Looking for Steroid Shot experience | Arthritis Information

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Hi Everyone,

 
I have RA, and have been on Ebrel since Feb 2008.  It has really helped me get back on my feet.  I have a full time job, live by myself on the 4th floor w/ no elevator!  I used to be bedridden (sp?) and couldn't squeeze toothpaste.  I thought my life was over.
 
I am looking for advice about steroid shots.  My pointer finger on my left hand hurts when I bend it or use it.  I am constantly using my hands, so I just can't get away from the pain.  Don't get me wrong, I have discomfort in many areas, but this pain in my finger has been bothersome over the last 5 months.
 
Has anyone had steroid shots?  Had good or bad experiences?  Do you become dependant on them?
 
Thank you for your advice.
 
Nori
I have had mixed results with steriod shots.  Sometimes they bring great relief, other times not so much.  You need to make sure that you can rest the joint after you are one.  It will be sore at first, but then, hopefully-you will feel better.  You are limited as to how many you can get a year in each joint.  My dr. doesn't like to do more than 3.  Thank you.  Do you have to keep doing it after you start?
 
Nori

You shouldn't need to get them repeatedly.  I usually get them when I am changing meds.  It often takes a while for the new meds to kick in.  If a joint is bothering you to the point that repeated shots are needed, then you dr. should be looking more into that joint.  Cortisone damages the joint if given repeatedly. 

Thank you, Rebecca.
 
Nori
Over the years I have had several injections in hips, shoulders and once in my foot. They really helped me out when medications were not working. Wishing you the best and hope you feel better. Oh, and they can scar as I have scars on my shoulders from them.

I'm a frequent flier with Kenalog [cortsione] and would be dead in the water without the injections.  I've been getting them for years when my joints flare and they are a godsend.

First rule is to get the best orthopedic surgeon to administer them, preferably if his practice consists of pro-ball teams. These orth surg's have the most experience in giving the shots and getting it right.
 
Second rule is to allow up to 72 hours for the injection to work. For me, 36 is the magic hour.
 
The orthopedic guideline is NEVER more than two injections in the same joint in 12 months. The reason for this is so that you don't tear the tissu [as repeated injections in the area can do].
 
A good orth surg will front load the syringe with anesthetic or will apply topical anesthetic. So pain should be minimal.
 
The effects should last about two months.  I have had a couple experience where the injection didn't work completely, but that was due to the fact that my problem was more widespread than initially thought.
 
I definitely prefer the injections over taking Pred any day of the week. I believe that it's important to treat the joint that's problematic, as opposed to systemically treating the body when other joints don't need it.
 
Regarding your "pointer" finger........don't overuse the mouse. Learn keyboard short cuts instead so that you can use them in times of flare-ups.
 
Again, NEVER, NEVER, NEVER have a PCP administer cortisone in the joint. They just are not experienced. I had this done one by a PCP and I literally went through the roof. Learned the hard way.
Great advice.  Thank you.  One of my biggest fear is that I will make things worse or become dependant.
 
Nori
Nori, I've had several and sometimes they work, sometimes they don't; couldn't tell you why! I do want to warn you though, that your skin can atrophy at the injection site. I have permanent discoloration on my left wrist from them. Don't want to scare you... just want to give you a heads up. When I first went to the doctor's office with severe pain in my shoulder, a physician's assistant thought it was a rotator cuff injury (fit with the fact that I had moved some furniture) and gave me a cortisone shot in my shoulder. The shot itself did not hurt at all. I felt good very soon after, however, the pain started coming back the following week and that's when my PCP did blood tests and found the high inflammation and sent me off to a rheumy immediately. Maybe the PA didn't give me a heavy dose? I don't know. Another time, I had a flare (had forgotten about them because I was new to RA) and my rheumy was out of town. Another rheumy in his office checked me over and sent me to nurse treatment for some kind of shot, but it was not to a specific joint - more a systemic thing I guess. Not sure what that was but it did bring some relief. I try to keep track of all this, but all my records are at my office so I can't be specific on some things when I'm writing from home. Hope you start feeling better!

Interesting. I've probably had close to 100 injections over the years in various joints and never had any atrophy or discoloration. With the exception of maybe 3 shots, they all worked. I still say it's all in the skill of the physician.

Just goes to show we're all different.
 
