I'm new...here is my story, and thanks! | Arthritis Information

 

Hello all suffers!

[QUOTE=Volkan]... ...So, recently, I just stopped buying these herbal / supplemental pills..they just don't work.  Maybe you aren't supposed to take them with antinflammatory drugs, but I must.  Without Motrin, or someother over the counter AI,  I am totally immobile. I go to my DR to complain about my progressing P/A, but he just increases my dosage, and doesn't feel the need for a specialist referral. [/quote]
Hello and welcome to Arthritis Insight. I have RA, but at least some of the symptoms are similar to those of PsA.

I am rather surprised that you have not been referred to a rheumatologist for further evaluation and more aggressive treatment. Motrin et al helps with the debilitating inflammation but does little for the destruction that can occur with PsA. While I am not very familiar with the variety of therapies used in PsA, I have read several studies that recommend therapies much like those for rheumatoid arthritis.

If at all possible I suggest you demand a referral to a specialist. You deserve the very best therapy available and from my admittedly limited perspective it does not seem as if you are getting that.
[quote]Is there any hope?  Am I going to be stuck with taking Motrin for the rest of my life, with a new joint being taken hostage every so often?  Can anyone offer any medicinal, herbal, or any advice?[/quote]
A second, a third, and even a seventh opinion until you are satisfied with both the personal interactions with the physician and the therapy s/he recommends.
Volkan[/quote]

...and if not pain-free at least manageable and enjoyable.

Most of the conversation take place on the Rheumatoid Arthritis segment of this forum, I hope you will join us there.

Cheers, Shug Hi Volkan and welcome to the forum.  I'm sorry you had to find your way here but hopefully you can find some encouragement and answers.  How was the diagnosis of PsA made without seeing a rheumatologist?  PsA isn't the easiest of the arthritic conditions to be diagnosed.  Hi there, welcome to the forum, im also relatively new to the forum.  I agree with other respondents that you definitely need to see a rheumatologist, i was diagnosed with PsA in 2006, started on Sulfasalzine as this was sufficient i started methotrexate 4mths ago which i find is better but still need to take anti-inflammatories.  I had to laugh at some of your comments as i quite often find myself too thinking in the morning ..have i been hit by a bus in my sleep?? this is generally if i have tried not to take anti-inflammatories for few days.  I found over the counter anti-inflammatories werent' strong enough for me, only Arcoxia seems to help at mo.  You need to see a rheumatologist asap, good luck :)hello all, Hey I can help you.  I have had RA for 15 yrs.  I know this is different than what u have.  E-mail me at  JennyAaron2@hotmail.com JennyJenny, once again, your sales pitch is not only in poor taste as a response to Tolkan's post, it is also crass, insensitive, and blatantly self-promoting. You, Jenny, posted in nearly every segment of the Arthritis Insight forum and that is SPAMMING at its most obvious.

I am sure that everyone who reads your testimonials are pleased that you found a way to remission, but proselytizing your money-making scheme reflects poorly on you and creates a sense that you lack veracity.

Pick four or five regular posters and send them a free supply of your product and allow them to post their responses to Mona Vie. For an adequate sampling of the products you tout as life-changing a free four month supply sent to the 4-5 participants would be a goodly start to verifying your claims and will give the rest of the posters on the AI site something to consider.

Cheers and best wishes.
Hi to all!

I am a new member also, diagnosed with PsA 4 years ago. I was in remission for two years, but since a year ago, it is back with a vengeance. Worse than it has ever been. I have seen my rheumatologist and he has me on Humira and Arava. He has also prescribed medical marijuana..I try it tonight. Has anyone had any experience with this??

Volkan, I agree with the others, Nsaids just won't cut it. It's hard to demand sometimes, but with our pain, and the damage that it causes, we must. It is us that has to live with it 24/7.

And I so agree..the feeling of being run over by a bus is very familiar. Thank goodness it does get somewhat better as the day goes on.

I love this site..very informative, I have been reading forever!

Lynn volkan get a referral to a specialist ASAP. You need to see a rheumatologist yesterday. A lot of doctors think PA is something to be treated with IBprofen. Change doctors if you can this one is not doing you any favors. I was diagnosed about a year ago and take MTX injectable Arava and naproxsen and still the disease is progressing .Hello everyone, Hi Volcan. Good news that you will soon be seeing a rheumatologist. Hydroxychloroquine is a widely prescribed medication for autoimmune diseases; it has a good safety record as well. Use the search function and look for Plaquenil and you should be able to find many discussions about the medication.

Cheers, Shug
Volkan, I just recently learned the word limerence. I read the symptoms and they describe the way I feel about my LO so perfectly I was stunned. There actually might be an explanation to this condition? Now I know what it is, but I'm not really sure does if make it easier.

