About Spelunker | Arthritis Information

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Well,

 
I must say that it is somewhat bizarre. I'm not sure of what went on but I do miss some of Spelunker's postings. I didn't read alot of her stuff, but enjoyed her eloquence type posting. She seemd to be quite well educated. I still believe that Spelunker is/was deathly ill. Nobody has proven otherwise, so I still believe. Just because Pincushion told us of how her elderly grandmother was that had the same disease, means nothing to me. As a matter of fact, I read that that their disease could be absolutely different patient to patient, and affecting different areas and organs. I would however ask that Spelunker come back and explain some things. Even if we were punked, Kudos to her. It was enjoyable. I think that too many people take virtual life too far. I do however have a problem or at least suspicians about Pincushion's post on the "Hoax" thread:
 
[Start Pincushion Quote From Hoax Thread] "I doubt if i will be allowed  back and i feel i owe it to you all to tell you what i think a lot of you have been thinking.
This has got to do with Shug/spelunker.
Shug came onto our board     and was accused of being a troll which she denied and carried on posting about her illness which you are all aware of.
Shug spoke in a manner   of her own  and told us a bit about her life, a lot of it didnt make sense as one minute she was very ill and the next day she was having her toes removed but then went walking..she had a computer in ICU with her....maybe this happens  in the USA .??
Shug renewed her  vows with dear Bob but chose not to post photos  and also had nearly 100 stitches in her face...at this time I was sent a pm telling me that shug was a fake and she will die, there will be another person come on the board telling us of her death...this had been seen before. I wasnt suprised as it was my thoughts for  long time as it was a lot of other members.
 All of a sudden Shug passed away and abazina comes on here but none of us are able to express our condolences and abazina talks like shug even has the same spelling mistakes...Abazina tells us that shugs name is Pope..so we have "Shug Pope" from Arizona...and joan ( abazina) her friend.
The medical centre havent heard of anyone they are treating or have been treating for amyloidosis and lo and behold i am sent this
 
Joan Pope ( joan being abazina's  name ), Pope being shugs name
married to bob pope, bob being shugs husband and apparently joans husband
Both shug and joan use the same words to speak with, both use the same spelling mistakes
Vista sierra was a former home of joans and its where shug speaks of.
 
I will not be sending a donation for shugs memory until i know whats going on. It is up to you to make your own minds up on this and no doubt you will all think ive lost my mind but a least another 20 people have expressed this concern.
I think we might be at the centre of a hoax and if im proved wrong i will make HUGE apologies but the info i have been given says other wise." [End Quote]
 
First off, Pincushion cannot blame anyone for not giving up personal pictures and the blame is laid at the feet of Pincushion and her fellow birds. The ones that spend all their time on the active users page tring to trap someone. second, Pincushion was sent a PM telling her that Spelunker was going to fake her death and that another person would come to the board and explain the fake death. To me, certainly someone close to Pincushion is involved or psychic. So who told Pincusion and how did that person know? Seems like all Pincushion would have to do is backtrack and she would have the answer that we all want to know. Third, what health centre gave Pincushion anyones personal health information. What centre was it Pincushion? I would like to call and see if they give me any personal information. Pincushion said she would apologize if she's wrong? That would be a new Pincushion. Fourth, who sent Pincushion all the information about Pope and Abazina? Seems like they are complicit if indeed there is a hoax.
 
A question that i have is why would Spelunker write a post in HTML format and save it and then post it to this forum when she could have just written it on the forum format. What if JHardy stands for John Hardy who has a wife named Lori? Oh, PhatGirl, if i can make a suggestion. You posted a link to a fallen Utah Trooper and implicated his Relation to a internet death fraud. Go and delete that link that you posted and delete any mention of it. I expect it from Joonie, she lives dangerously, but you seem much smarter than that. It's not likely that the Troopers family will ever see this but hey, who would think that the artist of a picture I posted would be contacted by a member here to try to grief me? Maybe the person writing the tribute is part of a "hoax" and maybe she isn't. Do you really want to take that chance?
 
