short term memory loss..what did you say? | Arthritis Information

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I have noticed increasing memory loss for the past several months.  I feel like I really ditz out at times.  I have always been a relativly sharp person, and I  wonder if this is related to RA or just stress.  I have read that short term memory loss is a symptom of Lupus and I just wanted to get some feedback on anyone elses experiences.

I suffer from short term memory problems sometimes.  I find I am worst when I am   A) in a lot of pain and taking lots of pain killers    B)  sleep deprived     C) under stress   D) all of the above at the same time.  I think RA gives us 'D' a lot of the time so its almost inevitable that we will suffer from various seemingly unrelated symptoms.

I have taken to writing myself notes for EVERYTHING.  I just have to remember to read them.  My house is covered in Post-it notes.

Pam

 

I write myself notes, but I forget to look at them...its really sadI'm with ya everyone.  Even before the pain meds I had 'fog'..days when everything was just plain dull in my head.  I fight this as much as I can.  I love coffee

Coffee, my best friend!

Maybe some of the brain fog is due to the fatigue. I suppose if you are using all of your spoons to clean the house then you just cant remember the grocery list or the appt time etc.

I always had a fantastic memory, and I count on it - but I don't have it
anymore. I'm forgetting more things. Some of it is definitely pain. Pain
fills big chunks of my brain at times. Some of it is just fog. The
prednisone makes me feel "funny." I've heard people say it causes
anxiety. I don't feel anxious. Just funny. Not quite right (maybe they really
gave me clown pills? I'll sprout a big red nose tomorrow?).

It is really sad.

Boy I am with you on this one.   I get 1/2 way through a sentence and forget what I was saying.   My children (Thank God) have a great sense of humor when I do this (22 and 24).   So... we make jokes and poke fun at it all.  

I too was once a bright person.   I was a financial controller for a LARGE company.   I find it hard just to balance a check book now.

I do believe I am worse off when I have pain, stiffness or frustrated trying to do something or pushing myself.

Hang in there... and remember "inch by inch it's a cinch".   That's my saying anyway.

I do the same thing, I get half way through a sentance and I uh...mmmm...what was I saying? Oh yeah, I totally lose my train of thought.

FOCUS-FOCUS-FOCUS!!! aarrrrgggghhhh!!

MELODY

MELODY,

I agree with you on the blurred vision and not being able to read, with me even wearing the glasses does not help, the changes are from day to day. One thing with the memory I can attest to is that this was probably my first sign something was really wrong, I worked for a large transportation company, in thier safety and accident dept, while taking reports I would notice that during the report I was miss spelling words, putting words in that were not words I heard for the person on the other end of the phone and it got me in alot of trouble with mu super. So based on that info, my husband and I started watching for things, we kept track of when I would do these things and then usually within 24 hours I would have flares. One other problem with the memory ws that I repeatedly, repeatedly would ask questions over and over and over, or on the other hand would tell things over and over. Im not sure what the connection is, it still happens although not at the severity it di then. Has anyone ever left the stove burners on and caught something like the house on fire? or what about leaving the outside water on for days, or other similar things. Hmm. Blurred vision. I walked into the grocery store the other day &
couldn't see anything. It was scary. My prescription is only about 4
months old - and some days I can see just fine. I never thought IT could
be part of RA. Sigh.

I haven't forgotten anything critical - except paying the bills, which has
become so hard to deal with. It's almost impossible for me to finish a task
on time. Or to focus on anything for very long.

I have the blurries to sometimes.

Leaving the water on outside and flooding the yard? My husband does that all of the time. I always attributed it to laziness!

I am going Monday to get my eye exam. I have noticed light sensitivity for the first 24 hrs after my MTX shot.

