Hey Guys
just needed to talk to people who understnad.
I started grad school this past week, I love it, but sitting in 6 hours of class a day and then studying afterwards is tough for anyone. My joints are still bad.
My stupid rheumatolgist has been so unhelpfull I had started prednisone after speaking to the on call doctor. So I called my doctor when she got back from vacation to touch base with her. My doctor was all confused as why I was calling her...shouldnt she know im flaring? shouldnt she know im on prednisone? shouldnt she be the one to tell me to go back up a dose since I was flaring again? I thought I should talk to her since you know she is the doctor.....nope all she said to me is, prednisone can kill you you cant be on it forever, no duh!! I just was trying to be a good patient and not take care of my meds all on my own. I also wanted to stop remicade cause we have been talking about switchng to actemra, so I told her I was planning on skipping my next infusion so that I would be all clear to start actemra soon. She said something like Remicade does not cause withdrawel sypmptoms-i know that!!! but I also know you cant be on both remicade and another biologic at the same time....does she think im stupid? Ive been her patient for 8 years, she knows me...Then after all of this she says how I shouldnt be on prednisone cause maybe I dnt even have JRA and how prednisone doesnt help, but she also said come in for an injection of it...1-the prednisone IS WORKING, 2 if she thinks it doesnt work and wil kill me, why go and get more??? UGH I hate her! Im not going back, im seeing a new person tomorrow
im stil on the prednisone, last time i posted I was debating going on it cause I knew I would get stuck..well guess what I did. and im still freaking out about gaining weight. ive been eating a decent amount, but the thoughts associated with eating are horrible and i freak out about gaining.
im sooooo exausted. 6 hours of class everyday. im gonna take a nap, have dinner, and then get back to studyingWell I can relate to one thing, and that is about the Rheumy Dr. Mine is supposed to be very good, I guess she is, newer out of med school, but she doesn't offer too much help or support (maybe not the right words). She seems to offer the standard formula: yes you have RA, we start with MTX. And then I have so many questions, about pain, and about all the other medicines. This week she kinda snapped back and said "we talked about all that already". I finally asked her something like: "Ok, so you mean we just follow these standard formulas and I have to live with all the RA problems? Yes". I may be overly eager, or have higher expectations, and may be pushing for the [non-existent] cure.
Good luck in grad school, what a wonderful opportunity, a great lifestyle, hope your flares go down so you can enjoy it more.
Roland
Copyright ArthritisInsight.com