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Have you ever thought of putting an end to yourself because of the pain & problems of RA?

 
 
Before anyone goes off on saying I need mental therapy,  would like to state that it is not all the time, it is just when I am not doing well.
 
Mine is more of to put myself out of my misery and to keep from burdening my family.
 
When Iam doing well, I do not think about it at all, and love life. If I do think of it, it is that I think of how stupid it was of me to think of such a think to do to my family and myself.
Joonie, I think it is natural to feel so depressed when everything hurts.  I also feel like a burden to my family, especially when I am in pain.  I do feel, however, that  having persistent, strong thoughts of ending one's life should be a red flag to reaching out for help. 

I feel like I am in a struggle for life when I am in pain, and I feel my life is worth fighting for... every minute of it.  I fight not only for myself, but for my family as well.  I can't help but feel a really big challenge is looming in my near future, and you can take it to the bank, I will be fighting for each breath, every heartbeat, tooth and claw!

I don't think it is stupid for you to think of such a thing, only that it is a consequence of your pain and I understand.  I know, in my heart of hearts, you would never cause your family this sort of agony.  I know, if the pull of this to you was great, you would seek help because you would be thinking of your family first.  I know these things because you are strong, even in pain.

Blessings and hums, Joonie, I walk with you!

nope...... never
And if you are contemplating it...even if only when things are bad you need to make sure you get help.  It means you have to be more agressive about getting your disease under control (and frankly the amt of time you are spending wasting your time with the low dose of remicade could be better spent on a better med for you), actually taking the meds that are prescribed..if I recall you still haven't started the plaquenil you were prescrined to take taking your pain meds on a timely and more effective schedule getting into physical therapy to maximize your physical abilities etc.  In other words Joonie you need to actually start taking control of your health.  If you need to speak to a a counseler who specializes in chronic disease then you need to make an apptI tell my hubby when I think about it. He listens to me and then he replies back with his thoughts on it. It is not that I keep the thought to myself, I do tell hubby every time it pops into my head. Which is not often wen I think about it. I believe the last time I was not doing so well, which was the months before my remicade was upped that is when I though about about it more than I had since 2005.
 
It was just the never ending, seemed like at the time.
 
Thank you for replying waddie. You are one of the ones that helped me greatly when I was feeling like that.
 
 
 
Understanding perfectly well that you do not want to hear it, I am going to say it again: At 30, you should not be burdened with issues of growing up with RA, nor should you be shrouded in self-esteem and self-worth issues nor contemplating suicide even when your disease is at its worst.

I urge you, from my heart, to seek counseling from someone trained to assist you with overcoming all these burdensome issues: please.

With concern, ShugI am working on it all. It just takes time, because I have to depend on others for where I need to go and I have to take their schedules into consideration when I make my appts. Right now MIL is in between semesters and I have to wait to see what her schedule is going to be like. I was also waiting for daughter to start school back, one less kid to tend with and son acts better when she is not around.

I'm with buckeye....  Never have I thought about taking my life because of the pain and the debilitating ways of this disease.......  It's made me feel badly... upset that I couldn't take proper care of myself or my family.....  but I never thought of taking my life..

I hope that you do seek professional counsel..... It's best to speak to a person outside your immediate life.. objectively they can help you.....  good luckAbsolutely not. I love life -- and if it is very painful at times, so be it. I want to live and do what i can.I had those thoughts, very strong thoughts during onset. However with what was going on I think it would have been abnormal not to have those thoughts. The pain was horrific in 12 hr. cycles always all through the long night where I sat alone, terrified and miserable. I was doing everything the doctors told me and instead of getting well I was spiraling down. They didn't even know for sure what was wrong with me. People here acted like I was a burden. I was afraid to tell my doctor how I was feeling because she was very resistant to giving me adequate pain meds. I thought if I told her she would further with hold them thinking I would take the whole bottle. Ha! I could not open the damn bottle so that wouldn't have been a possibility anyway.
If things hadn't changed I would have seen a counselor. When I got a little better I got tough and onery- RA was not going to kick my butt. I think we with RA would benefit from a counselor regardless- not only for something serious like wanting to take your life.... Having a chronic illness comes with a lot of emotional issues. I wonder if you can find a counselor that would do phone sessions Joonie?
No. Never. I am working on it all. It just takes time, because I have to depend on others for where I need to go and I have to take their schedules into consideration when I make my appts. Right now MIL is in between semesters and I have to wait to see what her schedule is going to be like. I was also waiting for daughter to start school back, one less kid to tend with and son acts better when she is not around. [/QUOTE]
While I understand, and to a degree sympathize, about being dependent on others, I guess that I am simply more selfish and self-centered and self-concerned that are you: I would find a way to get the help I need, whether PT, OT, or counselling by any means necessary. I would find someone to sit with the children, make arrangements for transportation whatever it took to do so, and take care of me first.

