I'm guilty too. I've been so busy with family stuff that I don't always have time to come and chat here. I promise, now that things have started to ease up, I'll be here more often
Change isn't always easy, but if it means meeting and helping more people understand and deal with their RA....I'm up for it!
I find myself in here more, I go to face book, It's a way of talking to family back in Indiana, and Tenn, They would never come here. we can send pictures and talk, I like Facebook. It is taking over.
I liked the old AI they had a chatroomt that was open every night. It was more like friends getting togater now it's fighting and hate. It has gotten better, not sure when I have been i hospital a lot.
I am on FB here and there but would never discuss the issues I discuss with you people there! I think it gets old after awhile, of course I don't have time to spend in all the games and apps and such. I'm here every day, but I bore myself with my whining and complaining.
I go to FB to play FarmTown, and keep up with relatives, especially great nephews and neices. it's nice to chat with them in a non stressful environment.
I don't generally talk about my RA or fibro there except occasionally to mention a fatigue day following a bunch of activity.
Howecver I ran myself silly last week getting ready for Jakie's party.. wow he's gonna be 5 ! on Tuesday, and really didn't have as much fatigue as I expected.
Kathy, whine all you want, we wanna know about it. Without looking back, I do recall that you were having stomach problems? We also love hearing about the children Kathy.
Huggin ya!
I still check in here, but it's been so slow lately. I do spend more time on Facebook though.I also spend more time on FB, I still come in and scan the topics and read the ones that catch my attention. I suspect that as the weather turns I will be indoors more and with the cold comes all the aches and symptoms that causes me to post more often...Have a good evening =)I go on FB but I don't really get it. There really aren't many people I want to keep up with and the ones that I would like to chat with aren't on FB.
What might be nice on FB is to have some kind of app of group for RA that would allow us to chat or whatever in a way that we would here. Then I would at least have some sort of use for it.while I love FB.. it's for totally different reasons ...
there I keep up with many many friends from decades and my life time as well as new friends..
Here... as Tara says... we can talk the disease.. NO one else wants to hear that... they can't understand... they don't get it.. they don't want to hear the negativity of having a chronic illness...
If you want to chat up friends.. there's FB
If you want to chat up friends who understand.. there's AI.
I love FB. There are so many places that I go to learn everyday about RA. One that I would recommend is rawarrior.com/facebook if this doesn't work, just do a search on face book.
The general statement on here, when people were fighting and someone would try to bring peace, was "if you don't like it leave". I know I had it said to me more than I wanted or people pop off to me over my post so I did find help somewhere else.
I have about 10-15 places I go everyday and we have wonderful discussions on them without all the nasty remarks and fighting.
I come and scan the topics on here but this is the first time have posted in a long long time so maybe some of the "old timers" have left do to the way they were treated. Case in point-the post about insurance and the first response was rude, hateful and uncalled for-the poster did not deserve that attack.
Don't rule out FB because there are really great places to talk to people in the same shape as we are, going through the same things we are, that have great ideas the have helped me and no one ever get rude or hateful with you...[QUOTE=ithurts]Don't rule out FB because there are really great places to talk to people in the same shape as we are, going through the same things we are, that have great ideas the have helped me and no one ever get rude or hateful with you...[/QUOTE]
I agree...there are lots of places to talk about RA on facebook. I also have friends on facebook who have RA and it's nice to keep up with what they're doing and also talk about our RA related problems. kelstev2010-10-06 09:05:57@ ithurts.... I love your font you are using. What is it?
I happen to enjoy FB and use it daily. I post here more in the winter months. (it is getting colder outside)
Curious, anyone go see the movie about Face Book?
It is the Georgia font, then I click on B and I to get this look. I have not seen the movie but it is on my to do list.
