Has anyone else felt like a failure??? | Arthritis Information

 

Over the past  years I have tried so many different medications and have not been very successful with any of them

Med after med, trial after trial, vomitting, loose stools, cringing pain and more side effects. There was a time I thought I would lose my mind. Gain 10 lbs., lose 25, back and forth. Pain ,pain, pain. Then one day the pain wasn't so bad, then another day the pain wasn't so bad.Then a bad day. Good blood work then bad bloosd work. Try this med and that med., then back to square one.

I didn't feel so much like a failure though. It was always the thought of...I have the weirdest body. But keep in mind I have battled allergies and medical reactions all my life , since birth, so I was already used to it in a way if a person could be.

The oe thing  that made me angry or upset was being so weary of trying yet another med but I always looked at it as another option. SO I knew I had several options. When I was dx with the heart valve thing then the ulcers to which I lost a lot of blood, then things changed again and I can only take injectable stuff now. And yes I got so sick of taking pills to the point a few times over the past 10 + years I would take a week or two out of a year and just not take anything. Not a good idea and I learned from it but my mind needed the freedom at the time. It was a really stupid thing to do so do not try that!!!! I paid dearly for it health wise.

Try to remember you are not a failure, it is the disease. Hard to remember though when you have to go back into the RD for yet a different med. I was fortunate and have a great RD, he made all the difference in my life with RA basically due to his kind manner and unending patience with me.

Sometimes it feels as though you will never feel yourself again and maybe you won't on some days, that is just the way it is for some. You are not a failure, never, ever are you a failure, you have no control over what this disease does and how your body reacts to it or the meds.

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You are not a failure, never, ever are you a failure, you have no control over what this disease does and how your body reacts to it or the meds.

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Exactly what I was going to say. Well put.

It helps to come here and read the posts even on bad days which is what I am having right now.

Hope you are doing better. RA is definitely a crappy way to go.  I think we all have days where we feel like we aren't doing everything possible.  Please know that you definitely are not a failure.  It just takes time sometimes and unfortunately the medications we take don't get improved as quickly as we would like.  If you don't feel the Enbril or Humira are working, I know that when I was on Remicade it was the best year I had experienced.  Unfortunately I developed an allergic reaction(stupid hives) so I had to stop.  My rheumy is checking on getting me on to the Orencia.  I haven't felt this optimistic in a long time.  As a result of my allergic reaction, I have been on 10mg of pred for the last 2 years.  Keep the faith -- it will get better!!  Being able to vent and talk in a place like this does wonders. I know how you feel. I'm sick of the whole RA thing and the medications. Think about the alternative though.  It we had had this disease before the biologics a lot of us would be in wheelchairs.We have bad days and better days if not good days. Hanf in there.I definetly agree with Linda, thank heaven for science!! But I think I would prefer one of those cute little Jazzy things they advertise on TV instead!!  

There are no failures here.

I  KNOW HOW YOU FEEL. MY DOC CALLS ME DRUG RESISTENT.

Hang in there with the Enbrel, it does take time. I know it's hard to be patient but at least if you give it a good go you know it's pointless trying again. I hope you find something that brings you relief soon,

Best wishes,

Moonie x

The drugs failed you.  It leaves you disappointed and frustrated.  It isn't something you have control over.

I am about to embark on my medication journey.  I know it can be anything.  I will start MTX this Friday.  I am on pred and will see what happens to me.  It helps to know the full range of possibilities.  I may be right there with you.  Don't beat yourself up.  You do what you can, but you can't make it happen.

I hope you find something that works for you soon.

Thanks to all of you for your encouragement!!! How long does it usually take for the enbrel to start working???

I think it varies. With me took maybe 3-4 months.Thank you soooo much for the feedback, I won't lose hope.........
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