Become dependent on the Kenalog? I wouldn't call it dependent......it's a tool.....like aspirin for a headache.  Besides, a reputable physician won't let you have more than two injections in a twelve month period.
Sam12342009-11-15 18:35:08I tried to post this at 6:30 and don't see that it or the following one were actually posted. So here is mine again, for what it's worth!


When I first went to the doctor's office with severe pain in my shoulder, a physician's assistant thought it was a rotator cuff injury (fit with the fact that I had moved some furniture) and gave me a cortisone shot in my shoulder. The shot itself did not hurt at all. I felt good very soon after, however, the pain started coming back the following week and that's when my PCP did blood tests and found the high inflammation and sent me off to a rheumy immediately. Maybe the PA didn't give me a heavy dose? I don't know. Another time, I had a flare (had forgotten about them because I was new to RA) and my rheumy was out of town. Another rheumy in his office checked me over and sent me to nurse treatment for some kind of shot, but it was not to a specific joint - more a systemic thing I guess. Not sure what that was but it did bring some relief. I try to keep track of all this, but all my records are at my office so I can't be specific on some things when I'm writing from home. Hope you start feeling better!I had cortisone in my foot between 2 toes for a neouroma.  Didn't help a bit and the shot was sooo painful.  Some people swear by them--I swear at them.   Personally, I would never have one again.  I would suggest to try it to see your results.  Mary,
 
I've said it many times: no one except rheumatologists and orthopedic surgeons should give cortisone shots in the joints.
 
I've never been able to understand why someone would give someone a systemic medication when a specifically targeted injection will do.
 
Another thing:  some physicians know to front-load the injections with an anesthesia such as Lidocaine.
 
Sorry if I sound down on PA's, but my experience is that no one knows how to give these shots except orth surgeons and some rheumatologists. In fact, early on I had my PCP give me the shot. I went through the roof with pain and it didn't help at all and made the situation worse because he injected the cortisone in the wrong area. Last year I had to get a special radiograph of my shoulder and the Radiologist, who gives these injections somewhat regularly, caused so much pain that I nearly went through the roof.
 
My orth surgeons use image-guided electronic equipment to make dead certain of locating the inflammation and injecting the shot. Before this equipment was used regularly, they were already proficient in giving the shot, so the equipment was just an added bonus.
 
There are two kinds of cortisone shots:  long-acting and short acting. The long-acting ones will last roughly two months.
Systemic injection can be preferable if there is more than one localized area of inflammation, or if the target area is too difficult or risky.

Personally, I've had a steroid injection for tendinitis, and after the local anesthetic wore off 12 hours later,  I was back to square one.  Never got any relief from the steroid.
JasmineRain,
 
Why didn't you get the long-acting injection?
 
I've never known a joint that was too difficult to inject, as long as the physician is an orth surgeon. As I've always said, the chance for success is chiefly in the degree of experience of the physician administering the injection. I believe mine give at least 5 of these injections each day - these guys are pretty amazing.
I did get the long-acting injection.  Front-loaded with local anesthetic.  Done by my orthopedic surgeon.  It didn't work.  They don't always work, you know. Hey Sam, who are you? How many joints have you known to know there are none too difficult to inject?   I just had this done on my right pointer finger in the knuckle area. It was 100% better the next day! i can now bend it with no pain!  I would highly suggest doing it!  It does sting and hurt for a minute while they're injecting, but dont look and remember how much better you will feel when it's done! The day they injected my finger it was stiffer and sore but the next day It felt SO much better! My finger had been so stiff for months and wouldnt budge for anything. After the cortizone shot it  helped tremendously. I hope this works for you!!!Nori
I have had quite a few as they have sometimes been all I have had to help me through when the meds have failed..My RD will let me have no more than 4 a year but 3 is the most I ha ve had in the butt and i have injections into a joint a few times after it had been drained.
They did help me to a point but not for as long as they are supposed to.
 
Sam i have never had one injection by an orth surgeon, mine have either been done by my regular G.P. or my RD...no problems for me
 
Infact my g.p, gives a better injection
 
edited for spelling
Mrs Pincushion2009-11-16 08:16:22I often get the systemic injection.  I have quite a bit of chestwall and rib inflammation.  There are way too many joint spaces in the ribcage.  I will get a few areas around the sternum injected, and then a systemic injection.  Also, there are many doctors in different specialities that are excellent in giving injections.  Ex: my rheumy will not give injections for the ribs.  It is done by my pain management dr. under flourascope (spelling?). 
If you have a dr. that you trust and has treated you correctly in the past, don't just assume that they can't give you an injection.  Likewise, don't assume by a person's speciality that they can administer proper injections.  just like in any profession-you get good docs and bad docs.
 