Sometimes being selfish is the best way to be selfless. Sometimes what we call consideration for others is merely an excuse for inaction. Sometimes postponing what should be done, what needs to be done, and what must be done is a shrewd way of seeking attention.

As my husband recently pointed out to me, when one person in a household is seriously ill everyone in the house is affected. He then told me of his experience with my chronic illness. I will be as selfish and self-concerned in a way that keeps my symptoms limited, that increases the quality of my life every day, not just occasionally, and I will be as self-centered as it takes to keep his suffering to a minimum.
 
To being aggressive and to taking control!

Edited in an attempt to correct extraneous formatting...
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and when the time comes experience will show that you will come up with new excuses why you can't make your health a priority.
 
Name one thing you can do today to start changing your circumstances
Joonie you need to look within yourself to answer the question of why you make so many excuses.  Do what you need to do to get your drivers license to become more independent.  Accomodations are made for disabilities.  It seems to be that you are just lazy and seeking attention. Never because of illness..
 
Long ago, before I was finally diagnosed  with BiPolar, I actually made a few attempts, the first one when I was 11.  I can only believe that  God Himself kept that one from working.
 
The last attempt was when I was 20, but then I made a decision that I could always do it tomorrow if I still felt the same way. For many years I would tell myself I could wait til the next day.
 
The thoughts of suicide came from sadness and fear. As I got older finacial issues were often the reason for  suicidal ideation. 
 
Unbelievably about 20 years ago I was ready  willing and able   to do it. I called a suicide help line and got yelled at by the worker.. I guess she felt anger  at her would stop me.. She was asking  "well why dont you talk to your husband?"  ummm DUHHH   If I could talk to him dont you think I would have?
 
I havent felt  that way in several years.. I guess I'm just mellowing out.
Hey there June, Im sorry you are experiencing some depressing thoughts. Wanting to end your life for what ever reason is frightening.  Yes you do need to see a counsellor and maybe you can find one that comes to your home, maybe some one through the church...thats a start. Any thoughts of suicide can become a reality. My sister tried to take her own life a few years ago due to a violent marriage..with help she is now independant, working and very happy..you have to ask for help. I know you dont like to but its a necessity. Your Children need you, you need you . I know if i told my husBAnd i had these thoughts he would have dragged me off to see the dr, was your husband concerned when you told him?
You have so much to live for.
If ever you want to chat, just PM me..xx
I agree with everything that is said.  I'm sorry you are feeling this way, but you aren't doing anything to make concrete changes.  You probably need to be on an antidepressant too.  As a disabled person, you have transportation options, most likely child care, etc.  You can make the change, but you have to want to.  Right now, you don't seem to want to.  You have been doing this for as long as I have been on this board, which is a couple of years.  It is time to move on and do what is within YOUR abilities to help yourself. 
Phats
 
Yes...I am embarrassed to admit it.  When I was 14 weeks pregnant, my husband had an affair and left.  Those were very scary times for me.  RA spiraled wwaaayyyy out of control during the whole pregnancy. I didn't know how I would be able to raise a baby by myself.  My now ex was also very hateful near the end-calling my crippled and useless.  This also happened at the start of the summer so there was no paycheck and no daily interaction with others.  Luckily,  I have wonderful friends and family.  My RD even called me weekly during my pregnancy to see how I was doing.  Nobody new how depressed I truly became.  My mom was sucidal when I was growing up and spent a few months receiving inpatient therapy.  I had always sworn that I would never be like that. 
 
When school started up again, I managed to turn myself around.  Looking back, I don't know how a dr. didn't catch how depressed I had become.  I definitely knew the right things to say to avoid it.
 
