Do I Dare Ask? | Arthritis Information

 

I am curious if anyone that has moderate to severe RA, has tried different meds like Methotrexate etc. , has been in serious pain, not just sore joints for a few days then it disappears for weeks- months, but people that really deal with RA on a daily basis, and it's affecting their quality of living....if anyone in that cateogory has tried this AP Therapy , or Minocine etc. and had it actually help enough to feel a difference?

 

I ran into the post between Lev Larry , Pip and a few others arguing about AP Therapy...it was amusing to say the least, but , I did learn a lot by reading it. I ordered the book out of curiousity.

 

So anyone out there in the moderate to severe cateogory actually have good results ? wondering if I should give it a shot? But , It does make me wonder why the 3 Rheumy's I've seen never even brought this subject up as part of the therapy to try, or even a drug to try for RA.

 

Kelly

 

 

In my opinion,  combination therapy really does work when you have RA Lynn492010-07-24 04:12:11I am also just learning.  It stands for Antibiotic Protocol Therapy,  i.e. treat RA with antibiotics.

The most focused information I have found is at http://www.roadback.org/.
Here is the corresponding forum:  http://www.rbfbb.org/
Note I said "most focused", which does not imply "best".  It seems to be controversial and is used to treat a variety of disorders, not just RA.  I get worried when I read very firm statements such as  " it worked for me" since this is testimony of the worst kind, and is not evidence.   But who knows; sometimes doctors assume they know the best, sometimes the patient knows best.  But honestly in my cursory study, I haven't seen anything that defines the mechanism by which the antibiotic works or even if there is some microbe that is affected by the antibiotic.

Also just do a web search on "AP Therapy" and you'll see other writings pop up.

I plan to see what my Dr. says.

Roland




Here's my two cents.  I have noticed that when I have a sinus infection and go on antibiotics, my joints feel better.

Six years ago, I was on long term, low dose antibiotics for acne.  Again I also noticed that my joints felt better.  However I also noticed that after several months, I did not like the uncontrollable diarrhea.  Especially in public places, like my office, friends' homes and summer outdoor events where I had to run cross legged to a foul port-a-potty.  Daily multi-servings of yogurt and acidophillus did not help that situation.

I'm no expert in the subject but that's my experience with long-term, low dose AP.
Green~Tara2010-07-24 15:12:39I feel the opposite.
I just started a round of antibiotics for an ear infection...
I feel like crap. Everything hurts.  I am due to take my next shot on Monday and I won't be able to.. that will make me feel worse.
Now.. I have very little disease activity thanks to my meds..  but why do I have more aching discomfort when on antibiotics?

[QUOTE=Ramen]I am also just learning.  It stands for Antibiotic Protocol Therapy,  i.e. treat RA with antibiotics.

The most focused information I have found is at http://www.roadback.org/.
Here is the corresponding forum:  http://www.rbfbb.org/
Note I said "most focused", which does not imply "best".  It seems to be controversial and is used to treat a variety of disorders, not just RA.  I get worried when I read very firm statements such as  " it worked for me" since this is testimony of the worst kind, and is not evidence.   But who knows; sometimes doctors assume they know the best, sometimes the patient knows best.  But honestly in my cursory study, I haven't seen anything that defines the mechanism by which the antibiotic works or even if there is some microbe that is affected by the antibiotic.

Also just do a web search on "AP Therapy" and you'll see other writings pop up.

I plan to see what my Dr. says.

Roland




[/QUOTE]

you seem to be a very intelligent man.. looking at things with the logic and intelligence required to be certain that you learn all you need to and apply it best.