keep your tail high and your chin up. Practical Magic is my favorite movie to watch over and over and I highly remcommend it. Lindy

I love Practical Magic.. Have the soundtrack in my car!!

Da da da...mmmm..oh ho...

She's been traveling the sidewalks for hours
Stopping as every moment of the truth wanders past
Window shopping for religion or something harder
Than the coins in her pocket

She is way too pretty for prime time New York
She gets the business every time she takes a walk
Amid the shark-smile **o scenes
But they can't ever touch her - their disappearing queen

She is...
Nowhere and everywhere
Nowhere and everywhere
Nowhere and everywhere
at the same time

I love to re-watch Steel Magnolias..... I love Gone With The Wind Fiddle dee dee- I can't think about that today- I'll think about that tomorrow!

Waddie, I'm sending loads of positive energy and thoughts your way! Catch!

Just think, this time next month, it will all be behind you, and you will already be home and feeling tons better, with a sense of peace and calm, knowing that you have done what you needed to do, and have come out on the other side of the mountain shiny and new!

[QUOTE=waddie]Update; I have a date set (*gulp*) and suddenly I am as nervous as a long tailed cat in a room full of rocking chairs! Aug. 25 @ 12:30. [/QUOTE]

I'm a little late to the party...but I just want to you to know that I'm keeping you in my thoughts and prayers!

Hello my friends. 7 days to go...my count down of days until the valve replacement that will bring new energy and better health.

Yesterday brought a clean bill of health from my dentist along with their well wishes for a successful surgery, a speedy recovery and an appointment for a cleaning in 6 months.

Much & many hugs and prayers.

I cannot wait til that first post op posting....... You're so dear and I wish you the very best... Seems you've warmed the hearts of all the staff as you have ours..

Hugs and OHmmmmmmmmmmmmmmms for you, dear!

Ditto what Joonie said! I also can't wait to see your 1st post Op post! Hang in there Waddie- you are almost there!Aww Waddie BIG hugs ! You will get through this!! Keep focusing on what you'll feel like a month from now! So much more relaxed, peaceful and healthy. You've got lots and lots of prayers and positive energy comming your way. Rent some funny movies to keep your spirits up that always helps me! Did I tell you my husband Tried renting what he thought would be a romantic movie for me the night before my back surgery to help take my mind of things but this movie wasn't what he thought it was made me more anxious! But now makes me laugh ( that's guys for ya). I won't tell you about it but he had no idea it would turn out that way so maybe you should pick the movies! Lol

Keep focusing on the positive and how much better you will feel ( I know, easier said than done)

Kelly Yes you are tied to us. We want to know all about the surgery afterward. Put that on your things to do when well enough to do list. I for one am looking forward to you feelling better. So many prayers. We will all be in the waiting room.

take good care Waddie.... enjoy your family... and come see us as soon as you can after the surgery...

we'll be Ditto to Babs post! Do you know what time on the 25th you'll be in surgery- I always like to say a special prayer for my friends and their surgical staff. Date and time...

[QUOTE=waddie]Update; I have a date set (*gulp*) and suddenly I am as nervous as a long tailed cat in a room full of rocking chairs! Aug. 25 @ 12:30. [/QUOTE] Thanks Shug- good thing someone here has a memory!
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