Question about your Pain Flare Ups | Arthritis Information

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Does anyone one else, when they are flaring...have pain straight through to the bone.

It is like your very bones, deep on the inside hurt!

MY: teeth,  my scalp, my hips, and  my wrist...! 

(I think we can make a song out of this)...

MY: knees, my hands, my shoulders and Twist.

MY: elbows, my toes, my fingers and TWIST! LOL

Okay...all joking aside...LOL

Is your pain like this when you flare up?

Roblyn

yes, I do.  Mostly when the weather is bad.

Well, i switched from naproxen to celebrex this week and didn't have bone pain when it rained, celebrex might help better with that.

But yes, the bones ache ache ache and many times i don't have inflammation to go with.

YES, MY LEFT SHOULDER AND ARM HAS BEEN DOING THIS FOR THE PAST 2 MONTHS, I CANT SEEM TO DO ALOT WITH IT BECAUSE I NEVER KNOW WHEN IT IS GOING TO JUST SHOOT INTO THE BONE, IT TRAVELS FROM THE SHOULDER TO THE ELBOW JOINT AND WHEN I MOVE WRONG TO THE HAND, IS VERY DEEP SHARP PAIN, SIMILAR TO A BAD CRAMP EXCEPT IT TRAVELS, MUST STOP AND JUST NOT MOVE IT UNTIL IT SUBSIDES.

NOT SURE WHAT IT IS OR WHY IT HAPPENS.

If I had not had pain in BOTH feet and the hands too I would have thought that my toes were broken. It really felt like they were cracked. Yes, it hurts. After my first MTX injection, my theigh bone ached. It was a DEEP bone pain as well.my pain is terrible on a daily basis my feet feel like someone is hammering them i go to physio and she puts the electronic thing on them she wants me to get orthotics but they are too swollen my toes are spreading brutal and my hands are bad i wear splints my shoulders are bad too i also get the big travling flares that last 3 days in a joint and you get breakthrough pain when no painkillers will help. i take 8 percacet a day i have yet to find a med that works i have been allergic to some. i have been sick since last may i had pnuemonia and pluersy first my rhuemy thinks i have had ra for a couple of yrs i also have fibro now and sjorgens. i started water arobics 3 wks ago and ww 6 wks ago i need to lose weight . i have gained a chunk. i have lost 7 lbs i am still taking 10 mg of predisone i was on 15 but tapered of alittle. anyways my pain is brutal but i push myself to move but i also get my rest...teresaI have only had one flare, for 3 months approximately, and it is all I have ever known.  All I know is, it hurt.  It was the most excruciating longterm suffering I have ever known.  I wouldn't wish it on my worst enemy. 

But yes, it feels like bones hurt, skin hurts, veins hurt...just hurt.

I get that deep in the bone ache and pain when I flare too( it can be anything from a dull ache, to a throb, to an excruciating stabbing pain.  It's amazing how this happens and I won't have any redness or inflamation to go with it.  Hugs and good vibes.

oh yeah. deep pain  right in the  bone, the shin and ankles like someone kicked me good.

 

the pain in the bone of my shin was so  bad I was wondering if it was bone cancer..   horrible

 

 

 The deep pain gets so bad that I can't find a good place to sleep.  My shoulders, elbows, hands, knees and feet get really bad.  When the weather is bad it seems much worse.  NOW i AM GETTING THE SAME THING IN MY NECK - A REAL PAIN IN THE NEC. lolYes deep bone pain. I have complained about that in my back for some time and the primary tells me it's bulging disks. I now am beginning to think that it may be RA in my back all along and not the other. I have a hard time trying to get anyone to understand what I mean by the pain is in the bone itself. I'm going to bring this up to my RA when I see him in a couple of weeks. I think he's going to have to increase my meds because I still am getting the pain and swelling and not enough good days in between.

willwin2, i have the same exact feelings when i'm in pain.

but my bones also feel like they're curling up inside my body & they won't straighten out no matter how much i stretch.

Yes - the pain is in my bones. Especially today when its cold - the
cold "hurts my bones".

This might not make sense but sometimes it feels like my bones are
exposed on my feet when I'm walking - like there is no padding. I
wear thick socks at home and that helps.

