MY Recovery story | Arthritis Information

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I've been diagnosed with psoriatic arthritis for two years, but it surfaced about a year and a half before that. First in a finger then a knee, then it went through my hands. At my worst it hurt to button my shirt.  I was given two drugs that made me sick, and methotrexate which feels like poison for treatment. About a year on metho. I had ups and downs with metho in terms of effectiveness. I started researching alternatives and started finding information on diet and autoimmunity. It's like following threads which I did for about a year or more before I tried something. Side story- I also found an antibiotic treatment which I tried but am not sure if it did anything because I did it at the same time as dietary changes. I've seen references to the idea that gluten or nsaids can be a cause of autoimmunity.  Stress may be a factor. I had ample of both of these at one time. But these could be triggers.  But you may be able to fix almost all of this with diet. I've been off all medications for a little while now and am ok. Came off the methotrexate in May, and stopped the antibiotic treatment end of June. It does amount to a lifestyle change. What I did first was to go gluten free which I feel made a difference. I felt a gradual reduction of symptoms, feelings in my toes, hands which is mainly where it's mainly been...I think the metho stopped it from going further until I was able to control it through diet. So I'm gluten free, no wheat, barley, rye products. The other thing is supplements - vitamins, and especially omega 3 supplements. I also exercise vigorously cycling 5-6 times/week.  The other thing I've done is worked to balance my omega 3 to omega 6 ratio. This is supposed to control inflammation response.  Over the last 75 years this has been a huge change in our diets...resulting in higher incidence of autoimmunity in industrialized countries.  With all the prepared foods, vegetable oils, margarines, our omega 6 intake has gone way up relative to omega 3. It's supposed to be around 1:1 or 1:4 omega 3 to omega 6. Too much 6 promotes inflammation. This in part may cause autoimmunity from my researches. This is the other thing I've fixed in my diet. I thought I was eating reasonably well too. So I'm off all prepared snack foods, chips, etc. You find other things- and the craving goes away. So what I have now is minimal...and I hope to beat that too. But no morning stiffness, just a little joint sensitivity in one finger. The psoriasis is still there but mild and I hope to beat it over time. The drugs work fast, dietary changes occur slowly. I feel the disease is not being fueled any more. I do have occasional upticks- too much stress can cause it. Definitely, I've become sensitive to certain foods- what they call nightshades- tomatoes, potatoes, eggplant, peppers. I can have some of these occasionally, but I react if I have them a couple of days in a row. This food sensitivity thing is also a result of the autoimmunity.  Let me know what you think. If you ask your rheumatologist about it they'll tell you you're crazy...but they don't know anything about diet. All they do is push the drugs. That's their training.  Maybe my story could help you.  Start researching on your own...there's a lot to sort through.

Best Wishes,

 
Colin

Thanks so much for your comments on my work. 

What do you take on a daily basis for omega 3's, I'm never quite sure.  I know they recommend dosages, but for people who have issues it probably should be different.  I've tried to shut off as many sources of omega 6 as I can. 

Thanks,

Colin

Right now I am not taking any supplements at all secondary to some recent surgery; but I was following the formula discussed by JasmineRain:

[quote=http://arthritisinsight.com/forum/forum_posts.asp?TID=22413&PID=250600#250600]The important thing is not the number of capsules, but rather the omega-3 content of them.  Research seems to indicate that a dosage of 3 grams or more per day of omega-3 EFA is needed to obtain benefit for RA.  The capsules I take have 750mg combined EPA + DHA omega-3 EFA's per capsule.  I normally take 6 per day (3 in the AM and 3 before bed), for a total of about 4.5 grams omega-3's per day.  Regular fish oil capsules usually have around 300mg each, so you would need at least 10 per day in order to start seeing any benefit.  In addition, I always take enteric-coated capsules.  They break down in the small intestine rather than in the stomach.  This has couple of benefits: it helps prevent stomach upset that some experience from taking regular fish oil capsules, and the fish oil doesn't get degraded in the harsh environment of the stomach.

Do make sure you keep your doctor and pharmacist informed of any supplements you take - including fish oil.  Like anything else, they have potential for adverse reactions and interactions with other meds.[/quote]
Awaiting Enbrel treatment.  PSA (without psoriasis).  Initially diagnosed with Fibro. (yeah right); turns out to be Lyme disease and Babesiosis.  The pain is beyond belief.  Walking is next to impossible.  Seeing infectious disease dr. tomorrow.  Joints are swollen.  Feels like all tendons and ligament are ripping on my bones.  Can't go on Enbrel until other infections treated.  Anyone had LD or babs?I was very happy to see your story about treating your PA with change in the diet.
 
My mother has been suffering from PA over the past 4-5 years but only been officialy diagnosed this month.

For the longest time, we thought it was RA. She was finally referred to rheumatologist who gave her an official diagnosis.

The reason I thought your story was interesting is because I recommended my mother to follow the exact same diet you’re describing here. I’ve read a lot about grains, gluten, and omega 6 causing inflammation and how many individuals had great success treating their autoimmune diseases with elimination of gluten, sugar, and limiting of omega 6.

She started on the diet last year in August. She eliminated most of the sugars, all prepared pre-packaged foods, grains of any kinds, potatoes, and all vegetable oils. A year into it, she did not, unfortunately, see much improvement with her PA. She did, however, lost about 35 pounds which, of course, helps a bit with the weight bearing down on all the joints that are swollen and irritated.

 

There’s definitely enough material out there to support your story and I believe that people who look for alternative ways to cure their auto-immune disease should definitely give it a try.

If anyone would like to get more information on a similar diet that’s being referred to in this post, check out www.Marksdailyapple.com. He has a ton of information that might help you in making that decision.

 

Good luck to everyone.

hi colin!

was wondering if you are still out there and how you are doing?

I also have PSA and have been taking the natural road...

thanks!

 bec

HI Colin,

How are you doing now, i recently had some symptoms started with my TOES and spine problems and currently trying to find the right doc. i am still under stress and not sure what to do, your story Inspired me and i am really happy for you to get away with diets instead of drugs.. and inflammatory medicines.

Please let me know how are you doing now and how'z the condition, so i can follow the same.

i can share my email address as chava.sree@gmail.com, please email me your answers, it will be of great help for me.

thanks
Sree.
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