I love you all, but there us no need for an flare | Arthritis Information
H guys!! I've been gone for a long long time sort of selfish of me really, I haunt been in remission but the jar hadn't gotten me too much emotionally.
For those of you who do not know me, I'm 23 recently graduated school and will be starting graduate school- for physical therapy! I've had jar since I was 7, drug wise for my joints only I'm on Mtx remicade and tramaldol. Non of it works for pain except tramadol.'
Any way I'm back cause I'm in a huge flare iml can't remember the last time I had this much trouble walking.
I'm scared to call my doctor encase i refusen to go on prednisone, primarily because I've been having some eating problems lately and I'm scares to gain weight.
I'm very active, I have to go to work no options
Hope to hear from you all and catch up with those of you that are still around that I know!!!
Hope everyknes having a low pain day! When I have a huge flare and take a dose pack I do not usually gain weight. It is when I take daily low dose pred that I have the weight issues.
Other than that I am on the blueberry juice diet. LOL You drink 8 oz of blueberry juice with lunch and dinner. It is supposed to make you loose weight in the waste region. How does it work? Not sure of course scince I have been walking I have been loosing weight. Not sure if the blueberry juice has anything to do with it?
Well it taste good is good for you so it is a diet that I actually enjoy. My biggest problem is keeping others out of my blue berryjuice. LOL
It is great to hear from you. I hope the flare leaves you as quickly as it came. A call to the doctor may be what you need? Anything it takes to keep working.
I am so proud of you for all you have accomplished with all of your health issues. Super proud!
Thanks milly! Nice to hear from you.
I used to not mind prednisone as much and if I knew the dose back would be enough, I would be fine with the idea bit it's never good enough and I end up being on it for at least 6 months.
I an going to work tmrw I have to, but I'm having a lot of trouble walking, and obviously sleeping! It's almost 3!in the mornings and I've been tossing and turning since ten:(
My last flare I took a low dose pred pak and when I cut down from twenty to ten I went back to the doctor.
I needed to see the chiropracter but it was the fourth of July and he was on vacation. Scince the chiropracter was on vacation the doctor put me back on twenty mg for five more days and then I would try dropping down to ten mg for five days after that.
Well the chiropracter helped alot. Maybe the pred helped alot also? Anyway I could not believe how much more circulation I had in my feet after going to the chiropracter. I could feel the blood flowing in my feet it was amazing.
I also did something I do not even believe in. I took 500 mg of Naproxen twice a day.The presciption kind that is coated. I can not tolerate the over the counter stuff. I honestly think NSAID's are bad for you. I am allergic to asprin so I have reactions to alot of NSAID's but I did alright short term with it.
Anyway I extended my dose pack a little bit but got lucky and did not have to stay on the pred long term.
I have fibro so getting knocked around by the chiropracter tends to ake me swell up or feel like I am swelling up. I could tolerate it while I was on the pred and Naproxen. When I quit taking the pred I quit going to the chiropracter.
LOL It turned out that the chiropracters daughter is my niece's nemmasis. They both like the same boy in kindergarten.
Too funny my niece says she has to climb way up to the top of the play ground equipment to get the boy to herself. It is really hard work she says. LOL
The boy is her best friend however teqnically he is the other little girls boyfriend.
milly2010-08-09 13:46:49Your right this message board has changed. I need support now more than ever but I feel like I'm just messaging Cyber space with no one listening
I'm smothered In Ben gay, although it doesn't do much, I'm dreading the from my dr which will say- 50mg prednisone and then I won't get off it for months qbd I'll gain sooo much weight
Try not to worry about the weight gain right now. Sometimes when I am in a bad flare I loose weight anyway.
Maybe things will be different this time because of the Remicaid and the flare will not last as long. We can hope for the best.
Lets try for now to think of the good. I know when we are in a flare things seem hopeless.
I hope the doctor calls you back soon and for now he can make you feel better.
I have had to take prednisone for rashes this summer and for allergies and for a bad flare.
Some how I still managed to loose a little weight instead of gaining weight. I have no idea why?
Maybe because it is summer time and I an get outside and walk in the evenings when it is cool. Lets hope for the best.
Littlemermaid,
You really should call your doctor. Can you make an appointment with your Rheumy to talk about changing your meds? It sounds like your Remicade and MTX isn't working well enough.
Of course they arent working. they have never worked for me, remicade never did a thing for me but there was nothing else for me to try, im switching to a newer one soon. the TNFs do nothing for me.
I dont think you guys understand the weight thing, i havnt been eating enough its like an issue, and now needing to go on prednisone is freaking me out.
