HI guys, I am sitting here laughing to myself and wondering if I am the only one who gets confused like this!
I came on to browse and there are threads that are I must say very entertaining but I cannot mentally keep up with them, so and so is supposed to also be someone else and then this person portrays themselves as another saying the same stuff and giving themselves away, I have to read and reread as I get so confused, and then the old posts being dragged up, I have to double check that they are old as I think I am in the present.
I guess I'd just like to say that you can guarantee I would never do any of this as I would give myself away straight away, I get confused reading my sons tuck shop menu and it all becomes too much, the simple stuff, so I have been doing little posting, not because I don't want to support but because my fatigue levels are off the scale and my brain fog/confusion is at its worst ever almost embarrassing at times, I am scared to go out at times as people must wonder what the hell is wrong with me!!!
A little catch up on me!
I did not opt for actemra (Tocsilzumab) due to the trials showing elevation of BP and Cholesterol, these things I have been fighting to get down for the last 12 months and have been somewhat successful but I am not willing to go backwards especially with my track
record of allergies to everything which scares me off straight away.
I am still on MTX managed to get it up to 20mg weekly which for me is immense, unfortunately side effects became too much and now back to 12.5mg. Saw Ortho to see if he could help with my feet, a clean out etc, he said he daren't touch them until he has to due to the nerve damage, he said if he cleans them he feels he will make them worse so higher doses of Endep and no more walking for exercise or anything substantial, he feels the unhealed fractures are going to fully break and I will require bone grafts, so he will wait for the inevitable! I broke my heart as being an ex athlete, all I had left was my walking and swimming. my walking leaves a lot to be desired I know but its nice to do it and take the boys, hubby and the doggy even if it does cause pain!!! Never mind, I always try and just concentrate on what I can do and I will continue to swim! I have now lost 6 kilos in 5 weeks and am feeling a little better than usual, except for fatigue its a killer! My spine and ribs from OA and RA are particularly bad but the injections from the pain specialist did keep it at bay for ages so I go back Tuesday to organise the actual burning of the nerves!
Liam is going fantastically well, enjoying high school and health is great thank God, he is back to his happy self, thankyou again for all your prayers!Will leave you in peace now and I hope I can come on a little more, regards Janie.
i am sorry to hear of all the problems that pred has caused you and that you are not doing well. I hope that you will have a better year this year, you deserve a break by now.
wtg on the weightloss!
Hey Janie, I am sorry to hear about your feet, it sounds painful and awful! I am currently having nerve pain in my feet and it sure has been an ordeal, I can't imagine what you have to endure! Let us know how it goes, will you?