I try not to be too judgemental when others mention depression.  It is such a personal issue. I can honestly say that I am a better person now for having experienced such a low and pulling myself out of it.  I am at a major low point RA wise right now(as you all know...), but lifewise, I am happy.  RA is not my life.
I guess, I'm more worried about dieing, when I get down, I alway fight my way back to top even as a child  I worried about tomorrow, joonie fight, get help.  You have a husband and kids to worry about, what would your kids do without you?  Your state of mind can effect the way you feel,  If you can think about the happy times, you'll feel better.[QUOTE=rocckyd]
I try not to be too judgemental when others mention depression.  It is such a personal issue. 
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Having felt these things and worked through them helps you to become a compassionate teacher for others. No never.  Was never even in my radar even at my worst.  
 
My only  experience with it was a family member who attempted suicide and a friend who succeeded, and believe me when I tell you that for the family and friends left behind it's hell.  Look in your children's eyes and call someone to help you get through the crisis.  There are ways and means of getting help.  Talk with your RD or primary care doctor and they may be more help to you than you think.  If you can ask us for our opinion (help) then you can ask your doctor.  
 
Joonie, it may be depression and that can be helped with meds.  You're isolated with your children and not much help and I understand some of the feelings that you have.  Before they worsen please talk with your doctor.  Lindy
Joonie, I understand that you aren't on the verge of doing something drastic right now.  But chances are their are more rough spots ahead for you.  Maybe not, but you never know.  That's why I agree with others who have urged you to seek help right now while you're feeling better.  Learning coping skills while things are ok may help you when they aren't.  Your family needs you, and you do more for them by just being here than you could ever do if you weren't.  Take care my friend.   Joonie one of the side effects of Lyrica is suicidle thoughts. So what peopel are saying is that if the thoughts be presant or past do something to get some help. Not what you want to hear.
 
   Your family would not be better off with out you. Your children would be so devastated and would never understand. I have often heard you say there is no one else to watch your son. Well then I guess you better do something. You feel like a burden when you are needing help. Imagine the burden of you not being there. Then everyone would be lost feelling guilty for the rest of there lives for not having noticed. Your children would never understand.
 
   Just saying I know you feel miserable when your RA is bad. I know you feel like a burden sometimes. I have had moments when I thought about having my leg amutated. I would never cut it off of course. Sure I think just get rid of it so it will not hurt any more. Then I think of this guy that really had an amutated leg that was hired as a temp at work years ago. He smelled badly. Oh my he had staff infection from the friction of his artificial leg. It was like his skin burst and we sent him out in an ambulance and bleach down the room. That was the smell. How sad and horrible. So how awful that I even think such a thing would be a good solution for the pain.
 
   These thoughts are a symtom of a problem. You see the problem as simply pain and misery. You have to get over the feelling of being a burden. Life is what it is. You have to learn to except that. The pain if it is that bad you have to get some relief. You do not like the effects of stronger pain medicine. Well maybe on occasion that would be better than wishing you were not here permanatley. A back up pain relief would be a temporary solution. The problem with these thoughts. Do not make light of them. People that kill themselves have these thoughts. It is a symtom of a potentially fatal disease. If you are saying well it is just the pain. Well people kill themselves because of the pain. It happens. When all they may have had to do is take a stronger pain medicine. So they would have had to humble themselves enough to be honest with there doctor.
 
   RA and deppression go hand in hand. I also assure you millions of people suffer from deppression. It is not something anyone should ever feel ashamed of. It is not something that anyone would think less of a person because they said I am having a hard time and I need some help. I love you Joonie and I know this is not what you want to hear. It is what I believe you need to hear. You need to tell your doctor. Let them decide how to help you. Suicidal thoughts lead to suicide.
 
   What a sad way to live even if it is just when you are in a bad flare. A bad flare is terrible enough by it self. It would be nice if you were happy and in less pain when you had a bad flare. Seems impossible. Really it is not impossible. Your family would love it if you were a bit happier and so would you.
milly2009-08-10 22:17:56Joonie,
 
Please seek out a therapist to talk with.  Even though you are talking to your husband about this I really believe that a therapist could help you sort out everything and help you find the strength you actually have inside you to take control of your health.  Lord knows that the pain of this disease can really get to be depressing, you have to tap into your inner strength to fight the urge to commit suicide.   Please think about therapy as part of your overall health...HG

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