I called the dr, has not called me back yetawwww lil mermaid- i don't post here anymore but you always held a soft spot in my heart. I have kids your age and I always pictured you as one of them being far from me at college not feeling well. I hate to hear you that are hurting. I sure hope the next TNF you try gives you more relief. I hear some emotional stuff going on as well. Do you have a counselor? It might help to talk about your fear of prednisone in relation to your eating problem.
I'm so happy to hear you graduated school and are on to graduate school! You should be very proud of yourself! Is graduate school near home? What kind of job do you have right now? Are you enjoying a little R&R this summer?
I guess for me really I am taking Lyrica and muscle relaxers and singulair and antihystamines. They sort of curb my appetite in combination.
That may be why this latest go around I did not gain weight on the prednisone.
In the past I did. I know weight gain is a real issue. So is pain. I wish I had an easy answer for you. Truely I do not have the an answer that can fix things.
I think when we have been sick a long time it is hard to find the right medicine. I can not even take all of my meds together on the same night. I have to alternate them. Why? Because of my Sjorgren's. The meds dry me out so bad it makes me get abcessed teeth.
So like today every muscle in my body is aching because I did not take my muscle relaxer. If I take it tonight then my allergies will bother me tommorrow.
I still think I am over weight. I have sworn time and time again I would not take prednisone. For the same reason you are upset.
I so wish they could make new meds with no side effects. Better yet meds that worked.
What is the new med you are going to try?
Thanks WanttobeRAfree, your post was just what I needed. I do have a therapist. Ive had issues for a long time, and have been in so many different groups, and therapies and a lot of my issues do revolve around not having control of my medical stuff so half these problems seem to be a way for me to have a little control of my health and safety. its twisted I know. I also have Bipolar disorder.
Graduate school si near home but Im moving into my own place. im just having fun summer jobs working and playing with kids. Ive had some times to relax actually, my jobs are not the normal 9-5 so I get nice braks throughout the week, but they are mostly used for dr appointments.
Milly-im NOT overwheight. Its a psychological issue not a physical issue, so its not helping me to hear how you gained weight on prednisone.
im hoping to switch the Actemra, it was approved in Jan, and ive been waiting for it for years, it is NOT a TNF inhibitor non of the TNFs worked for me. I havnt had a med that works in like 10 years.
I took a hot bath, I felt good while in it, but now that im out I feel just as bad and in just as much pain as before. cant really unbend my elbows all the way, hurts to type,everythng hurts, to the point that im not wakling unless absolutly neccesary. i ussually hurt, and things were pretty bad on and off throughout college. but not quite as specific to ouch my knee ouch cant move that finger...the rest of the time its just an overall stiff and painfullness. not anymore, this is 100% pure JRA and it sucks
What a bitch MM! Milly was only trying to help. Don't post if you don't want to hear about others experiences with different drugs. You need to say that you are sorry to Milly...I didn't say anything mean, I love milly I was just letting her know how that was effecting me. Weights a very touchy subject right now VERY
I'm not 12 so don't tell me who to apologize to!
Ithurts, Why don't you hang around and get to know the personalities of folks before you attach people. These are fine folks just trying to live with this thing.
you should visit your own motives
How exciting that you are moving into your own place- congrats! Will you have a room mate? How many years of graduate school will you need to attend?
I'm hoping you get relief with Actemra and that feeling healthier will help you have less of a desire to try and control parts of your life in ways that backfire on you. Do you feel the therapy is helping? I hope you have someone good who understands and makes reasonable suggestions in how to overcome things.
I have always felt that heat was my best friend too when meds aren't working. Like you said it only helps when you are immersed in hot water or applying the heat...hang in there lil mermaid! I have a good feeling better days are coming for you!
Thanks for sticking up for me!
I reallu hope actemra will work, ive been waiting so long, for years! it better work!
grad school is 3 full years.
I hate heat for my joints like weather wise, humidity is bad for me, sometimes winter is actually bad for me. but the bath did feel good, im actually thinking about taking another one
therapy is very hepfull but its not enough and the problems are still there. Its been very bad,
OK I should not have struck out like I did. LMM, I'm sorry-that was un-called for. I have been around awhile and I do understand that you are not 12 nor do you need anyone telling you what to do.
Having to live with everything that goes with this stupid thing called RA, the last thing we need is to strike out at others on here.
My husband would be so disappointed in me if he read this and I am quite embarassed myself. I will crawl back into the shadows and once again just read. the stupid oncall doctor STILL hasnt called me back its been 2 days!!!!! they said she would call yesterdy i left another emssage for the dr today! so angry. im so done with this rheumatolgy office.
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