None the less, I hope that some one will come and talk with us about it, even if we were punked. Oh, Babs, didn't you have Spelunkers email address? Have you tried contacting her if you don't mind me asking. Anyway, until I hear otherwise, I still believe Spelunker is Spelunker and is deathly ill or has passed away.
 
LEV
levlarry2009-11-19 11:04:41"A question that i have is why would Spelunker write a post in HTML format and save it and then post it to this forum when she could have just written it on the forum format.'

Some people prefer writing posts (especially longer posts) in their word processor and then pasting it into forum posting boxes, for various reasons (formatting, spell checking, past problems with long posts being lost due to connection glitches, etc).  And if you don't copy and paste in plain text into a forum posting box that accepts HTML coding you can wind up with a post that "links" to a file on your local hard drive.
i have tried multiple times to contact her via her email address(s)  :(
 
I, too, adored reading Shug's posts.. and her PMs were hysterically funny when she would let her hair down a little bit more than on site.... 
 
regarding the html posting... I wondered if she didn't keep a "file" with alot of data.. she was able to recollect things that others had said that I had long forgotten.. or would have had trouble keeping the stories alltogether straight.
I do know of one other cyber "friend" who does just that. (no one on this site) Keeps a file folder on her PC of each person she "knows" online.
 
regarding the losing posts, I do select and copy all posts before replying since I've lost loads of long postings to the failure of the internet...if I were a worse speller I would use a document program to spellcheck.
I have spell check plugin for firefox  I feel a sense of loss and I sincerely miss her and her posts. I felt she was phony and rude to some ppl. So it doesn't bother me at all not to see any more of her posts.I would say she is still here, just a different name. [QUOTE=Bodak]I would say she is still here, just a different name. [/QUOTE]
yeS I agree
Who was she rude too? 
 
[QUOTE=kelstev]I felt she was phony and rude to some ppl. So it doesn't bother me at all not to see any more of her posts.[/QUOTE]
I loved reading her post's.  The first thing I did in the morning was read about Shug.  If nothing else, it was a well written book.   GG,
 
Exactly, reading her posts were like listening to a PBS t-v documentay with the very literate older British gentleman. Anyway Bodak, I hope she is still here. I tremember when she was trying to give joonie some advise and members and joonie accused her of attacking joonie and i had posted something, Spelunker PMed me kind of distraught that joonie and others thought that she was being "rude" when as she explained, she was trully trying to give joonie some ideas to help her with her life struggles and her esteem. I PMed Spelunker and told her to not worry about it. Joonie wasn't looking for advise. Joonie was too smart for advise. Like i said, I didn't read alot of Spelunkers posts but it seems to me that she went out of her way to be more than polite and non combative. That coming from me, a member that will go way out of my way to make sure someone knows I'm being rude.
 
LEV
Even if we were punked, Kudos to her. It was enjoyable. I think that too many people take virtual life too far. I do however have a problem or at least suspicians about Pincushion's post on the "Hoax" thread:LEVLARRY About Spelunker:    How could you say "kudos" to someone that supposedly faked her death, hurt people in the process, and brought on another person to make sure that this person endeared herself to members of the board so she could tell us all about Shug's "death".   Granted I am fairly new around her, but I don't get it?   This is the type of person that you admire?
Lori
TINKSTER, HOWS ABOUT REPHRASING THAT SO WE CAN ALL UNDERSTAND. BUT WHAT YOU ARE HINTING AT IS TRUE.allknowing2009-11-19 21:34:56Lev...SHE... is not real....so she didnt give joonie any advice
There is no way she had all that going on and posted on yhis board, unless she was some medical miracle....didnt you see the post that she wrote after the Shug posting that she was alive and well and someone had faked her postings...duh!!!
Yep, She is alive and kicking alright, posting madly as someone else. Tinkster,
 
You are fairly new and that's probably why you don't really know me. I have said it so many times before that i have real friends and relatives that love me. Sometimes I think they hurt more for my pain than i do. Altho I enjoy and respect some members here, they including you, are virtual. I take you all with a grain of salt and sometimes a Heineken mixed with V-8 and tabasco sauce. This is the internet. You don't know what's real and what's not real. See? And Tinkster, I think that your key word in all you said is this word, "supposedly". In other words, you just don't know. I have learned from what is real and true to not trust anything that Pincushion and her crew are pushing. She has an honesty rate of about 5%. My advise to you Tinkster is to keep in mind that this is a virtual world. Keep your love for those that you know are real and have a real love to return, the type you can see and feel. Or not. To me, it's all entertaining. Kudos to her and you, because you have given me some entertainment this morning.
 