 
I've had numerous joints injected over the years and I'm a HUGE fan. I've also had numerous systemic injections when I had too many trouble areas to inject all at once and I've had good results with those as well.
 
My RD has always injected mine directly into the joints, but his nurse has given me the systemic ones without any supervision. I don't think I'd let just anyone do mine into the joint. I'd definately insist that the doctor do those himself; but I'm not sure I'd make a special trip to an ortho just for a cortisone injection. I'm not sure that's nessesary provided you feel confident with your RD.
 
I would highly recommend them.....although to be honest, I've never had them in the hand before. Just the knees, hips and shoulders.
To all who have questioned my experiences:
 
I am speaking strictly of injections in the JOINT, not systemic injections. I thought I was pretty clear about this.
 
I have had injections in my ankles, knees, shoulders, wrist, elbow, hand, fingers, neck. I've never had a systemic injection because I cannot take systemic cortisone. Even if I could, why would I want to expose the rest of the body to cortisone when it's needed in a specific joint? [Of course, if there are 5 or more joints involved simultaneously, that might be something to consider if one could take systemic Pred, which I cannot.]
 
Regardless of how well a physician has treated you in the past, and with great measure of success, it's foolish to assume he has the skill to give an injection into the joint. I've got a disfigured joint to prove it.
 
Also, someone said that their physician limited the cortisone shots to 3 per year........which kind? The systemic or joint type injections? Makes a difference.  [Helps to be specific.]  My orth surgeon allows no more than 2 per joint per 12 months because of the ability of the needle to perforate and tear the tissue.
 
Why have an orthopedic surgeon? Some of us find that our disease creates havoc on weight bearing joints or have tears in tendons or cartilage......hence the need for orthopedic surgery.
 
 
Sam12342009-11-16 11:09:47I'll be sure to let my father's interdisciplinary team know that no joint should be too difficult to inject, and that you can't understand why someone would take a systemic medication rather than an intra-articular injection.  I guess they all skipped those subjects in med school. Sam~I don't really think anyone is questioning your experience....but we all have different opinions on things. That's not to say you don't know what you're talking about. People on these forums post questions like this so that they can get several different opinions on one subject. Not everyone that has RA sees an orthopedic surgeon on a regular basis....and it's MY opinion that it's not nessesary to go see one just to get a cortisone injection.
 
If I didn't make it clear before please let me do so now......this is my opinion and only my opinion. I am not medically trained; I've just had RA for many years and have long standing personal experience with my case only.
Sam, I wasn't questioning your experience, just that you were being overbearing to the point of rudeness. Not everyone has the same experiences with cortisone injections.  I've had my knees and shoulders injected multiple times with great success. I'd say its definitely worth a try.

Good luck to you!Sam, the discoloration I experienced happened on my wrist. I also had multiple shots to my shoulder and knee with no problems at all. I don't know how I feel about the cortisone, but I do appreciate the numbing meds they add to it! Thank you for all of your advice!  I see my Rheumy in Dec, so I will see what the suggestion is.  I like to go as informed as possible.
 
Nori
I used to get them monthly, don't regret them but they did cause other probs. I am back to square one now. I have to get a pred pack when it gets bad, prob is theyonly last about a month for me....actually 2 weeks then I suffer and in pain the other 2, will have to talk to internist about it.

Cannot afford Rd up here, insurance through Michigan less than welfare will not pay for it...but there has to be a loop hole.

If the Kenalog is what gets ya through the hard time then use it for a better life. Worry about the consequences when they arrive.Lots of replies.  Thank you everyone.  And thank you, Sam1234.  It sounds like you have had quite a lot of experience with these types of injections, and I appreciate you taking the time to post your reply to my question.
Regards,
Nori

I also have had many injections, knees, hip (bursitis), wrist, shoulders these were all done by my ortho doctor. My Rheumy was aware of me getting them and agreed that I get them. For awhile I was going every 6 weeks...I also had mixed results. Mostly with the flair that I experienced after the injection. Sometimes I would flair and the pain was horrible and other times I would get good solid results. I had a surgeon inject my spine twice. This really did nothing for me so I opted out of the 3rd injection.
I have been doing really well on my meds lately. But I will say that the old familiar sore and stiff joints have been acting up the last few days 
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