Palendrome RA??? | Arthritis Information
Has anyone been told they have this or expereince this ? I'd like to find out what you've gone through with this and what might make it better.
I get these flares if that's what you'd call it. It's been comming on just about every 2 weeks, It hits out of the blue, where ever it wants and hits hard, hurts like crazy then goes away within about 3 days. Today it's in my right jaw, I cant eat anything but soup/oatmeal or close my mouth down completely. It goes from side to side, never in both joints at the same time (right side and left side) . The joints it usually hits is the inside of my wrist, the outside of my wrist bone area, one side of my neck,( i get to where i cant turn my head or drive it hurts so bad and get these crackling noises in my neck which is a little scary) and my shoulder.
Anyone else deal with this? My rheumatologist knows I get it, just kind of says, "hmm" and gave me an article to read about it. I usually just know when it hits, it will be gone in 3 days and just deal with it. My normal meds keep down my RA, except for these strange flares...
Thanks
Try this for more info:
palindromicrheumatism.org
klynn,
Are you talking about palindromic rheumatism or are you saying that you have another disease rather than palindromic rheumatism. I remember that you posted back in february of this year asking for information about palindromic rheumatism. I think the title was actually "Palindromic rheumatism". I know that you were quickly hustled to the roadback website by Maz-Aust and Suzanne and were given very dishonest information from Maz-Aust that if you take traditional meds, they will destroy your immune system and your liver. Good grief. Anyway, if you are talking about the same disease, I am curious as to why you now call it palidrome RA. You can just click on your own title below to get to the post by you that i am referring to. Hope it works good for you. Here is also the link to :
The Official International Palindromic Rheumatism Society