Bodak,
 
She had a lot of good information and support. It's not like she was here just to spam a website that she is trying to get to money status. Know what i mean, Jelly Bean?
 
Pincushion,
 
Duh to you too. Look, you did your best to destroy someone again. Maybe this time it worked out well for you. I don't want to take away your happiness, seriously. But hopefully Pincushion, you and your group should find something more rewarding than trying to cause havaok and termoil in members of this forums life. Maybe yous should think about some deserved apologies to those from the past that yous tried to destroy. Just a holiday thought.
 
LEV
 
[QUOTE=levlarry]. My advise to you Tinkster is to keep in mind that this is a virtual world. Keep your love for those that you know are real and have a real love to return, the type you can see and feel. Or not. To me, it's all entertaining. Kudos to her and you, because you have given me some entertainment this morning.
 
 
 
LEV
 
[/QUOTE]
 
So since this is a ' virtual' world, did Wonderwoman give you some entertainment Lev?? Just wondering, given your wonderful words of advice and concern on her desperate thread seeking advice on how to end her life. I am totally disgusted. At you and at all the others who have not stood up and voiced disgust at your words. And they know who they are.
Lyndee,
 
I am only responding to you only in case a member that i respect, misunderstood my response to WonderWoman. Suicide is a very personal consideration and decision. I don't know of her misery or problems. I know that when I was in such great pain, I somewhat considered suicide. I did however enjoy WonderWoman and certainly appreciated her support of me. I just didn't want to be a voice of reasons without knowing the reasons.
 
Lyndee, may I suggest that you spend more time trying to make yourself look good and less time trying to make me look bad, it only makes you look bad and me look good.
 
LEV
[QUOTE=Bodak]Yep, She is alive and kicking alright, posting madly as someone else. [/QUOTE]
 
just so that we don't all have to hear that everyone "KNEW" who is really Shug... when and if it is ever exposed...
 
please..... share your wealth of knowledge with us now, won't you??
 
since you all KNOW so much about this??
[QUOTE=babs10][QUOTE=Bodak]Yep, She is alive and kicking alright, posting madly as someone else. [/QUOTE]
 
just so that we don't all have to hear that everyone "KNEW" who is really Shug... when and if it is ever exposed...
 
please..... share your wealth of knowledge with us now, won't you??
 
since you all KNOW so much about this??
[/QUOTE]
Oh my!  More cloak and dagger stuff....Let me guess,  Colonel Mustard did it in the library with a candlestick
 
Well, that's my theory....
 
If I'm wrong, please do share Lev, the board actually settled down for an entire week. Why did you feel the need to bring all this up again? Many people were hurt by what Shug did. Why can't we just give her a proper burial and forget her? Do you enjoy this?[QUOTE=lorster]Lev, the board actually settled down for an entire week. Why did you feel the need to bring all this up again? Many people were hurt by what Shug did. Why can't we just give her a proper burial and forget her? Do you enjoy this?[/QUOTE]
 
why did you ahve to come to the board and avoid all those wanting and needing support and attack lev ???
 
pot black lorster
Babs You are no better, just a sniper [QUOTE=Bodak]Babs You are no better, just a sniper [/QUOTE]

And what does that make you?
[QUOTE=levlarry]Tinkster,
 
You are fairly new and that's probably why you don't really know me. I have said it so many times before that i have real friends and relatives that love me. Sometimes I think they hurt more for my pain than i do. Altho I enjoy and respect some members here, they including you, are virtual. I take you all with a grain of salt and sometimes a Heineken mixed with V-8 and tabasco sauce. This is the internet. You don't know what's real and what's not real. See? And Tinkster, I think that your key word in all you said is this word, "supposedly". In other words, you just don't know. I have learned from what is real and true to not trust anything that Pincushion and her crew are pushing. She has an honesty rate of about 5%. My advise to you Tinkster is to keep in mind that this is a virtual world. Keep your love for those that you know are real and have a real love to return, the type you can see and feel. Or not. To me, it's all entertaining. Kudos to her and you, because you have given me some entertainment this morning.
 