Today my shoulder bones and neck are the problem. Does anyone
else have a protruding bone in the back of the neck? It swells and
then goes away but always hurts. I'm newly diagnosed (toe and
ankle mainly) and new on the boards- can RA spread to the neck?

Roblyn,  Like Kathy my pain always feels like it is deep down in the bone.  Prior to RA diagnosis, I was certain I had bone cancer.  Nobody can understand that pain, except us. 

Newspaper lady - I have read that you can get a rheumatoid nodule on the back of your neck.  You should show it to you rd.

Welcome to AI.  Roxanne

Sometimes my toes hurt so much, I think I'd like to take a hatchet & just
whack them off. I have to remind myself, temporary improvement,
permanent inconvenience. My hands were so bad in Dec., I could even
turn a levered door handle - I had to use my elbows. Then, when you
start walking funny or using your hands in a different way, you stress
other joints & ramp up the pain & swelling. I don't think I ever in my life
cried from pain before. Even labor wasn't this bad!

HEY GUYS AND GALS,

JUST READING POSTS AND FOUND SOME OF US, ME INCLUDED HAVE BEEN MENTIONING RA IN THE SPINE. YES, YES IT IS POSSIBLE. RA AFFECTS ALL JOINTS. THE BACK INCLUDED, IT IS MORE COMMON IN THE CERVICAL SPINE THEN IN THE LOWER PARTS, AND NODULES CAN FORM IN THE TISSUE AS WELL. THAT WAS WHEN ALL MY BAD PROBLEMS STARTED, I HAD A NODULE THE SIZE OF A WALNUT, IT BURST AND I SWELLED UP FROM MY ARM PITS TO MY FACE, COULD NOT MOVE NECK OR UPPER BODY FOR 3 WEEKS, WENT TO THE DOC SHE SAID A CERVICAL STRAIN, IT WAS BACK IN 2001 AND JUST THIS PAST YEAR I HAVE LEARNED THAT IT WAS RA AND NOT AS SHE CLAIMED. MY TRIGGER FOR THIS DEVELOPING IN MY BACK WAS AN ACCIDENT, I NOW HAVE VERTEBRA THAT ARE COLLAPSING ON TOP OF EACH OTHER,

THERE IS A GOOD ARTICLE ON THIS 4 PAGES TOTAL, FOLLOW THE LINK, IT WILL HELP YOUR UNDERSTANDING, HECK PRINT IT OUT AND TAKE IT WITH YOU TO THE DOCTOR NEXT VISIT.

http://www.spineuniverse.com/displayarticle.php/article1446. html

SORRY FOR EVERYONE'S PAIN TODAY, HOPE IT IS GOING TO WARM UP AND STAY THERE, IM FLARING QUITE OFTEN WITH ALL THE WEATHER CHANGES.

Jay-have you had an MRI of your neck? If your doc thinks it is a bulging disk you should have an MRI to confirm it. I know all about the disk thing. Mine is at C-5 and C-6. Horrible terrible pain. Relieved with an ice pack for 10min to the back of the neck and when it is really bad, a flexeril mucsle relaxer) along with the ice pack. I usually dont even have to take pain meds for it if do the other things right when it begins to hurt. I have been going to a Chiropractor for a few weeks now and have noticed some big improvments since doing so. (I used to think they were 'witch doctors' but I have since changed my mind)

You should look into this more. Having the diagnoses has not fixed my problem, but knowing has given me insight into how to manage the pain more effectivly and that is worth alot.

Roxy, this is my first time posting here. When you stated that prior to being diagnosed with RA you wondered if you could have bone cancer, I really could identify with that! With the bone pain and fatigue I was experiencing, I thought the same thing. I was diagnosed two years ago with seronegative RA. I still have not went to see another doctor for a second opinion.    This place is wonderful to come to for support and learning - I don't feel so alone while dealing with this. Hi Joy3! Welcome to  the boards!  Alot of us here are sero-neg. It has made me question my own diagnosis at times, but by process of elimination (among other things) I know it is right. I could be alot worse though, like bone cancer. I am glad you found us!!!Thanks for the warm welcome, Crunchy! Hi Joy! Welcome home. This is a great place to meet people who are all
going through the same thing. I'm sero-negative, also. And for a while, I
really refused to believe my diagnosis. I wondered about the bone cancer
thing, too. Are you on any meds to control your RA, Joy? It's a big
struggle, but from what I gather, there are a lot of different treatments,
and more on the way. Thanks, Fiona, for welcoming me. I am currently on humira and methotrexate. The combination worked wonderful until last November when I started to have flares of the joint and bone pain again. My doctor has stated the remicade would be the next step. I was wondering if I should just ask her to increase the methotrexate. I never even use to take a tylenol until all of this started!How much MTX are you on now? What about other antiinflammatory meds? This is the first time I have heard of so many of us being seronegative.  It took them awhile to be convinced that I actually had RA.  This has been a really bad weekend for me.  My flare is causing me to have extremely high blood pressure, I spent more time crying this weekend and my husband is out of state.  Couldn't seem to do anything right.  Hope all of you had a great weekend.  I am so glad to have found this group - it sure helps me out alot.Dreamspirit, I'm sorry you had such a rotten weekend.