I HAVE BEEN THE SAME WAY WITH ASKING THINGS OVER AND OVER AND THE TELLING OF THEM ALSO. I THOUGHT IT MIGHT BE BECAUSE I WAS ON ANTIDEPRESSANTS, BUT IT MAY BE THE RA INSTEAD. SEEMS LIKE EVERYTHING THAT GOES ON WITH US IS ATTRIBUTED TO THE RA!!!! I ALSO WEAR GLASSES AND HAVE A NEW SCRIPT BUT STILL HAVE ALOT OF TROUBLE SEEING. A DOC DID GIVE ME DROPS ONCE TO MOISTURIZE THE EYES. MAYBE THE RA DRIES THEM OUT. I WORRY SOMETIMES THAT IF I AM THAT FORGETTFUL NOW ABOUT THINGS HOW WILL IT BE IN ANOTHER 10 YEARS!!!!! IT IS JUST REALLY NICE TO HAVE PLACES LIKE THIS TO SHARE YOUR CONCERNS AND YOUR VICTORIES.

MELODY

Mel- stress and fatigue do make you fortgetful.  The eye dryness could be of concern.  Are you having dryness often and in your other mucous membranes?

 

hey crunchy, eyes mostly get dry when trying to read , but i had mouth dryness that drove me crazy. i mean no spit at all!!!!! i discuessed this with my rheumy and he did acupuncture on me and have not had dry mouth since!!!!! it was amazing! he has done that to several of his patients and even did a seminar for other doctors about it. that has been several months ago and it is still working. he also did that one day when i had a really bad headache and got rid of it. since he was just doin research at first, he didn't charge those of us who would let him work on us. i do worry about the eyes though. i should go in for an exam soon and i will discuss it with the eye doc. thanks for caring. melody

 

Same thing here.  I now carry a pocket full of post-it notes.  The only thing that has helped me with the fatigue and resulting short-term memory loss is Humira.  But that is still not all the time.  I think we need to allocate some of our spoons for short-term memory and cut back on housekeeping!

Pam

I have noticed some forgetfullness but I thought it was just me. I haven't noticed vision problems yet. Please don't tell me I'm not going to be able to read as much anymore. That's the one thing I really enjoy that doesn't take any energy. I guess time will tell. I'm still waiting to go back to RD, my test came back seronegative and now I'm wondering if he'll put me on any other meds. I don't feel any huge difference from the prednisone and plaquenil so far. I'm not sure what else I could be taking. Someone suggested herbal remedies but I'm not sure if they would react to the meds I'm on now.

Same here.

I run my own online business making custom invites and candy wrappers and when i did my orders the other day I was printing the wrong things, forgot to change something on one and some other things.

Husband tells me things & I forget, it drives me nuts.  I feel horrible when i do those things, of course i feel horrible all the time just from RA so it's just another little added quirk.

I am newly diagnosed with RA after being misdiagnosed with Gout
four years ago and wanted to comment about the memory loss.

I have always been able to remember phone numbers and names
(sometimes from clients that I had years ago) now I can't remember a
phone number long enough to make it from the phone book to the
phone to dial. I leave my cell phone at home, forget about meetings
and last night I forgot the name of a long time client of my
newspaper. I was talking to him and I was hoping that I wouldn't
have to call him by his first name.

I don't know if its the Ambien (I couldn't sleep without it) or just
stress from the new diagnosis (or taking medicines that I didn't need
for 4 years)

It's very frustrating, especially for loved ones that are used to the
"old" me.

 Mel,

     Dry eye and mouth is very annoying.

I too suffer memory problems. In 1998, before I knew I had r.a I joined a writing course. I have always loved reading books and finally had time for myself as kids had grown up. I started well enough but I noticed my hands and whole body would be stiff from writing. I ignored it. Then I suddenly found I couldn't remember how to spell the simplest words. My sentences didn,t make sense and I was forever having to re-write everything. I couldn't keep up with the deadlines so I gave it up and lost the course fee in the process. Then, in 1999, I got a job in a garage, where they trained you for 2 days, then left you on your own, and  went through 12 weeks of sheer hell cos I couldn't keep up with it. It was chaos. The more people came in, the more worked up I became,  andthe worse mess I made. like the first time I had to serve a  disabled man who regularly came in his little 3 wheeler disabled car. I had to turn on the pump inside the shop,then run out and fill up his car as I'd been shown, but I pressed the wrong button