Bodak,
 
She had a lot of good information and support. It's not like she was here just to spam a website that she is trying to get to money status. Know what i mean, Jelly Bean?
 
Pincushion,
 
Duh to you too. Look, you did your best to destroy someone again. Maybe this time it worked out well for you. I don't want to take away your happiness, seriously. But hopefully Pincushion, you and your group should find something more rewarding than trying to cause havaok and termoil in members of this forums life. Maybe yous should think about some deserved apologies to those from the past that yous tried to destroy. Just a holiday thought.
 
LEV
 
[/QUOTE]
 
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Author
levlarry
Senior Member
  

Hi Club,

Missed me? So any way let me just say that the way I responded to Codelias rant was very appropriate. Like I said before if it had been me or another non-member of your club, yous would have attacked like pirrahnas, all for one and one for all. My response to her statement that the use of goddamn in her country is just common was right on. That she thinks that we are all stupid enough to believe that is only 99% correct because I'm not that gullible, I'm the 1%. You members are like, "Oh yeah, we understand that culture, but burkas make yous furious." I also had a problem with cordelia for accusing some of shooting newbie11 "out of the water" and nobody did. Even there she proved her worthiness of membership to your club. She took some words not meant as derogatory but forthright and turn them ugly for her use. I still haven't seen her post anything against you peoples own member absolutely shooting a member out of the water. Remember this?

Lynda M
Senior Member
Posted: 15 November 2007 at 5:39pm | IP Logged

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JasmineRain
Senior Member
Posted: 15 November 2007 at 5:40pm | IP Logged

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Oh yeah, she gets one of those free passes, you know the she belongs to "our club" free pass, duh, what was I thinkin'? Now let me go thru this one by one as I usually do.

Sula,

Why did you wait for me to post before you say,

Lev--

How about giving it a rest? 

C'mon, there were maybe twenty posts before me but you wait for my post to say something like that? Oh yeah, the good old membership one for all and all against him, bias and predjudice is yous creed, I forgot for a minute, not. Why didn't you give it a rest sula, membership requirement?

Blessed,

I have no pinned up frustration and I'm not hateful I am honest and fair. If my mother had posted what Cordelia posted, I would have said the very same thing, without predjudice or bias. As far as using honey to collect flys, you collect flys Blessed and with the things you say and do, I really don't think you need honey either, I think they are just naturally attracted to that smell.

Lev...got a lot of pinned up frustration? Why be so hateful. You'll get more flies with honey! I said, "I found the title of the thread offensive" but nothing else. She has every right to voice her opinion about the free for all that has been going on here

You say that she has every right to voice her opinion, and what, I don't because I am not one of your fellow members? You are a very predjudice and bias person. You are very selectice to who and what you scold or lecture to. I find you very offensive because you have always been so voicerous about your deep religious beliefs. You are a justification christian, you justify the unchristian like things you do. People like you give christianity a bad name and you still steal advertising from this for profit forum where advertising is supposed to be paid for. This forum was paid for with hard earned cash, don't worry about it Blessed, just justify it in your own seared mind. You are in the right membership but you should quit dragging god thru your mud, just a suggestion. And your little smiley face clappy hands when another member attacks me, you are just another virtual smiley face to christianity.

