Lupus | Arthritis Information
Here is a link to a medical paper
and here is the jest of it... that PMR may be associated with the development of SLE. Also says that if there are features of connective tissue disorder or poor response to treatment of PMR - the posibility of SLE should be considered.
That is my worry. I am over the worst of the pmr...but just not right. Getting an MRI next monday of my mid back. Feel pretty good today but it goes up and down. Have had almost constant sores in my mouth - like cankor sores - on tongue, inside lip, etc. I have had a positive ana but no other symtoms yet. Can't find any info if there is anything to do to stop or slow any progression if that is what it is coming.....Oh - also...hurts a bit when i breathe in big...that is on the checklist of Lupus. Anybody know anything or have you developed Lupus after the PMR?????
Hi Smartie,
I sure hope your MRI does not show anything serious...you have been through enough already. I had the mouth sores in about the middle of the PMR. The only thing I could do was rinse with salt water and it seemed to help a bit.
The only thing I have developed since the PMR was positive fibromyalgia and the onset of one of the other arthritis family members. I sure do hope you do not have Lupus as it is a devil.
Good luck to you Smartie.
Pat
that article was interesting, i feel a little like a ticking bomb, but i really appreciate the heads up about this pmr stuff. i keep learning and that is very important to me. thanx.Hi Smartie, we're in a similar boat; we spoke in Sept under my 'unsure of diagnosis' input. I'm feeling pretty dreadful tonight, coursing/inflammation thru body and my throat muscles up a lot, feels like a golf ball stuck in my neck. Blood pressure up too.
That article is interesting and alarming for me too, as I think I might be heading for lupus also. However, when I researched UCTD (undiff conn tissue disease) I found a big study that had been done to find out why some people with UCTD go on to get a full conn tissue disease and some don't.... their conclusion was that people with low levels of Vit D had a higher progression level. Therefore, keep those vit d levels up. I mentioned it to my rheumy who certainly took that on board as among my blood tests he then requ a Vit D check - the nurse told me! We get it from sunshine (limited in England) and a small amount in food like fish and egg yolk.
In some ways I don't even care what I've got; I just want a firm diagnosis! My rheumy is still with polymyalgia though but testing me regularly for just about everything else.
Hang in there.
Best of luck to you....my MRI showed a small disk protrusion and a mild disc bulge...so glad to know what it is so i can make sure not to do the wrong thing. I am doing yoga classes now and today at least i feel much better. I agree - just knowing seems to be half the battle. I have also read over and over that alfalfa can trigger Lupus flares....I used to take it a lot years ago. I also read labels now to avoid that. I will be getting my yearly bone density soon...always something. I know that inflammation makes bone thinning worse - i lot 10% of my density in one year. I have been doing right things this past year so hopefully it will be ok. I have been upset about Michael Brewer - the boy who was burned by bullies in Florida. I don't feel so bad about myself when I think about what he is going thru. There are several facebook pages - michael brewer foundation. oops - that was me...smartie101 - I forgot i had that login....was a mistake!!!!
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