Remission | Arthritis Information

Hi All
I hope Christmas was not too exhausting, and you are enjoying the downtime now. It is a long time since I have been on the site, and it is mostly good news .

I am still on IMI methotrexate weekly, but have managed to reduce prednisilone to 3 1/2 mgm, and am going OK. YAY

The rheumy in Dec put a bit of a 'spanner in the works' and said that when PMR has been present for 4 yrs , a remission is highly unlikely!! 20% chance he said. Any comments??

So of course, I am out to prove him wrong. Still trying to rid my body of high levels of mercury, so I am hanging out thinking this is my problem. The chelation is a slow process.

But, I am well, delivering the local paper, 5 days a week,(with my dalmation's lead around my waist), it takes about 1 1/4hrs, and resting when I need. Definitely have learnt to prioritize, and getting out is so important to our health....so blow the housework!

Just sending my love to all, as 4 yrs have actually just disappeared,and I am glad the memory of those awful days, when I was not on enough prednisilone, and could not get up off the floor in the morning, have faded in my memory bank.

I wish you all a much better New Year, pain free and with smiles. Hi Zalli

I have heard two different theories about the length of time poly stays around. One aquaintance has had PMR 20 yrs and has maintained a fairly active lifestyle on 5 mgs of pred. The other, a friend, has had PMR for about 4 yrs now and is still decreasing the pred and is doing very well. If she has a flare she goes back up to 5 mgs then back to her current dose. I think she is on 1.5 mgs right now. She is doing very well and hopes to be rid of old poly soon. After about 3 yrs, I say about because I was at least 2 yrs without a diag., my poly just dropped away. My Dr. thought I was nuts but I felt just awesome until 3 weeks later when something new started...fibromyalgia. Not fun but I have to live with it as it does not go away.

Happy New Year to you too and my very best.

Pat

TeedOff2009-12-30 14:41:27How did you get the high levels of mercury?Hi Jen and All, Happy New Year to you too xx gosh did we have Christmas!!!

Glad to hear you are getting on with life in spite of PMR. I have a lovely picture in my mind, of you and your 4 legged friend delivering newspapers!
As you know we started this ## about the same time so I'm not impressed with the person who says we may have this forever. Have to add thou I have been in contact with a lady who has had PMR 4 times( she is now 91 years young) and her 2 daughters also have been diagnosed as well.

I am on Tramadol and Osteo Panadol for pain. Plaquenil and 15mg Methorexate have been added. Maxalon for nausea for 2 days after MTX.
I am at 1mg pred now and its not enough!!!!!
I am having difficulty and pain in knees getting up out of a chair, rolling over in bed and fatigue happening again. I felt better a few months ago when Edep ( just a small dose antidepressant) was added and this has really helped to relaxed the muscles, but then my Rheumy said to drop down the Pred.... and now my SED and CRP have now gone up again!!!!
My Rheumy wants me to up the MTX but my liver function tests are going up so my regular GP says not to. Also having a lot of odeoma (sp) legs and ankles especially, 2 lots of diuretics are starting to work. and having bloods done every week and a phone call from my GP who I am going to miss terribly as he is moving on the 15th Jan!
I will just have to train / teach another Dr about PMR!!
I planned to just check here tonight quickly, but now I have got all that off my chest I will try and get off the chair and stumble to bed

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