 

I think my memory is also worse b/c I have ADHD and I dont take medicine for it anymore. I would like to get back on my meds for ADHD but I dont know if I can with all of the RA meds. I know it is just one more specialist, co-pay, Rx to fill etc.....CRUNCHY, MY SON HAD ADHD SO I KNOW WHAT HAPPENS WITHOUT YOUR MEDS. I DON'T KNOW HOW THEY WOULD REACT WITH RA MEDS BUT BE SURE YOU ASK YOUR DOC. I KNOW THAT ADHD MEDS ARE HORRIBLY EXPENSIVE TO THOUGH. IT IS SO SAD THAT ALL THESE MEDS COST SO MUCH THAT YOU JUST HAVE TO GIVE SOME OF THEM UP IN ORDER TO BE ABLE TO PAY THE BILLS. WE LOST OUR SON AT AGE 17 ON JULY 29,2001. HE AND SOME FRIENDS WERE SWIMMING AT A LOCAL LAKE (TABLE ROCK..I AM FROM MISSOURI) AND THE OTHER GUYS SWAM OUT TO THE FIRST PIER UNDER THE BRIDGE GOING INTO KIMBERLING CITY AND THEY HAD STARTED BACK WHEN MY SON DECIDED TO GO OUT. THEY SAID HE GOT ABOUT HALFWAY OUT THERE AND YELLED THAT HE DIDN'T THINK HE COULD MAKE IT. TWO OF THE THREE BOYS TRIED TO HELP HIM BUT JUST COULDN'T STAY WITH HIM DUE TO EXHAUSTION AND SO HE DROWN. THAT WAS WHEN MY RA WENT INTO A RAGING FLARE AND LASTED FOR QUITE SOME TIME. I THINK OF HIM AND MISS HIM EVERYDAY AND WE STARTED A MOTORCYCLE RIDE LAST YEAR, ACTUALLY HELD IT ON JULY 29TH, AND ALL THE PROCEEDS FROM THE MONEY WE MAKE ON IT GOES TO OUR LOCAL YMCA'S FOR SWIMMING LESSONS FOR KIDS AND ADULTS WHO CANNOT AFFORD THEM OTHERWISE. IT MAKES US FEEL GOOD TO BE A PART OF SOMETHING LIKE THAT. JUST THOUGHT I WOULD SHARE A LITTLE ABOUT HIM. SINCE HIS DEATH, MY DAUGHTER GAVE BIRTH TO A BEAUTIFUL BABY GIRL ON MAY 2,2005 AND SHE HAS BROUGHT ALOT OF JOY BACK IN OUR HEARTS. I JUST WANTED YOU TO KNOW I UNDERSTAND. HAVE YOU TRIED TO GO THROUGH THAT PPRX (I THINK THAT IS IT) AND SOMETIMES THE COMPANY THAT MAKES THAT MED WILL GIVE IT TO YOU FOR FREE OR AT A HUGE DISCOUNT? I BELIEVE YOU CAN APPLY ON-LINE FOR THAT. MELODY I to have the memory loss but find that if I keep to a routine, then I don't forget as much. It's so hard when you had a sharp mind that took in things on the first try to go to not being able to pick it up on the third try. I was the boss of the swing shift and taught the new people the ropes. However, I found myself having a hard time remembering the little details of my job and falling behind on my work. I now realize that as my pain increase, the stress would grow, and I would start forgetting. Now as the pain is getting under control, my memory is getting better.

MarisaMelody-I am so sorry to hear about the loss of your son. I just cant imagine the pain that I know it caused you. I am glad to hear that you and your family have stuck together and found a way to carry on his memory for a good cause.  I actually stopped taking the meds for ADHD a long time ago because I thought I could get by with out it. I learned study techniques when I was in school so that I was not dependent on the drug. But now I just have so much more going on in my life and it is more difficult to stay organized. I think I could benefit in that way and maybe lower my stress level a little bit---therefore reducing my chances of bad flare ups.  In theory it all makes perfect sense...now if I could just remember to schedule my doctors appt..........
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