So wish me luck! | Arthritis Information

 

Now I do not claim to be the biggest sweller in town as far as joints go. It is most often tendonitis issues that have the most trouble with.

 

Not so at this point and time. This is one of those travel around the body untill the RA has had it's fill of me flares. If I try to cut back to ten mgs scary things begin to happen. The jaw is now jaws at this time. The right side wants full attention and the left side is still more than welcome to jump in and have fun.

 

This is the scary part. I think it is my hips? Well my tailbone had been hurting. The deal is it puts so much pressure on my lower spine that it totally disables me in a minute. It feels like it will break my back.

 

I can not even tell a doctor the full extent of the trauma it is giving me or they will ditch me like a hot potato and say it is the other guys job to give me prednisone.

 

So all lies on my nurse practitioner tomorrow. I see the neuro on Tuesday but would run out of pred on Sunday.

 

The gp's receptionist is guarding the doctor from me again. I told her I was told to just call. That they said it would be alright. The deal is if it is not alright then tell me when I have time to do something about it. A month ago they said just call. When I am running out of meds they want to change the rules.

 

RD I see him the 20 th. Arghh! Plus it takes days to get a call back. So I said it is not a good time to change the rules.

 

So someone needs to see me. LOL Someone sees me all of the time. The ENT has seen my jaw as has the dentest whom will see me again on Monday. The Neuro that has seen me for eight years and felt issues warrented shots in my spine in the past will see me Tuesday and does see me every month.

 

Last month the new receptionist nearly cleared his calander for him. Arghhh so they had to send someone out of town for charts and it was an unbelievable mess. He walked each chart up to the receptionist and made sure she made the return appointments correctly. She said sorry but this is a really busy job and I have to do things for other doctors also.

 

Bad excuse but really I remember my appointment being made by the girl that had quit. I had an appointment card but some how I was not put into the computer or someone deleted 30 people.

 

Anyway I will tell him that my spine went numb from the swelling. Regardless of receptionist problems. Well could be the put to much nummers in my sensitivity tooth paste?

 

So then the next time about five days later I cut back to fifteen mg of pred and I was all bent over in a hunch back way with my spine being drawn inward like a scoliosis type of spasm yet soulders forward lower back inward I guess.

 

So yes it needs to be seen. Duh! I have appointments for that! DO I really need to go to the nurse practioner Friday when I see the neuro Tuesday? I mean they have sick people and kids in the waiting room. :{

 

DO you think the swelling is coming from my hips? I sort of do not see how it could come from my spine? The muscles I can see are very angry about the swelling and maybe putting pressure I my spine.? All I know is prednisone makes it feel better. Then I only notice some hip pain but not so much disabilty and craziness. So pred emergency!

 

Also it makes my knees hurt. They fatigue easily also. My knee ortho said that my spine issues made my knees get fluid in them that comes from my back. That was years ago when I had buldged disks problems and pulled or torn muscles from an injury.

 

No injury this time. It has to be from the flare because my arm pits feel like ground hamburger meat from shoulder swelling. Plus the jaw stuff. LOL Hit the wrong button again. It made my text bigger. Well alright then. LOL I was going to say. At least there is lots of good new TV shows if I get stuck in bed. I was planning on laying around watching shows this week anyway. SO BACK AT YOU RA!

 

Just seems like when you think stuff can not get worse it gets worse. Wel at least t