I have some really good sites on FB and if anyone would like links just send me a message and I will get them to ya'...I think that many people just get tired of talking about ra. You can only beat a dead horse for so long untill you realize the horse is dead. If you look at the AF forum, it's the same little group and each has found their niche in the forum. Many come and go but most don't stay. I know that there are those with thin skin or those that believe that we should all be nothing but love, hugs and kisses altho I'm sure that their personal lives aren't that way, but that on the www, we should all pretend that we are all that way. It never surprised me that those that didn't/don't like debate or arguments, would, rather than ignore the controversial threads, instead throw in their two cents, get twenty cents change and then get upset. To me, that's just darn right funny. I myself have been quite busy this summer and am still losing my unwanted gained ra weight. I have a feeling that I will never again be a 32" waist with zero fat anywhere on my body but I am losing my pot belly and love handles, thanks to my doctors and drugs. I'll say one more thing or two. I think that the two most destructive things that i did after being devastated with this very serious disease is constantly complain and whine to loved ones and friends and the other was to become less and less active. The one strains friendships and relationships and the other damages the body.
LEV
levlarry2010-10-07 08:43:01Lev, you must realize that women's feelings are hurt much easier than men's. That's just the way we are. It takes some men a long time to realize that.
Congrats on your weight loss Lev. It's a tough journey.
I'm on a roll this morning, so I'm going to speak my mind...yet again
I have a facbook account. I use it rarely. It is mostly to connect with family.
I don't use it to discuss my RA, because while my family is both loving and supportive, they don't have RA.
I come here because you guys do and there's a certain bond that I feel with my fellow RAers.
I don't expect anyone to react the same way I do, believe what I do or for that matter, treat their RA like I do. People with RA are as different as the disease itself.
We all have differing ideas and opinons. In my mind, that what makes this place so valuable. Me, I don't get my feelings hurt easily. I understand that some people here do though and I try to be nice. I have my moments , where I say things that I shouldn't, where I get frustrated and quite honestly when I feel the need to separate fact from fiction concerning RA treatments.
Change is inevitable on this board and any other message board for that matter. People move on. Life is like that.. It's my hope that more "old-timers" will start posting instead of just reading and that the newbies will keep coming...asking questions.
Because in the end, when you push through all the junk...That's what this board is about ..
Sharing info and experiences related to having RA. Finding out what works, what might work and learning to deal with a life altering illness.
ps..
I post on a couple other boards that have nothing to with RA. One is a political board and the other is a faith board. Trust me when I say, AI is tame compared to those two
edited because apparently I can't spell where GG,
I think some men and women are thin skinned. I have a friend that's a crier. My gosh, sometimes I can't stand being around her. I can't stand that fake cry/talking. She uses it alot when she is the one that gets herself into hot water and i guess people give her a quick "that's okay" just to make her stop cry/talking. Eeeeew, sounds like a siren with a flat tire.
On losing weight, I used to be not so easy on people with a bulge but now I know how hard it is to get rid of what was so easy to get. Wow this last hand full of belly fat is so hard to get rid of and as soon as i quit being active it seems like I can just see it starting to fill back up. Now winter is coming and so I am going to have to find fun, comfortable activities to do in the cold. I've even been riding my bike again. Bought a new seat that doesn't rock, roll and squash my prostate. It's still not as comfortable as I thought it would be. I need one of those big bucket seats. This is the seat I bought.
Looks comfortable, doesn't it? I wouldn't recomend it. It's called "stress free" seat. It's a little more comfortabe on "goods" but something is still missing.
LEV
levlarry2010-10-08 07:12:05A little too much info there Lev
Glad you feeling so much better that you can exercise and enjoy yourself! I think your lawnmower man does have a problem Snow, a big one at that.
As for FaceBook, I just can't really get a handle on that one although I do have an account.
[QUOTE=Bodak]
As for FaceBook, I just can't really get a handle on that one although I do have an account.
[/QUOTE]
Don't sell yourself short Bodak...you know how to accept and delete friends
I love Facebook but I'll be the first to admit that I'm a reader rather than a poster.
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