You bring up a good point. My normal bloodpressure is right around
105/70, but for the last 5 months, it's been all over the map. The doctors
don't seem too concerned, but for me, it's scary when I jump to 149/89.
It may not be superhigh, but it's off the charts for me.

There are a bunch of us who are sero-negative. Maybe doctors are more
willing to diagnose it now?

I hope this week is better & brighter for you.
 Thanks Fiona.  My blood pressure went up to 196/96 and my usual is 100/70.  I guess because I am not on any pain meds it may be why the blood pressure shot up.  I take my next Methotrexate shot tomorrow but with nothing else it doesn't seem to be working too well.  Think I may have to call some  of my docs. to see if they can give me anything else. 

My next doctor appoint is in May - she only sees me every 3 months.

 

You should call her and see if you can get your appt moved up due to your pains. Most doctors will make arrangements if they know there are existing problems.

I am wondering if the weather changes are effecting the blood pressure as well as the flare's. I dont have a bp machine here at home but it is worth checking into and see if the weather changes play a part in bp as well as flares that so many of us have. Would be a good study and maybe something else we all have in common.

Hope you begin to get this under control, and welcome to the group.

My doctors have said it's the pain that's driving my blood pressure up. I
think they're right. The days I hurt the worst are the days the blood
pressure skyrockets. I'm hoping that once I'm on the Humira - or
whatever - that it comes back down. It's a little scary how one thing goes
wrong, and it all cascades. There isn't a part of our bodies that isn't
affected by this disease.

I went to the dentist, had novocaine, and had a terrible, terrible reaction
to it. Thought I might be having a heart attack. I've had it all my life &
never, until now, had a problem. Now, I can never have it again.Yes, it is true that pain does cause an increase in blood pressure. If you are running high, check your BP every day and call your doctor or their nurse if you are continually running high. I also agree with seagoat, you should try to get in sooner if you are having problems. Good luckYou know, when I was really suffering and couldn't see a doctor, I went and used the blood pressure machine at Wal Mart.  It is free.  I was thinking I was going to have a heart attack and was so paranoid because I didn't know what was going on.  I felt a lot better after using it.  :)

It is so funny...my blood pressure doen't rise when I am in Pain.  the doctors call me weird.  I have a real high thrushhold for pain.  But when it hurts BAD...they have a hard time believing me.  I try to keep a good attitude most of the time...that helps...BUT pain IS PAIN...no matter the smile on your face...

THIS CRAP HURTS! LOL Thanks for welcoming me to the board Roxy. I am sero negative
- but the doctor says mine has classic RA presentation with the bone
degeneration in my toes. This weekend I had pain in my hands
which hasn't happened before. After 4 years of pain in my right toe
and then 6 months of pain in my ankle, the hand pain was a surprise.

Thank God today is a good day - there is no day without pain but
this is a day with less pain. I'm going to call my doc about the lump
on my neck after Roxy's recommendation and then reading the other
posts about the nodule that burst from seagoat 60.

I am so thankful for all of you. Its like the arthritis sisterhood - all of
us understand the pain.

Dee

Newspaperlady, like you I am also thankful for everyone here! Crunchy, I am currently taking 15mg of methotrexate weekly. Maybe I just need to have my doctor increase the dosage to help with the flares. The humira and methotrexate combination had been working so well that I hate to give up on it. Unfortunately, I have to take ibuprofen daily for the pain. It takes the edge off. Thanks for all you help.joy338803.485
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