I am just 19 years old, a full time student, and I have Psoriatic Arthritis and Ankylosing Spondylitis. I had a lot of health problems growing up and right after i "grew out of" those I began having pain and swelling in my joints...at 16 I was told I was crazy, the pain was in my head cause I was searching for attention. I finally got a Dr to look into the symptoms last year, finally in January of this year they figured out what was wrong. Now I am trying to balance being a student with the pain, fatigue, and general side effects of the diseases and treatment. This spring my best friend, high school sweetheart, and the man of my dreams since second grade proposed. After 4 years together, and my health issues, we have learned a lot about overcoming obstacles and using them to grow closer together. However it feels like that is changing. Before treatment I had pain but it was manageable...after starting treatment (Remicade and Methotrexate) it has gotten out of control. I need help getting out of bed, getting dressed, opening my medicine bottles...I can't even bend over to shave my legs without help. I feel useless having to have people help me with this things, and knowing that it is him helping me somehow makes it worse. Instead of going out with his friends every weekend he stays home with me in case I need something, he works 11 hour days then comes home to make me food so I can take my meds...he edits my papers (which thanks to the pain killers normally are incoherent at best). He does everything for me and gets nothing in return because of my pain. He doesn't seem to mind taking care of me but he is a 21 year old guy with a lot of friends so I know he needs to have some nights being out with them. When I convince him to go out he has a blast and it shows...but at the same time whenever he does go out I think I resent him. He is able to be normal, he can go out and play pool or go to a club...things I can't. And I don't know how to not feel that way.....
The dosage of medication prescribed to each patient will vary. Follow your physician’s instructions on the
prescription drug label. Hope Ur pain solve quickly.
Hi Beckah,
I feel your pain and being young i can imagine you feel like life is passing you by. First of all thank God for your friend who has sacrificed much of his time for you. Such young men are rare to find . Allow him to go out when he can because he needs the energy to take care of you. Try not to be too resentful. In your moments of despair ask God to give you grace to say thank you. I would suggest that you get some form of counselling just to keep you grounded so that you can learn how to handle your pain as well as your emotions. Take your meds religious and hang in there and remember that at least someone truly loves you. Be strong and take courage everything will work out. When you wake up every morning, look around you and you will see something to be glad about. For once look outside you and not inside you. Seek others who are also in pain and you will discover you are much better off !
Hang in there!
Hi there,
Just checking in on you how are you holding up ?
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