Linncn,

I notice that it's very easy for you to attack me without concern but I've noticed that the few times that you somewhat said something when you thought that I was right you kinda tiptoe and always add something to assure your fellow members that you aren't going against the group. What a surprise. That I use words like forum slug offends you? A person that uses another forum to steal advertising is a forum slug. Linncn, a thief is a bad person, period, even if that person belongs to your membership. If you owned a company and someone was stealing from you, what nice names would you call them? A person that makes false statements against another person for the sake of damaging that persons credibility, the person making those false statements is a lowlife, I know that you would sugar coat it, especially if it were one of your fellow members. I'm still waiting for Hillhoney to show the post that I attacked her for no reason. She posted that I did and when I asked her to repost the attack she all of a sudden disappears. Filthy to me is what arriscolwell said about the names for a vagina, to me that's just nasty, filthy. I know to you as long as it is of your membership, it's just cute, I still say, she's filthy, and then she invites twelve year olds to enjoy her filth, it's criminal, it's that simple, like she says, men have a problem with dirty words, she should have just said that yous in the membership don't. I'm not "coming out fighting" but I'm standing my ground. I don't need to attack someone for the sole need of virtual women to stroke my ego, right Bodak? I have real women in my life, know what I mean Bodak?

Bodak,

At first I was somewhat surprised to see you attack me altho you have in little snipets in the past. After re-reading your attack and your follow-up posts after your attack I wasn't surprised at all. Kind of a lead in to posting some of your photos. You know Bodak, what ever strokes your ego but let me assure you that if you attack me and attach a photo that a four year old took by mistake by sitting on her "Barbie Doll" camera, these women would haved ooo'ed and aaaa'ed about the photo. You posted this?

I'm sure in your country if your parents come over for dinner you tell your husband, "Tell the gaddamn kids that their goddamn grandparents are here." When you say hello you probably say "Hello, goddamn you."

You are the one being grossly offensive Lev and really need to seek some professional help
Or take a jump into a nice cold bath to cool off.
You have your feathers all ruffled over nothing.

Grossly offensive? Professional help? Have you been seen lately? Do you have any documenation to show that you have some credentials to say who does and does not need professional help? Maybe you need to jump into a nice cold shower, you seem to be the one that will forfiet right and wrong to have your ego stroked, not me, I have real women and need not join a www club, throw my morals away just to have my ego stroked by virtual women, but hey Bodak, ya never know, something may come from it, keep on rolling, you just may attract a mate, know what I mean Bodak?

MaryBlooms,

Have you ever lectured or corrected anyone else on this board? Let me ask you this, have you ever corrected or lectured one of your fellow club members attacking me or are you somewhat a selective christian. Talk is cheap MaryBlooms, very cheap. Why bring god into your conversations and arguments if you don't bring god into you. If you think that god is as one sided as you are, as bias as you are as predjudice as you are, then fortunately you have a false god. Your forgiveness for your friends is without end. Your attacks on me are quick and without good thought. As far as Cordelia being of god, I don't care, had nothing to do with my feathers being ruffled, right Bodak? If my mom had posted that, I would have said the same thing. If I had posted it, MaryBlooms, again I say to you, you would have asked god to take my worthless soul, that MaryBlooms is a selective christian.

Look,

A black raven, man your battle posts, attack, attack, attack. They are posting what you don't like, attack, attack. Shouldn't you first PM the black raven and see if she will join your club? Yous are shameful with-out end, oh just attack.

LEV

This is how Lev treats the members of this board.  He cannot stand to have the members get along so he has to stir it up.  Posts from over a year ago are brought up just to get it started. 
Those that liked Shug can still like her and those that thought she was a fraud can still think that so why did we need this opening post??? 
TeedOff2009-11-20 11:36:05 [QUOTE=JasmineRain] [QUOTE=Bodak]Babs You are no better, just a sniper [/QUOTE]

And what does that make you?
[/QUOTE]You'd have to be pretty thick not to be able to work that out.
I'll spell it for you, Just a sniper..
Would you like that in bold.
I have no reason to tell anyone where i get my info from..i just know its from a reliable source. Once again Lev..i wasnt happy to post about shug, people like janie, waddie etc were very hurt by it all. [QUOTE=babs10] [QUOTE=lorster]Lev, the board actually settled down for an entire week. Why did you feel the need to bring all this up again? Many people were hurt by what Shug did. Why can't we just give her a proper burial and forget her? Do you enjoy this?[/QUOTE]



[/QUOTE]

pot black lorster??? you have a lot of room to talk babs. geezWait, I could be wrong...It could have been Mrs. Peacock in the kitchen with a rope [QUOTE=levlarry]Lyndee,
 
I am only responding to you only in case a member that i respect, misunderstood my response to WonderWoman. Suicide is a very personal consideration and decision. I don't know of her misery or problems. I know that when I was in such great pain, I somewhat considered suicide. I did however enjoy WonderWoman and certainly appreciated her support of me. I just didn't want to be a voice of reasons without knowing the reasons.
 
