PMR heridatary ? | Arthritis Information

 

I was talking to a very astute 92 year old lady and she tells me she is on her 4th episode of PMR....
Her mother had it and now her 2 daughters have been diagnosed as well!
They are not thanking her for this one.

She has found the fatigue and weight gain while on Pred to be the most fustrating. She is a very active lady but cannot continue to go to Church at 8am and Probus in am. like she can when not having PMR. Her mornings are the worst time.
She joked about her age now but said this has always been what has happened since first struck by PMR many years ago. I forgot to ask her at what age this started, she was also pleased to find a kindrid spirit who knew what she was talking about. We had lots of laughs, moon face, hairy face /chin, jelly belly, buffalo hump on back of neck and of course arms not long enough to wipe bottom ect xxxx
My family history is full of 'arthritis' and rheumatism stories and it has me thinking it could have been PMR?
Anyone been wondering about this too?
Lyn

Hi Lyn , my old dad had PMR im sure ..that was 25 years ago when little or nothing was known about it ..i would have to help him put his jacket on and he was taking pain killers  all day long ..i know now that this was PMR ..it lasted for a few years which confirms my suspicions ..he would complain about shoulder pain mostly but i often saw him rubbing his wrists ..poor old soul..at least you have the warm weather coming where you live ..good luck ..Micky .. There's no history of PMR that I know of in my family, but my mom had rheumatoid arthritis in and out of remission all her life. It really seemed to follow her psychological moods; everything got worse when she had the "empty nest syndrome" . Later in life she found out she also had lupus, Reynaud's syndrome, and scleroderma.  She went for blood tests because she hadn't been feeling well; I still remember my dad saying "she went in with one disease and came out with four".  So genetically my siblings and I are probably predisposed to having immune-driven diseases.  Her rheumatologist told her that we wouldn't inherit these problems, but I think he said that so she wouldn't worry and feel bad.

Her dad (my grandfather) mysteriously went blind after an ulcer operation; this was probably in the late 1950's. I have wondered if he had GCA.  It never really was explained, and I was a child at the time. Back then I don't think they had a name for GCA.  I guess it possibly might have been a blood clot that caused him to go blind, I just don't know.

My youngest brother has an extremely rare autoimmune eye disease called conal dystrophy; he has had it for about 15 years and has lost his sight in one eye--the other eye is getting worse.  Then there's me with the PMR--the other 2 siblings seem okay for now.

freesia
freesia2010-07-23 11:21:56
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