I'm writing my story here because I think you might understand how I feel and I just feel that I really need to get this out of my chest.

About 18 months ago this unfortunate series of events started happening. I went out with a friend of mine and her boyfriend. We were queuing outside some club when I first time saw my future LO. He came out from the club to have a smoke as we were standing outside. Then something really strange happened to me. We, the LO and I, looked into each others eyes, he slowed his pace, and it literally felt like time had stopped for a while. I thought he looked so damn fine, like no one else I'd ever seen in my town. Somehow I thought we had some kind of connection. I didn't say anything of course; I was way too shy to act out. And eventually we, my friend, her BF and I, decided to leave because the queue was too long. Over the next days, weeks, months, I couldn't stop thinking about this young man. I needed to find out who he was. After some serious detective work and facebook stalking I find out his name and that we actually had some mutual friends. At this point though, my limerence wasn't severe yet, I just was really interested in him and wanted to know more about him. Then slowly things started to happen. I would bump into him almost everywhere, clubs, around the campus and so on. I always wanted to say something to him I couldn't. Then I started to think that he was actually interested in me too, checking me out. This went on for like six months. At this point I was thinking about him almost all of the time. I was fantasying about him. Then one night we actually talked to each other at a party. He talked to me first. We were both really drunk and we didn't say much but it made me think that some progress might evolve from this. Couple of days later we saw each other again. He smiled to me sweetly and said hi. Then came weekend. I was out again with friends and so was the LO. He and his friends asked if they could join our table. Fine by me, of course! That night I was really feeling confident about myself. We were chatting over our drinks. That was really the first time I had talked to him properly. We had similar interests and there was some flirting. There was just something about this man that made me want him so much. I felt that now I needed to step up my game. I continued flirting with him and it was going on very well. Then he asked me if I wanted to come over to his place to listen some music we had been talking about. I said yes, definitely. We left the place together. I thought he was so sweet, terribly attractive, a little nervous too, but strangely so very interesting. After like a 30min walk we got to his place. He put some music on, dimmed the lights, closed the curtains. I saw where this going. Then he kissed me. It was a passionate, amazing kiss. He was all over me. Kissing and touching me. He told me I was wonderful and that he had wanted me badly since the first time he saw me. I was confused of course. Here I was, making love to a man I wanted so much and he wanted me, and I could not tell him that back. The night was wonderful. It was everything I had wanted. I couldn’t believe it had actually happened. Next day we kissed and hugged. I still remember how insanely good it felt. And even he had told me about is feelings, I was acting shy again. Somehow I thought I shouldn't give away that I had such a big crush on him. I felt bit of regret of having sex with him so quickly, even though it was the best thing that had ever happened to me. Time went by, and still couldn't tell him about my feelings. We saw each other over the next couple of weeks, but everything was stuck. I was thinking about him constantly. I was thinking what he might be thinking, did he like me, would something happen again etc. I was too terrified to contact him (I had his phone number because he had asked mine from our mutual friend, and called me the day after our night together). I was hopeless. I couldn't do anything. I was still thinking about our night together. It was my main fantasy. I was thinking how some day we would get together again and he would tell me that he loved me too. Whenever I saw him, we always would say hi and smile, and that was it really. I heard from a mutual friend that he is really shy too. And that's how things started to became desperate. Months passed, nothing happened. Then we met again with some mutual friends at a bar. I was really enjoying his company and I thought he liked me too. There was some chemistry still, I thought. I was hoping that he would make the first move and ask me out, but it never happened. After a while I heard he was dating, or not dating, all very confusing. Then he disappeared from the town. I rarely saw him again. I became desperate. He was an obsession to me and I couldn’t even see him. We never talked about our one night affair. I was really sad. I regretted that I hadn't told him about my feelings when could've have, that I didn't ask him out myself. Now he must have thought me only as a one night stand. What if he had really liked me too, but was too afraid to act because I was always so shy? I was in pain. Then it got even worse. He eventually got himself a girlfriend. I was devastated of course. I think someone may have the wrong idea what this forum is about.  What in the world are you writing about and why would we understand? Seriously!My damage did not show up on Xrays but did on an MRI. Definitely get to a specialist. It's the best thing I have ever done. [QUOTE=Volkan]Hello everyone, [QUOTE=kkched] [QUOTE=Volkan]Hello everyone, [/QUOTE]
Hi Volkan,
Hydroxychloroguine is the same a Plaquenil -- according to the meds i am taking...
and my RA Doctor says i should not be taking any Antiflammatory Meds from over the counter while taking the meds i am on now... Methotrexate (the max), Hydroxychloroqunice, Predisone, Sulfasalazine, and i also take Hyperthyroid meds..

[/QUOTE] Bumping this up, pushing down the sapm....up to the top
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