Lyndee, may I suggest that you spend more time trying to make yourself look good and less time trying to make me look bad, it only makes you look bad and me look good.
 
LEV
[/QUOTE]
 
You do it all by yourself Lev.
Sarcasm is the lowest form of wit!!!!!![QUOTE=Mrs Pincushion]Sarcasm is the lowest form of wit!!!!!![/QUOTE]
Everyone is entitled to their own opinion 
 
I agree with Lord Byron
 
 
"Fools are my theme, let satire be my song"
 
 
 
Lorster,
 
If you think that I am going to check in with you to see when I can post and what i can post, you are more scrambled than I first thought. I think that there was too much that was and wasn't answered. So much insinuation and opinions. You know how I feel about that and you know how I feel about you and your fiends tellin more than or less than  the truth. It would be so refreshing if Pincushion would rewrite the HOAX" thread and post only what she knows to be the truth. I mean c'mon, maybe in the UK you can call a medical facility and say, "Hey, this is Lady Pincushion, I need the personal information about Diane." and the facility give it to her. I want the name of the medical centre she called and they gave out personal information. Is that asking too much? Do you really believe that some "confidential informant" contacted Pincushion and told her that a fraud was about to take place? Seriously? That would mean that Spelunker told someone that she was going to fake her death and her confidant was a confidant of Pincushion? Does that even make sense? Why would this person be unwilling to come forward and clear up the slop? Pig slop. To listen to Pincushion, you would think that i wrote the "HOAX" post. Because I talk about Spelunker, she attacks me for the pain to Waddie and janie and all. Newsflash, Pincushion, if you are so concerned about hurting people, don't post it. But then, you looked at it as your moment of glory, your greatest AI moment in AI history Pincushion. Anyone that reads your "HOAX" posts knows the euphoria you were feeling. Like I said before, Lorster, you and the rest of the "group" need to find another way to get good feelings than the way yous usually do, by causing havoc in other members of this forums lifes.
 
LEV
Lynne I wasnt talking to you but if the shoe fits then......
Lev..I never called a medical faculty and said that I wanted  personal info on anyone. I emailed and enquired about a trial  programme on Amyloidsis as I was interested for my aunt...that is hiow i gotmy info from there..as infact I was interested for my aunt..they told me there was no such programme and thats when the info i was sent about shug made me realise it wasnt true...so get your facts straight..and apologise for lying as to what i actually said.
LEV READ THE PAST POST...SPELUNKER DID COME BACK ON AND SAID IT WAS A HOAX....
It was no moment of glory but Lev thats how you would see it if you had got there first...and please explain this word YOUS to me..its really confusing
[QUOTE=Bodak]Babs You are no better, just a sniper [/QUOTE]
 
Bodak... a sniper you say?
 
I post more in contribution of members than the 6 of YOU together....
 
at least I don't sporadically post insinuations of knowing the answer to the question: Will the REAL SHUG please stand up?
 
please.
 
 
there are 6 bodaks ?????LOL. [QUOTE=Mrs Pincushion] Lynne I wasnt talking to you but if the shoe fits then......


