I am new to this forum and had RA for 9 years
I am in the UK and have been on a trial of Tocilizumab for almost a year (Actemra)
I receive it by IV monthly and really do not think it is any better than Methotrexate, which I may or may not be having with it as it is a random trial
Today, I have a flare up - so not sure whether I want to continue to the end - another year
But I have not had any side effects but find my stiffness in feet and knees worse
I'm sorry it's not working for you. I got my first infusion last week and don't notice anything yet other than more stiffness and swelling in my hands and feet. But that could be due to my decreasing Prednisone.
well I did have good couple of months when no pain in hands/wrists etc as I also have carpal tunnel syndrome and I could open jars (yay)
maybe its just a blip
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