Here I am again. We have a little ranch in Montana. Just wanting to work in my herb garden. Did it today and I'm in quite a bit of pain tonight. Such a beautiful spring day (finally) and so much to do around the place. I'm only a year into this PMR stuff, but figured out today that digging with a shovel doesn't help this condition out much. It's been interesting to read the recent posts about prednisone and tapering and pain management. I'm now alternating between 11 mg and 10 mg., in the hopes of tapering down. Tired of my fat prednisone face, but also don't want to be in pain. I'm only 61 and was always in such good shape. Guess I may have taken it for granted! Still, I am lucky. There have been a fair share of tragedies in our little town this year and I feel blessed to have what I do.
Thanks for letting me get it out of my system....
JannieHi Jannie, What a bother...i think I found that any repetitive action made me worse. I am 59 and did triathlons before PMR. There were days like you said that i would always rather be outside , and I loved raking the leaves up, but that was as you said ....no good to my body...or weeding.
Just stuck with my ever so short walks with my dog, a dalmation, and am now walking delivering local papers 5 days a week and doing agility with my dog.
Also swimming in warm water was my saving grace, although some days i could only do it for 15mins or so, and then have to get out exhausted( and nearly crying from who knows what!!!) But back doing the hour squad twice a week, now.
Just have to really avoid stuff that really makes you ache , keep doing something to keep your body moving and monitor meds to keep active. WISER AFTER THE EVENT!!!!
Hi Jannie, I can understand your frustration. I am now 7 months down this road. I have just had to go from 4ml, back up to 15ml Preds as I was back to full pain again. It is hard to slow down when you feel the need to get out and do all the things we once took for granted. I am learning now, that there are definitely boundaries. Hope you are feeling better, kind regards, aussieg.
Thanks for your replies. It IS hard to learn the boundaries, or to pace ourselves. There's so much we used to do so easily and especially here, in the spring, it's hard to not want to try to do things like I used to. Even my husband was thinking that I had pushed myself too hard. But now I'm feeling better. This afternoon I laid in my hammock after work and read. Guess that's about all I felt like doing anyway... So sorry you had to go back up on the prednisone. That's happened to me as well. But as a lot of people on this site tell us, prednisone is not the enemy. It's kinda scary though. Sounds like quite a few folks have had this longer than the 2 to 4 years that my rheumy told me.
Best Regards,
Jannie
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