[/QUOTE]


You didn't answer the question.[QUOTE=Mrs Pincushion]there are 6 bodaks ?????[/QUOTE]
 
in a manner of speaking
[QUOTE=Mrs Pincushion]Lynne I wasnt talking to you but if the shoe fits then...... [/QUOTE]
Generally if the shoe fits...I buy it! 
With so many things going on this endless, petty stuff has to continue. No one's ever going to prove it or solve it, so how about everyone just dropping it? Just agree to disagree.
Sam, I think people with RA just have very strong opinions...must be all those steroids.Touche.Sam, are you new?  Oct. 22 2009 is less then a month ago and already 133 post.   Do you have RA?  I would like to know something about you and your RA.  I have RA, 27 years now.  It can be hard to live with at times.Its very hard to live with I agree. 10 different meds, 7 different allergies to these meds, lots of meds,no meds, wheelchair, no wheelchair...thats just my story, Rusty and others have their own stories that are just as hard and some even harder.
Rusty I hope you are okxx
I know,  Im on 12, plus an injection once amonth.  A lots of ups and downs. Doing great right now besides skin rash.  It would be good to hear about people and how they are handleing their RA.  We're kinda got away from the reason we're here...I like a good fight every now and then...keeps it interesting...LOL[QUOTE=Lynn49][QUOTE=Mrs Pincushion]Lynne I wasnt talking to you but if the shoe fits then...... [/QUOTE]
Generally if the shoe fits...I buy it!  [/QUOTE]
 
Me too!
back to RA...   I sometimes have to use a wheelchair, most times I don't.  But I have perm nerve damage in my leg from a back surgery gone bad in 2007.   I have a lot of difficulity walking far.   I also, because of my back, am uncomfortable sitting for  long periods of time.   I don't understand the crushing fatigue that seems to go along with the RA, when  I have a flair the fatigue is so difficult to deal with.  The pain, stiffness, sore joints, I can take prescption strength Ibupropfen if need be, plus I have steriods I can take, plus the Plaquenil, I also take Roxicodone as needed.   But the fatigue, wow, that really really gets to me.   Half the time I don't sleep right anyhow because of the extreme back pain, the other times its the RA.  I would love to wake up pain free.  I have had a couple days like that, its truly wonderful, what remarkable days those are.   Too far and too few between.
 
Lori
inflamedone:  the pic on your profile of your grandson is precious.  I have two grandsons,  ages 3 years and 18 months.  They are the light of my life, I love being a grandma.   I LOVE being a young grandma LOL.  I never realized just how much joy grandchildren would be, its a precious gift for sure.
 
Lori
Sam, are you new?  Oct. 22 2009 is less then a month ago and already 133 post.   Do you have RA?  I would like to know something about you and your RA.  I have RA, 27 years now.  It can be hard to live with at times.
 
~~~
Relatively speaking, I guess I am new to this website. I'm in the middle of a flare, which is the reason for so many posts. Plus, I'm extremely opinionated.
 
History, the short version:  Diagnosed with Hypothyroidism about 18 years ago, then pituitary microadenoma, then CPPD, then PsA [without the skin component] - all in the space of 3 years.  Then OA. Have had multiple surgeries for tenosynovitis and cartilage. Seronegative RA [checked 2 or 3 times, though years ago]; planning to have it rechecked in December since it's been a while. Also suspect I now have Ankylosing Spondylitis and Cricoarytenoid Arthritis. Frequent flier of Kenalog - my saviour. 
 
Can't take the biologics because I have latent TB. Have done reasonably well on MTX with Celebrex. Recently, however, I've been having more flares and upping the MTX.
[QUOTE=Lynn49][QUOTE=Mrs Pincushion]Lynne I wasnt talking to you but if the shoe fits then...... [/QUOTE]
Generally if the shoe fits...I buy it!  [/QUOTE]
This is the best laugh I have had all week...priceless answer Lynn!!!  Yes lynn is a regular comic.....!!![QUOTE=tinkster42]inflamedone:  the pic on your profile of your grandson is precious.  I have two grandsons,  ages 3 years and 18 months.  They are the light of my life, I love being a grandma.   I LOVE being a young grandma LOL.  I never realized just how much joy grandchildren would be, its a precious gift for sure.
 
Lori
[/QUOTE]
 
Thank you Tink...I love being a young Grandma as well
 
~~~
Relatively speaking, I guess I am new to this website. I'm in the middle of a flare, which is the reason for so many posts. Plus, I'm extremely opinionated.
 
History, the short version:  Diagnosed with Hypothyroidism about 18 years ago, then pituitary microadenoma, then CPPD, then PsA [without the skin component] - all in the space of 3 years.  Then OA. Have had multiple surgeries for tenosynovitis and cartilage. Seronegative RA [checked 2 or 3 times, though years ago]; planning to have it rechecked in December since it's been a while. Also suspect I now have Ankylosing Spondylitis and Cricoarytenoid Arthritis. Frequent flier of Kenalog - my saviour. 
 
Can't take the biologics because I have latent TB. Have done reasonably well on MTX with Celebrex. Recently, however, I've been having more flares and upping the MTX.
[/QUOTE]
 
Sam, I was also Diagnosed with Hypothyroidism in my mid twenties...to me it seemed to start the whole disease process in my life...First the thyroid, then later MS and now a year ago RA...I asked my General Doctor and MS doctor and RA doc if this is normal....
 
The RA doc said, "well we know your body alread makes the antibiodies"
 
The MS, Doc said he has seen it many times...MS is more common than people think... he also said so many people go undiagnosed with MS...
 
The General Practioner said it is not uncommon for autoimune disease to "stack" up on each other...
 
Sounds like you and I have a deck "stacked"....Hope you feel better from you flair and welcome to the board..
 
Lisa
WOW I was diagnosed with hypothryoid about 13 years ago and thats when things started going down hill healthwise for me too.  Before the hypo  I had migraines, I was diagnoised with those in 1991, but that was all.  After the hypothroidism came all my back pain and then the RA.   I now have doctors arguing about the RA diagnosis because my labs are all negative yet I seem to fit the RA diagnosis so well anyhow.  I was checked for MS because some of the symptoms fit too but the labs were all negative.  The only thing that is not negative is the way I feel, my sore, swollen joints, the terrible fatigue, the stiffness that lasts.  Also, I am in the oteopenia range, thats inbetween normal and osteporosis.   I have arthritis in my neck, back, and knee, thats where they found it so far at least proven by MRI and the very mild one in the finger and wrist.
Lori
[QUOTE=Dalmatinka][QUOTE=Lynn49][QUOTE=Mrs Pincushion]Lynne I wasnt talking to you but if the shoe fits then...... [/QUOTE]
Generally if the shoe fits...I buy it!  [/QUOTE]
This is the best laugh I have had all week...priceless answer Lynn!!!  [/QUOTE]
Sometimes you just have to laugh 
 
 
#1InflamedOnline  and Tinkster42:
 
I recognize that hypothyroidism [now Hashimoto's because apparently mine is the autoimmune form] is fairly common, but the next time you're stuck in a waiting room waiting to see your rheumatologist, ask the other patients if the hypothyroidism seemed to be the launching pad for their rheumatological diseases. The answers might astound you.
 
My hypothyroidism was diagnosed shortly after I was under a huge amount of stress - probably one of the most stressful times in my life. It was like a domino effect from that point on. Sound familiar?
 
My flare is winding down, thanks.....it wasn't a huge flare this time, for which I'm really grateful. But it seems to have introduced my lower back to this madness. After a while you just go with the flow.
 
Hi Sam, I think it is a domino effect.  I started off with a diagnosis in 1967 of Sarcoidosis, hypothyroidism with goiter in 1979, and RA symptoms started in 1985 but not diagnosed with RA till 1999 when I had a blown disk at L5/S1, diagnosed with PsA in 2005.  I don't know what the next 10 years will bring but I hope I've reached the end of the line with new auto-immune diseases.  I think it's very common to have this effect.  I'm glad you're at the end of your flare.   Lindy[QUOTE=Lynn49]Wait, I could be wrong...It could have been Mrs. Peacock in the kitchen with a rope [/QUOTE]
At Least you can admit you COULD be wrong....
 
I like your humor!!!!So anyway,
 
I really didn't see whaer Spelunker admitted to having something to do with a hoax. She did mention "someone she trusted". but, I am not saying this or that because(ahem) I really don't know. I would however like to fine the post where Spelunker gave her medical centre name out, the one that Pincushion contacted because I would also like to contact them. So Pincushion, I'm still waiting for that information. And to Spelunker, feel free to PM me. You have my word that no one will ever know without your permission. Hope that you are well.
 
LEV

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